Australian Ichthyosis Meet

I have a rare, severe skin condition called Ichthyosis. I am creating a meet for others affected by this condition - Melbourne, May 2015.

When I was a child, I hadn't met anyone else with the rare, severe genetic skin condition Ichthyosis. I thought I was all alone. Ichthyosis can be medically and socially challenging, and in some cases, fatal.

What is Ichthyosis?

"Ichthyosis is a rare genetic or acquired skin condition affecting an estimated 10-20 individuals per Million. Ichthyosis is characterised by persistently dry, thickened, rough, fish scale skin. There are at least 20 varieties of ichthyosis, including inherited and acquired forms. People with ichthyosis have a normal lifespan. However those with very severe ichthyosis may need to spend several hours each day caring for their skin so they can lead as much of a normal life as possible." (Source )



I am hosting the first official Australian Ichthyosis Meet – scheduled in Melbourne for Saturday 9 May 2015, as a part of Ichthyosis Awareness Month.


The day will feature three sessions: an informal meet and greet, a tour of the zoo, and a dinner for those who want to socialise.

Fondos becados por Melbourne (January 2015)