in it. We are back, but I'm going to bother trying to point because there's two other people on the screen and I will 100% f that up. So welcome back, folks. Here we are again for another monthly episode of whatever it is we like to talk about. Today we're going to talk about what is recovery, I had to look at the screen, what does recovery look and feel like? My head always by Lauren Rosen. You guys know Lauren by now. She's a practicing therapist in LA in the LA area, specializing in anxiety and anxiety disorder at OCD. And then I don't know if you could see it below us. I guess it's the same for everybody. It's Kelly Frankie, otherwise known as the OCD therapist on Instagram. Hey, Cal. Hi. Thanks for having me on. You're very welcome. You're welcome anytime. And for anyone who's just joining us from our pages, we always have to give a shout to our fearless leader here, the one, the only Drulan Salata, who is the dot anxious dot truth. But yeah, most most people know you because of course this is your channel. So but if you're joining minor Kelly's, he's fantastic. You guys could post it on your YouTube or whatever it is. We'll do that. That's true. I have some of them. Oh, cool. Okay. So I'll put everybody's names up on the screen later on so you guys can follow along with these two fabulous human beings. Today's topic, if you choose to accept it is what does recovery look and feel like? So maybe we should let Kelly start as our honored guest here for half hour, take it away. Well, actually, we kind of talked about this last week in our own podcast. And I think it's really important to establish the fact that people think recovery means I'm not going to have intrusive thoughts and I'm not going to feel anxious. So out of the gates, just establishing that is that recovery will include intrusive thoughts and it will include anxiety and that we really measure recovery based on how you're responding to those things. And that's pretty common in the OCD world. I'm never going to have these thoughts again, right? Yeah, no. I don't know. That depends. Are you still going to be alive? Because as long as you're alive, you're probably still having the thoughts, lots of them actually. Right. So then I'll lead right into a question then because I think we've acknowledged this and most of the time we do talk about it, all human brains create what, for some people, become really sticky and nasty and scary thoughts. Like, you know, that 13,000 volt bus board is right there. I could just grab that. I've had that thought like on old construction sites when I was in architecture or I could just step off the top of the Trump International Plaza. 92 stories in the air. I could do that. You could. You have two legs that work. I decided to do that right now. So is it correct in saying that part of that is like, you may have, because all humans have those kind of thoughts from time to time. They don't go away forever. No. I think you certainly can, through treatment, I think you certainly can reduce the intensity and the amount. But I would say don't go into it with the goal of that being in the forefront. It's rather of like a side effect of learning how to manage anxiety. I don't know, Lauren, if you want to say it in a different way. Yeah. I think it completely connects to the first point that you were talking about and that we're trying to develop a different relationship with these thoughts, that it's really down recovery instead of looking like no thoughts, no feelings, unfortunately, well, fortunately, depending, is that it's about willingness and how willing are you to have these experiences because the problem isn't the experiences. It's the fact that we're so bound to not having them, like that this is the only way life can be good, which gets us all stuck trying to get rid of them with all sorts of behaviors, whether that's we're talking about an agoraphobia, not leading your home, or we're talking about ruminating endlessly about whether or not you want to murder your family in Homo City. Yep. Makes sense. I get asked all the time in sort of my thing, do you ever have panic attacks? And I'll say like, I don't know, maybe once a year I might have a panic attack and some people will say, well, you're not recovered. Oh, no. And how could you be saying you're not recovered? Like, no, no, no, no, when did I ever say that you would never, ever, ever have a panic attack? I know they want to hear that. But it's one of the hardest things for me to convey is, well, then how could you say you're recovered? And I will say, because I simply don't care if I have a panic attack or not. Yeah, the same in your it's similar to like, when people say, how do you stop a panic attack? You don't actually don't, you go right through that sucker. And, and the same is true with recovery is like, we're not stopping this experience. We're just moving through it. Yeah. And he said, I simply don't care. That's it is like, we go, cool, we'll find out.  