Saturday, April 25, 2015

Balloonacy -- A Play Good for Children with Autism

Today the family went to the Dallas Children’s Theater to watch Balloonacy, a cute mime play about an old man who lives in an apartment by himself and is celebrating his birthday alone, when a balloon comes in through his open window and becomes his friend. The Dallas Children’s Theater has special showings of certain plays for children with sensory issues, and we have been going since their first such show. The sound is not as loud and the lighting contrast between the stage and the seats is not as sharp.

Although this was not our first play we attended at DCT, and although Balloonacy was not specifically written for children on the autism spectrum – it is a pretty standard mime play in the French style with light slapstick – I decided to write a little about this play because of Daniel’s reaction to the play, and because I think that this play is particularly good for children on the spectrum to see.

The story is about an old man who lives alone and is trying to eat a spaghetti dinner he warmed up in the microwave and to celebrate his birthday. A red balloon flies in through the window, and the old man tries to put it out – only to have the balloon return again and again. Finally, he slams the window shut, smashing his thumb – which causes him to put a band-aid on it. The balloon is magical – appearing out of the trash and out of boxes, including a birthday present left at the front door. The old man grows fond of the balloon when it appears out of the birthday present, and he begins interacting with it and playing with it. At one point he is playing with a fork, and he accidentally stabs the balloon. The balloon starts to lose air, and it slowly deflates. He puts the balloon in a box, puts the band-aid from his thumb onto the balloon, and the balloon reappears fully inflated. After more shenanigans, the old man tries to eat his birthday cupcake, and the balloon smashes it into the old man’s face – as the old man wipes off his face after putting the cupcake down on his seat, he sits on the cupcake. He gets angry at the balloon and throws it out the window, but quickly regrets doing so. He tries to show hearts out the window, then draws a big heart on a piece of newspaper, creates a paper airplane out of it, and flies it out the window. The balloon returns, and the balloon and the old man leave together. The play ends with the old man flying into the distant sky, holding the balloon.

One of the main attributes of autism is high orientation toward objects. Autistics are more comfortable interacting with objects than with people. They even relate, in a certain sense, to objects. I have used this knowledge to help socialize Daniel by making the Matchbox cars he’s obsessed with talk to each other. He’s then been able to transfer the emotions from the cars to people to a certain degree. Lately he’s started to demonstrate interest in getting things for his brother and/or sister when we go to the store, rather than just think about getting a car for himself. But he still prefers objects over people.

Balloonacy has two characters in it. The old man, and the balloon. Daniel identified with the balloon. He is also a fan of slapstick comedy (I have read that this is not uncommon for people on the spectrum), but there is little doubt he identified more with the balloon than the man. He was utterly delighted with the balloon and its antics (all children are, but not in the way Daniel does, identifying with the balloon – most children are delighted with the balloon the way the old man is). But then something interesting happened. The balloon popped. And Daniel began to cry. And the old man got upset. And Daniel began to cry a bit more, wiping tears away. Daniel was sad the balloon popped, and then when the old man was also sad, he saw the man feeling the way he did, and empathized with the old man.

While this may seem a normal thing to do – because, for a neurotypical person, it is – for Daniel this is major. Not only did Daniel feel sad for the balloon, which is something that we might in fact expect from him, but Daniel also felt sad that the old man felt sad. The feelings he had for the balloon was transferred to the old man. It was obvious from his body language and the ways he reacted to first the balloon and then the old man reacting to the balloon. Daniel hugged up on me to get some comfort when the old man was visibly upset, and had merely slumped in his seat when the balloon popped.

It seems to me that Balloonacy is a fantastic play for children on the spectrum precisely because of how Daniel reacted. There was an object the autistic children could relate to, and a person on whom they could transfer their feelings toward the object. This is empathy development, and people on the spectrum need a certain degree of empathy development. This play is a fantastic vehicle for this kind of transference and the redirection of the autistic child toward human emotional responses and interactions.

