10.4081/btvb.2024.136
Ensuring access to life-saving therapies for Palestinian hemophilia patients and safeguarding their right to health, along with committing to long-term goals such as establishing a Palestinian Hemophilia Federation and systematically implementing updated and internationally recognized treatment protocols, is the appeal directed to the international community by Palestinian sector associations [...].
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Bleeding, Thrombosis and Vascular Biology
Palestinian hemophilia patients
Palestinian patients associations appeal on World Hemophilia Day
Text.Serial.Journal
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Letters
2024-04-17
2024-04-17
2024-03-01
2024-04-22
Bleed Thromb Vascul Biol
Sara Mellano
2024/04/17
10.4081/btvb.2024.136
Centro Nazionale Sangue, Rome
2785-5309
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Palestinian hemophilia patients
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Palestinian patients associations appeal on World Hemophilia Day
https://www.btvb.org/btvb/article/download/136/101
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                                                                                               LETTER TO THE EDITOR

Palestinian patients associations appeal on World Hemophilia Day


     Ensuring access to life-saving therapies for Palestinian he-            The goal of the Palestinian hemophilia community remains
mophilia patients and safeguarding their right to health, along         steadfast: to implement internationally recognized treatment pro-
with committing to long-term goals such as establishing a Pales-        tocols, provide safe and efficient treatments, comprehensive
tinian Hemophilia Federation and systematically implementing            medical care, and psychosocial support to alleviate patient suf-
updated and internationally recognized treatment protocols, is          fering and integrate them into society.
the appeal directed to the international community by Palestinian            This commitment needs to be complemented by that of the
sector associations, as gathered by the Haemo-PAL project on            international community, governments, institutions, and sector
World Hemophilia Day. The project, conducted by the Italian
                                                                        organizations to ensure the safe supply of medical devices and
Istituto Superiore di Sanità (Higher Institute of Health), coordi-
                                                                        life-saving drugs, including those for hemophilia and other co-
nated by the Italian National Blood Center, and funded by the
                                                                        agulation disorders.
Italian Agency for Development Cooperation, was launched in
2021 with the aim of supporting the Palestinian Ministry of                  Every April 17, the birthdate of Frank Schnabel, the founder
Health in strengthening clinical centers for the diagnosis and          of the World Federation of Hemophilia, the international com-
treatment of congenital hematological diseases.                         munity celebrates World Hemophilia Day as an opportunity to




                                                                                          ly
     Today, more than ever, the suffering continues for hemo-           mobilize resources and provide support to patients worldwide.




                                                                                  on
philia patients in Palestine, and a collective commitment is es-        Since 1989, the goal of the day has been to coordinate efforts to
sential; moreover, restrictions on the entry of humanitarian            develop plans, budgets, and actions to implement the principle
personnel and medical supplies are hindering the continuation           of treatment for all, ensuring adequate treatment for all people




                                                                             e
of this and other international cooperation initiatives already un-     with inherited coagulation disorders, regardless of sex, age, or
derway in Palestinian territories.
     In this situation of tragic urgency, the Palestinian Society for
Bleeding Disorders (PSBD), a partner of the Haemo-PAL project
                                                                        us
                                                                        location.
                                                                             The project, initiated in 2021, involves Italian institutions,
                                                                        foundations, and Palestinian associations among its partners.
                                                                   al
and active in advocacy efforts for years, renews its commitment         Among its objectives are the definition of diagnostic-therapeutic
alongside patients: “National and international parties” states         protocols, the implementation of an electronic record for clinical
                                                    ci

Jad Tawill, a founding member of the association, “must work
                                                                        management of conditions, the establishment of a national reg-
seriously and sincerely to make this occasion a new starting
                                                  er


                                                                        istry of congenital hematological diseases, training for Palestin-
point for concerted efforts, cooperation, coordination, and
global work among decision-makers and service providers in              ian specialist doctors, and, lastly, the periodic dispatch of
                                                 m




official institutions and civil society organizations, led by the       medicines derived from the plasma processing of voluntary and
Palestinian Ministry of Health, the National Hemophilia Com-            unpaid donors from partner regions Emilia-Romagna, Marche,
                                       om




mittee, and all associations working in this field. It is also es-      Tuscany, and Umbria.
sential to accelerate the establishment of the Palestinian
Hemophilia Federation to represent the Palestinian hemophilia                                                           Sara Mellano
                                 -c




community globally”.                                                                              Centro Nazionale Sangue, Rome, Italy
                         on
                   N




                                          Bleeding, Thrombosis and Vascular Biology 2024; 3:136