It's just not guaranteed that they will never happen. Correct. Well, the more that you want them not to happen, the less that that experience of accepting them and therefore them becoming less frequent will happen. Yeah. I actually had it explained to me in an interesting way once, which is that it's not that they become less frequent per se. It's that when they come up, they don't register for you because you're not bothered by them, which I'm sure it's some sort of balance between those two things. But isn't that an interesting way to think about it? It's like, because of what you were saying that like, when they do come up, it doesn't matter to you anymore. That that is just like, it's a non event. And so your recollection over time is that they're just not happening. Right? That would be the case if somebody is dealing with intrusive thoughts, you think, or those that you relate to are compulsions. And I also think related to anxiety thoughts and other disorders. Right. It's all kind of the same. We've talked about this to you and I before, like the distinction is a lot. Yeah. So I like to say it was in a conversation yesterday with somebody who would say, I'm pretty much about 95% recovered. And he wound up in a situation and it's actually next week's podcast that you guys it's in the past if you're watching this, but anyway, he was triggered, you know, air quotes triggered by a thing that he saw on the news, which brought him back to one of his primary fears. And he described it so well as like the time that that would have taken a week away from my life in the past. Yeah. It took like a 30 minutes. That's it. That's what we want to hear. Yeah. That's where we're like, yes, recovery is happening. This is fantastic. See how he responded.  He framed it as it used to be this. Look how far I've come. Look what I can do. So a lot of it is attitude, you know, and an acceptance of like, well, why wouldn't I be afraid of that? It's just, you know, that's a disturbing thing to see happen to somebody and gonna have a human reaction to that. All right. Maybe my reaction is a little stronger than other people's would, but I was out of it in 30 or 45 minutes. I was good to go again, which I think that's what recovery to me. That's what it looks like. My personal recovery looks like that. Like people ask, how could you not care? Well, I do care, but I care for just a few seconds for six months in a row. Does that make sense? Totally. Yeah. Yeah. It's all on the pivot, right? It's all in how quickly you maneuver back to acceptance as opposed to resistance. Yeah, that's true. We're building that muscle. But then, okay. So there's that piece of recovery. Like what recovery actually looks like is that you're going to have thoughts, you're going to have feelings. What about the element of doing recovery perfectly? Because I think that that often comes up for people as like, well, if I'm really in recovery, then I'm never going to do a compulsion or safety behavior, which I don't know. I don't know about YouTube. Well, I think I know about YouTube. She definitely can speak for me. I know her. I'm pretty sure I have a feeling, but nobody does it perfectly. I've yet to see a client do it perfectly. And I think if you try to be so vigilant that you're doing it without compulsions or without safety behaviors, then it becomes another point of fixation. Yes.  So they're just like tracking every single thing that happens and how intense it was and how long it lasted is like, well, that's a surefire way to get more stuck. That's that checking and evaluation mechanism that always keeps looping back to say, is it working? Is it working? Right. Yes. Oh, yeah. Yeah. And if it doesn't, if I don't judge it as working, then I'm going to question whether I did it right. What can I do different? What do I do wrong? I hear that all the time. Oh, yeah. Like, I don't know, dude, you described a text book response. What was wrong in that every day? Well, and the expectation that if I did it the way my therapist taught me how to do it and it still doesn't change, then what does that mean? Like normally it works like it quote unquote works. Like normally it doesn't bother me or it'll eventually go down. How come two days later, I'm still upset by it? Hmm. Same. Respond the same protocol, right? People are always looking for it should look this way. And there's like this exact piece of how to do it. Yet humans and their daily living is so complex. It's hard to measure that.  It's not as easy to do it. Oh, no, is that what you're saying? Every single day. Well, and that's the thing is, it's like, how can I use this to get rid of anxiety? And that's where, okay, so we've been talking about, I'm not bothered by this. But isn't it that we get better at being bothered? Right, getting more comfortable in the discomfort of it. Oh, that's a good question. Well, and we've done this that the whole like, well, let's do a little guru, you know, sound bite here. It's like, it's not, it's not getting, it's not not feeling it's getting better at feeling. Yes. We work that out. Yeah. Yeah. I find myself in that sometimes when I'm having a particularly I bite off more than I could chew the typical for me. I'm not sleeping. I'm taking on a million projects. And I'll feel that sometimes. But I would hope you would. Yeah, I can write. I'm not a robot. Contrary to popular belief, I have, maybe why not bleed? Liar.   