Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!" and "My Vestibulectomy".

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. My hope is that my obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."

Pelvic Congestion Syndrome

Pelvic Congestions Syndrom is having varicose-like veins in the pelvis that are causing pelvic pain. The kinds of doctor one might consult would be an interventional radiologist, a physiatrist or physical medicine doctor who has a pelvic specialty, a vascular doctor, or maybe a urogynecologist (this would be the kind of doctor easiest to find.)

The term is easily google-able. A description from Stanford's website.
For some women, the cause of their pelvic pain is a condition known as pelvic congestion syndrome (PCS). It may go undiagnosed simply because physicians are often unfamiliar with it or fail to look for it.
Symptoms of pelvic congestion syndrome (PCS)
Many times, symptoms don't appear until a woman becomes pregnant, and then they continue after the pregnancy. The main symptom of PCS is pelvic pain. The pain typically worsens as the day goes on, especially for women who sit or stand all day, and then goes away after a night of sleep. Learn more about pelvic pain.
The pain can also worsen:
  • During or following intercourse
  • Around menstrual periods
  • After certain physical activities, such as bicycling or horseback riding

Causes of pelvic congestion syndrome (PCS)

Pelvic congestion syndrome occurs when varicose veins develop around the ovaries, similar to varicose veins that occur in the legs. Then:
  1. The valves in the veins no longer function normally.
  2. This causes blood to back up.
  3. The veins become engorged or “congested,” which can be very painful.
Treatment for pelvic congestion syndrome  
After we confirm a diagnosis of PCS, we will discuss treatment options with you. Treatments for PCS include:
  • Hormonal medications
  • Embolization, a minimally invasive catheter procedure to “plug” the varicose vein