Tuesday, April 14, 2015

Employing People on the Spectrum -- Good For Business

Word is starting to get out that it makes good business sense to hire autistic people. Apparently, Microsoft is making a push to hire more people with autism. They have discovered that people with autism have capabilities neurotypicals do not, and that those capabilities are great for the bottom line. Who, after all, doesn't want someone who can find 10% more coding errors than can the average population? (This, by the way, is why I'm a good editor and proofreader.)

It turns out that people with autism seem to have increased perceptual awareness, which makes us appear distracted or not able to pay attention, but which in fact means we are taking in more and more and more information. If this is also what is happening with ADD/ADHD, this would suggest that ADD/ADHD is on one side of Asperger's like autism is on the other side of it. In any case, this would suggest that there is a group of people we have pathologized, but who are simply hyperperceptual. Such people are taking in and processing more information than are neurotypical people. Which would go a long way to explaining why so many people on the spectrum (especially if we expand the spectrum to include ADD/ADHD) are scientists, artists, and creative types.

While processing extra information does cause sensitivities -- to touch, to light, to certain sounds (like the high-pitched screech from my son that overwhelmed me for a few seconds while I was trying to write this) -- and background noises becoming foregrounded, making hearing conversations in a crowded room difficult, it also means strong attention to detail, high degrees of pattern recognition, and a strong ability to differentiate sounds. Different people will have different skills, meaning there will be some better with sounds, others better with language, and others better with math and programming. And there may be combinations. I'm not sure how good I may be with sounds, as I never learned to play an instrument, but I am a poet in no small part because I am obsessed with the sounds of the words -- I love alliteration, and I used it even before I started writing with regular rhythm and end rhyme. I am equally obsessed with patterns -- which is why I study complexity (love of patterns also is important in writing poems and studying literature).

Despite all of these benefits, people on the spectrum are woefully underemployed. I have read that people with Asperger's have about a 20% unemployment rate. The linked article reports that in the U.K., only 15% of people on the spectrum have full time employment. But 60% say they want to work. That's a terrible situation. And it's one I've been familiar with myself. In truth,
employers need to be better educated about the value autistic employees can bring. Businesses need to know about potential difficulties that autistic employees might experience, the simple adjustments that can accommodate them and the wide range of skills and interests that they can bring to the workplace.
One adjustment that needs to be made, as I have pointed out elsewhere, is that employers need to decide whether or not they want good workers or good people with whom to socialize. I would also note that people on the spectrum are probably not going to mention during the interview that they are on the spectrum -- and as a result, give an interview that they will think is fine, but which is, in the view of the interviewer, a disaster with someone whom they would never hire. Who would hire someone who won't look at you and rambles on and on? In my experience, very few.

Thursday, April 9, 2015

Polymath or Know-It-All?

It is apparently not uncommon for people with Asperger's to be thought of as "know-it-alls." But what, exactly, is a know-it-all?




Obviously, "extremely knowledgeable" is a general term for polymath.

So what about "know-it-all"? It is obviously intended as an insult. In my experience is it wielded by those who have lost the argument to my superior knowledge on a topic or who feel overwhelmed by my unrelenting barrage of facts on the topic at hand. That's when you get slammed with the epithet "know-it-all." Those who are accused of such ought to take comfort. Receiving the accusation is an admission of ignorance and defeat by the person delivering it.

Tuesday, April 7, 2015

Autism and the Questioning of Cultural Conventions

Cultural conventions border on the arbitrary. They are "real" only in the social sense of reality. They are meaningful only because we give them meaning. But that doesn't mean that they don't evoke real emotional responses from people when they are violated.

One example of a cultural norm in the U.S. is the removal of price tags on gifts. We all know to do this, because we were told by our parents to do that. But why do we take off the tags on gifts? It's a cultural convention. There could be a culture in which one leaves them on in order to make sure people know the value of the gifts. There were plenty of gift cultures in the past which emphasized the size and value of the gifts which could have evolved, in a modern context, to giving gifts with the price tags still on. In each case, people practicing the cultural norm would be offended and appalled at violations such as leaving the price tag on, or taking it off, respectively.