That was freak. Matrix.  But I will feel that. And when I do feel it, I can acknowledge like, Oh, that's right. I knew I should. I shouldn't have gone to bed at 2am. I should have said no to this project. I should have pushed the deadline out a week. I guess I'm just going to feel like this today. I'll do the best I can today. Well, and people who are fixated on recovery might go, well, I slept fine. I ate well. I worked out. There's no life stressors.  Well, because you just feel anxious. Come on. Let's go. Keep going. Yeah. It's a part of the human experience, right? Right. It's also part of the human sorry experience to figure things out, right? Like our minds are these intense problem-solving machines. So it's easy to have compassion for the person that's trying to also make sense of why they feel anxious. Yeah. Yeah. And then we normalize that. Fixing fixing fixing pathologizing and negative mood or a negative thought or negative emotion. We got to fix it. We should be able to fix that. Get out of that. I mean, yeah, why? I sure that would be great. But why is that our automatic response? This is the thing that we must fix. Yeah. Yeah. It's a problem. Well, because we're good problem-solvers. I think that that's one of the one thing that anecdotally anyway I see across everyone with anxiety disorders is that generally they're pretty high-achieving people, right? And that they've responded very well to one MO, which is, ah, there's a problem. Let's figure out how to solve it.  And it's like, well, ready, I can solve this. And I'm going to do all of it. Then you get stuck trying to solve it because you can't solve feelings. It doesn't work. No, there's no formula. Yeah.   I really want to do it. I can't, but I'm going to fix that in another way. I worry about that myself. Like, future me be like, will I take that language back? I have that thought. Yeah. I regret having written that. But I thought of it that way at first when I was like, I can solve it. I know what to do. I had to discover, like, in a very real sense, I didn't know what to do at all.  Like, in a real sense, I had no idea what to do, which is true. I had to accept the recovery looks whatever it looks like today. And that's as good as it's going to get today. That's okay. Right. What can I learn from today was a big part of my recovery. What can I learn from this? I love that. Yeah, I think that's a very resilient building statement. Took a while to get there though. Oh, yeah. Yeah. Yeah, that was that growth mindset is it's everything. It is. Because it's no longer about solving the problem. It's about how, how can I just continue to get better at navigating this problem? Yeah. And accepting that these things are going to happen. I can call them problems if I want. So I could try to make them not happen, but I'm failing at that miserably. So at some point, yeah, you know, to me was I had to come to that realization as part of what did recovery look like? I one of the things I had to do was discover I cannot.  I just can't do it. It doesn't happen that way. So I do think that there is some amount of formula and that's there are ways that you can make it worse, right? There are ways like compulsive behavior is one part of the formula. It's like, we want to, you know, reduce as much as possible and we can't get rid of it entirely, like Lauren was saying. But if you're going to spend hours a day and you're choosing to try to control it, figure it out, engage in some type of compulsive behavior, then yeah, chances are that's not contributing to how you're going to learn anything different to the next day. So there's stop looking. There's not necessarily a formula for making it better, but there sure is a formula for making it worse. Yeah. That's not eating well, sleeping three hours, adding so much more stress to your plate. Here's the other piece though, right? We can't get, and this is what we were saying before, is that you can't get too rigid about that either because there are some people who are like, well, I'm not getting exactly eight hours of sleep. And so I'm going to have a relapse. It's like, well, okay, but if you're life, if you're going out to a big party and celebrating and you stay out until three o'clock in the morning, then that's part of what life is all about. Would I advocate for you doing that consistently? Kind of like what Kelly was just saying, like, no, I'm not going to advocate for people doing that or not eating regularly or, you know, compulsing or doing safety behaviors on a regular basis because generally speaking, over time, that's what we're building. We're building unhealth. That's a word. Unhealth. Unhealth is officially in there now. Unhealth. You're welcome. It's all good. Like you can cultivate your wellness or you can cultivate your unwellness, right? Like that's essentially culture. But that process of going toward recovering away from the icky stuff would say that, well, I can be open to more experiences now because my interpretation of them are different. Oh, I didn't sleep. I only slept four hours. I said, I'm going to be a mess tomorrow, as opposed to, oh, I'm going to that concert and I'm going to be dragging tomorrow, but it's so worth it. So how come that's okay? But the other side isn't okay. So do you guys find that your experience is a little wider and richer? Like, yeah, it's okay. I can go toward this thing. I would have never allowed, never. Absolutely. 