ALS Ice Bucket Challenge Progress


For Caregivers


Help for ALS Caregivers

Caregiving is willingly undertaken out of love and devotion to the person with ALS and can be a source of great personal satisfaction. Yet, over time, caregiving exacts an enormous emotional toll, and can adversely affect the caregiver’s physical and psychological health, threatening their ability to continue providing care. Concern for the person with ALS often causes the caregiver to overlook her/his own needs such as eating properly, getting enough rest, or taking time to pursue one’s own interests.


Family Caregiving

 When a Loved One Has ALS

View our Caregiving brochure - When a Loved One Has ALS


Caregiving Statistics

  • Nearly 53 million people in the United States provide care to a chronically ill, disabled, or aging family member or friend during any given year.
  • Caregivers spend an average of 24 hours per week providing care for their loved one.
  • 61% of all caregivers in the United States are female, and the average age of a caregiver is 49.
  • 51% of caregivers feel their role has given them a sense of purpose or meaning.
  • One in 5 caregivers report high financial strain as a result of caregiving (18 percent). Four in 10 have experienced at least one financial impact as a result of their caregiving (45 percent).

All data, unless otherwise cited, is from the National Alliance for Caregiving and AARP’s 2020 Caregiving in the US Survey.

For additional information and resources, visit caregiveraction.org.