I have always been able to see through cultural norms and conventions such as these. And I suspect this is a general trait of those on the spectrum. It would explain why people with Asperger's marry people from other cultures at a much higher rate than the general population. If cultural norms are merely conventions, they aren't "real" in the physical sense, and therefore one can easily adjust to different norms. If you are on the spectrum, at least.

This ability to see through cultural norms as merely conventional is also one of the things that gets autistics in trouble with neurotypicals, who do not think them conventional, but take them seriously. This would create a great deal of social awkwardness, some interpreted as rudeness, if autistics are constantly ignoring social conventions because, seeing them as merely conventional and arbitrary, they don't think them all that important. They fail to take into consideration the fact that everyone not on the spectrum does take them seriously. Sometimes deadly seriously.

Yet, for there to be cultural change, there have to be people around who question the cultural norms, pointing out that they are in fact social constructs. Thus, people on the spectrum could contribute to cultural evolution; they would keep things changing by always questioning. As such, they are an important part of any society, even if this role is utterly unappreciated and often outright disdained.

Thursday, April 2, 2015

April is Autism Month -- On the Gap Between Knowing and Acting

April is Autism Awareness Month.

I recently found a poem I had written in which I discuss my sensory issues. The poem was written well before I learned I have Asperger's. It was untitled, so I gave it the title An Intense World. One of the great things about discovering I am on the spectrum is that it provides an explanation for how I experience the world.

I'll be honest, that experience is frustrating much of the time. There are things I understand on an intellectual level, but which I have exceeding difficulty in realizing. The importance of social networking for any kind of success, for example. The fact of the matter is that anyone who is successful at anything at all tends to be a brilliant social networker -- at least within their area of expertise. It is all about the number and quality of social links.

But this sort of thing is precisely where I fail. Making social connections creates anxiety. And the perception that I'm strange and/or arrogant strains the few social connections I have.

In addition, there is a certain degree of "I want to do only what I want to do" that I find it hard to get out of, even if I know I have to do so to succeed. The ideal situation for me would be to have a lot of time writing -- poems, plays, books, blogs, articles and essays -- and a secretary making sure that everything I was writing was being sent out.

I have 473 poems on my poetry blog, either posted or scheduled to be posted. Shouldn't I have a few chapbooks at the very least? I decided to publish them on my blog because that was the best way for me to get them out there for someone to read. Further, I have numerous plays, but I have only had one performed, while another made it to a stage reading. Given that the one that was performed won first place, I should have had more plays performed by now. Had the theater in which I managed to get involved stayed open, I'm sure I would have. But I have a great deal of anxiety even trying to figure out how to get into another one.

What I really need is a secretary or a partner who does the work of making sure my work is sent out. Once arrangements are made, I can typically deal with people; it is often creating the situation where I am frustrated. I'm never sure what to do, and I just abandon things and do back to doing the work I'm comfortable doing. I have found some success in doing work on Austrian economics precisely because people keep inviting me to write articles and to attend conferences. I haven't had to pursue them, so I have found success in getting work published. This is also how I have managed to network, with the people at these conferences.

I am best when my work "speaks for itself." But of course, rarely does work speak for itself. More often than not, you have to speak for it, push it, insist upon it -- all while not appearing to be arrogant. Unfortunately, the confidence which arises from obsessively learning something until you reach a high degree of certainty creates the appearance of arrogance. Especially if it is combined with social awkwardness. If you don't know how to sell your knowledge/understanding well, you will always come across as arrogant. So such accusations seem inevitable.

In any case, all of this means that I need some sort of representative, a go-between to ensure I actually interact with the world, and interact well with it. Without that  kind of partnership, it is difficult to succeed. Constant creation is not enough; you also have to get that work out there. I am good at the former, but cannot seem to achieve the latter to the degree I should and must. Which is itself frustrating for so many reasons.