100%. I think about the conference in Denver where Lauren and I presented way too many. Oh my god. And is that what you're going to call it? Yeah.  It was, yeah, I mean, not eating enough food because it was like back to back to back, not sleeping. Like at some point at five o'clock every day, we would start laughing hysterically, like just like insanity. Like really, like it was true, like no reason. We couldn't stop. And we couldn't stop. And it was awful and embarrassing, but whatever. Wonderful. But it was all good. Yeah. Like I got home and I had a little bit of a rebound. Like I feel like I had a little more intrusive thoughts. I was feeling a little more anxious. And I was like, oh, like that's okay. Like I of course that's going to happen after I spread myself so thin that I was barely alive. But it was totally worth it. So it's reframing it in that way, for sure. I find it amazing because while I was not at that conference, I am in touch with enough people who were, be it clinicians, researchers, advocates, people who are still suffering in recovery, who all have the same story. I got to go to the next one because clearly it's a good time. Everybody dragged themselves by their lips out of that conference and barely made it home. So so many, this large number of people who were insistent on maintaining control and boxing, keeping it all together for three days, just like, hey, whatever happens happens. And it was okay. Nobody died. Nobody died. Not to my knowledge. No love. Yeah. Yeah. But I think that in addition to that, in addition to just feeling totally exhausted after that, I think I can speak for Kelly as well as myself that, and this is with the podcast too. I never got up in front of people and spoke publicly before. Didn't like it. Made me anxious, makes me anxious sometimes, right? Lots of social anxiety, like, Oh, what are they thinking and like the fear of judgment? And really being willing to go toward that, even though it's not like it wasn't ever particularly debilitating for me, that, and just sort of under the umbrella of what does recovery really look like, it's seeing these opportunities and going, you know what, screw it. I'm just going to push myself a little bit harder. I'm going to do the thing because that's what I care about. And now, you know, even though I am uncomfortable, I'm pretty good at being uncomfortable in the service of talking about this stuff. And hopefully, it helps a person or two, you know? I would have never known. Great on camera. I know. It's wild, but she does get nervous as do I. But yeah, agreed. It's like you're more willing to an experience that normally you would avoid, for sure. And that's part of what recovery looks like. Things get broader, like experiences get wider, like there's less restrictions. So people ask me, well, you know, is it only, I always like to try to talk about recovery in terms of how it starts to look more like just life and less like recovery. You stop. Good point. They only want to know about the anxiety part of my life. It's not a part of my life anymore. Let's just talk about my life, you know, I travel, I go to things like I don't have any restrictions here. I never, I never make my decisions based on how I feel.  But so that's really important. Recovery looks like you stop asking about recovery to a certain extent. Yes. I saw a post about that actually recently. Shannon, I think is her name, a healthy push. You know what I'm talking about on Instagram? Said something about like about just that. I thought it was so on point because essentially instead of focusing on how do I feel better, how do I get better? It really comes down to how do I live my life? And if people start to focus on that and less on the anxiety, the anxiety gets smaller and smaller anyway, just because it's not the focal point. Yeah. So do you guys find as you went through it or as your clients go through it that at first it's all recovery all the time. And then over time that balance begins to shift and it becomes there's an almost an even mix and at some point recovery starts to kind of tail off and it just becomes life. And you don't know when it happened for me and for most of my community like, wait, when did I, when did this happen? I don't know when it happened. It was no moment. Yeah. I see it when my clients, we stopped talking about OCD and we started talking about like their life, like Lauren was just saying. Yeah. Which is a great thing. It is a great thing. Yeah. Give us a point to that to somebody. Where's that? Usually, usually I'll be like, Hey, look at all this work you did. That's so incredible. There's usually this moment that's this an epiphany moment that's either brought to the client will bring it up or I will notice it. I'll be like, wow, like I was just reflecting on how when you first came in here, this is what you were doing.  