    Tags: down syndrome, open-heart  Views: 148  Replies to This
Discussion  What a horrid story of US medical tunnel vision and
consequent incompetence. I am so sorry you went through all
that.  While it was a disaster, I did manage to become an
amateur neurologist and geneticist in the process. *laughs*
Mostly I'm just happy we were able to secure a diagnosis while
his neural pathways were still in the mood for growth spurts.
Imagine the health cost savings if your son had been correctly
diagnosed on the first or second presentation!  ... and sanity.
There would have been quite a cost savings in sanity as well.
And you? It took a long time for you to get that vital
diagnosis, also. How did the world handle you before that?  Me?
Oh, I simply assumed I was stupid. I began receiving the
"doesn't work up to potential" comments in grade school, and
barely squeaked out a diploma though a combination of luck and
pity.  I was twenty-four when I gave birth to my daughter and,
as a stay-at-home Mom, turned to inte