 The documentary centers on his journey across the United States by motorhome to find the doctor who told his mother when he was born that he would not live past the age of 6.The title refers to the fact that Ankilewitz weighed only 39 pounds during his cross-country trip due to the rare form of SMA/2 that he was born with.Even though he could not move any part of his body except for one finger, he was still determined to use that finger to create 3D animations and live his life as he would if he had not suffered from SMA.