And here they are talking about it as if they were just anybody on the street. It's really cool when you see it. Or when other life problems can be problems. Yes.  Like the kids are making me crazy. Like, you know, you didn't care about that a year ago. No. And now you have a whole different skill set to even deal with that stuff, right?  What kind of person do I want to be? Instead of like, how do I, you know, release this feeling of frustration I'm having by yelling at him? Anything about this goalie in the NHL enough with that. My husband has aspirations to become an NHL goalie now. But no, it's yeah, it's it's remarkable. But I think what what I appreciate about what both of you are saying is that yes, there's this these moments where it comes into stark relief, the difference. And at the same token, it's this slow accrual over time, that one day you make this choice, and then the next day you make this choice. And then over time, this becomes the norm instead of this, but it is in those in those small moment by moment choices that we that we build our recovery. And then all of a sudden it's like, well, wait a second, we're not, we're not focused on that anymore. Wow. Right. You just preemptively answered my next question, which was going to be, I know that people watching are going to say, but how can I possibly get to the point where I don't care? That's always the question at the end of these. That sounds great. I can't wait to get there. But how can I possibly do that? I think Lauren just answered it. Tiny moment by moment, right? Acceptance of every of these little moments. And yeah, I tend to like minimize them as well. It's like, well, I did all these awful, like I did all these compulsions and blah, blah, blah. But then as the session goes on, they're like, I did this, I did that. I'm like, wait, hold on. Why did we just bury the lead? That's exactly it. It's a great way of putting it is like, forget all the other stuff. All right. Forget it. Let's talk about the stuff you did do because those matter. Like those tiny things are actually what's getting you closer to where you want to be. And people don't realize that it's so, it's so important. Every step is a big step. And like building the foundation of a house, like if you keep sort of sweeping it away every single time, like, no, that's nothing, right? You never build the house. All these compulsions. Oh, okay. We'll work on that. But you did all these other things too. Yeah. Those are some good bricks. You leave them there. Yeah.   It's not a house. Right. Like where we're going with this. Yeah. Yeah. Yeah, absolutely. Yeah. Damn it. It's still not a house. No, it's not, but it's one nail closer to us. So keep driving the house. Yeah. Celebrate. Be proud of yourself for every step and keep going and not stop. Don't stop building when you hit a block in the road. How do you deal with that?  Well, it's the same thing. I mean, it's so funny because clearly we might be in different environments, but the story is that you buried the lead. It was in my head when you said it, because I see it all the time. People will rush into like my Facebook group and like, I did that. They'll give me a big long litany of all these amazing things that they accomplished over the weekend. Oh my God.  But then they come to, but then I got home and I started thinking that I was really anxious and then I didn't, you know, I got stuck on that and I couldn't get rid of that thought. I'm like, whoa, hang on. Stop. You could have stopped. Yeah. I think it's a universal experience. We don't give ourselves enough credit and we're too close to it to see the wins. And I think we're emotionally invested in the, in the suffering. We're not emotionally invested in the win. So we have that negative bias of like, I'm going to only focus, it's like customer service. Well, you know what? No one goes to therapy just because they get a nightmare, by the way. That's true. But what, you know, in my, my life is in technology companies, I used to tell my people that we're doing customer service, like no one calls us to say, I love you, man. They only call us. No one goes to see you guys in your office because you're just cool. I mean, you are, but then it's not where they go. Nobody goes because you're just having a great day. I want to tell us about it sometimes. So they'll bury the lead 100%. Yeah. Yeah. Yeah. Highlighting each of them is so important. Like what you were saying, Kelly, like each and every one of them is just, Hey, but look at what you did well. Look at. Yeah. And I think that's why it's really important to have friends. If you don't have therapy and you don't have a therapist who can point those out to have support in some way, or even like a Facebook group or whatever, you know, Lauren's my best friend. And there, I can tell you right now, there are times where I didn't see certain things.   