 The current chairman is Andy Lewis.Deputy chairman is Roger Paul.The remaining Board consists of Gill Johnstone (founder and patient parent), Sarah Dawson (patient parent and business coach), Mr Jonathan Stevenson (consultant orthopaedic surgeon), Malcolm Matthews (patient parent and charity director), Professor Bernadette Brennan (consultant paediatric oncologist), Hannah Millington (former patient), Arlene Eves (former patient and solicitor), Dr Darrell Green (molecular biologist and geneticist), Professor Alison Gartland (molecular and cell biologist) and Damian Harper (former patient).