 In 1990, the women started mailing newsletters, Pathlight, to about 100 people and a fourth woman soon connected with the three pulmonary hypertension patients and the United Patients Association for Pulmonary Hypertension was formed.United Patients Association for Pulmonary Hypertension officially changed its name to the Pulmonary Hypertension Association (PHA) in 1997 and hired its first full-time staff member in 1999.The organization has grown to more than 16,000 members who include patients, family members, and medical professionals.