Wednesday, January 30, 2008  What's in a Name?  Posted to the
Campaign For a Fair Name Message Board  Before we do something
we might regret shouldn't all the facts be on the table?  Its
called informed consent, but we are not being fully informed. 
All the facts are being hidden just as they were when CFS was
invented to hide "the awful truth" about Myalgic
Encephalomyelitis.  The name change advisory board says that the
acronym "ME/CFS" is a "medically correct" name to replace CFS,
but it will still have a false CFS fatigue definition distorting
research, and the demeaning CFS will still be part of the name? 
How could anyone believe this unimaginative hype that CFS will
disappear when it is clearly part of the acronym/name?  Don't be
fooled again.  If you rename this disease - again - and believe
that the acronym ME/CFS is going to make CFS go away you may not
like the consequences.  People will ask what does ME/CFS stand
for and you will have to answer with nine words and then explain
some more:  Myalgic