Yeah, I did do that. So hang on. Cut out. I did it. Kind of a badass. No, you mentioned it. You're 100% right. Yeah. That's so interesting there because that's one of the ways you get to, you know, talking about what is recovery look and feel like with one of the ways you get there sometimes is we do have to trust the people around us, the people that came before us on the path or the, you know, our friends, our family, whoever are professional helpers, because we can't see it. Or we can't believe it. So people, I don't know, that's a different topic altogether. It's true. I just can't seem to get my brain to believe this. I know it won't until you do it, the belief you have to. So you'll have to use my belief for now. Borrow mine. Borrow mine. Yeah, borrow mine. Like trust that all 5,000 of us are not sending you to doom. Yeah, would we? Yeah. Yeah. Does that, that makes any sense to you? Oh, 100%. Yeah. Yeah. Yeah. It's such a leap of faith required. I remember my own therapist telling me like, you're going to just have, you're just going to have to trust me on this. Yeah, mine too. And I was like, what? Plus who what now? I don't know. I don't know. But there's doubt. It's like, okay, let there be doubt, you know? Actually, yeah, to your point, Drew, I think we could do a whole other thing talking about that leap. Maybe that's next month, like the collective brain of recovery, which we don't, and Kelly, you're welcome all the time. I know you're going to make a regular thing. Yeah, we just need another element. I don't know. As long as we can talk about Lovowski a little bit. Sure. That's the next, I literally wrote, I write that morning newsletter, I wrote an entire episode, an entire morning newsletter about what the big Lovowski teaches us about recovery. So that was. Oh my gosh, I need to see it. I'll send you the link for sure. Are you kidding?  So good. Well, it's funny because as you were talking about nihilism, I was like, oh, that would be like, you know, before the chat and how Lovowski is a nihilist, it sort of has that flavor of like, I don't care, right? Like, oh, all right. Well, that's happening. Totally. The dude is teaching us about recovery. Interestingly, in that situation, and we'll talk about it next month, Walter, Walter, the hot-headed guy was the voice of recovery. Yeah.    All right. Relax, dude. Nothing is aft. Like that's just how you put the sound clip in it. So I'll send you the link. I can help myself. This is how I have my fun. It's like, I'm calm. I'm so calm. Comer than you are. Comer than you are. Oh my gosh. I don't know. I find myself as a Lovowski person. It's rare. I just, I'm going to say something. It's rare to find a woman that can quote it line for line. So you're welcome back all the time. Watch this one. She's going to take your chair, I like it. Go do it. I will say we have to find a nature element for Kelly to have, because for some reason we became fire and ice. Our disco group, our recovery disco group that I don't know why. So we need like earth, wind, power. We're going to be a captain planet is basically what I'm saying. Sort of power rangers thing going on. Yes. Oh, I love that. So I don't know.  I wouldn't. Yeah. I was like, I feel like I've missed out on so many cool things right now. Water. I like it. Wonder twins, but with a strange third wheel. I love that. I want to be the strange third wheel. That's great. Good. I like it. We support you in any way we can kill. Thanks. Thanks. All right. So maybe next time we'll talk about maybe the hive mind, the recovery hive mind when you have to trust the hive mind because you can't trust yourself. Love it. Anyway, we're out 32 minutes. It's about as far as we want to go. Thank you. Appreciate you guys. Let me put you guys up on the screen. This is how you get to Lauren. She is at the obsessive mind on Instagram. This is how you get to Kelly at the OCD therapist. And lastly therapist too, like you were the first one. Yeah. It's like, bam, self-relieving. The OCD therapist, not an OCD therapist. It's hard to find a handle. Yeah. That's why I have periods of mine. Some do to read the truth without the dots. True. How dare they? And there is Drew. Go check him out. The anxious truth. He's got, he knows it, the anxious truth. What are we gonna do? Anyway, so thanks for coming by guys. This will stay up on my YouTube channel. So if you keep commenting, I will answer. And if I have to drag these two lovely humans back in to answer some comments, maybe I will do that. But otherwise, we'll see you next month as always. GTS then.


It wasn't the flag that you fought for and it wasn't the country you fought for and it wasn't even the Marine Corps you fought for. You fought so that you would not let down the person on your right or your left. That's why Marines fight.  And it's almost, and I don't mean it to be flipped, but you end up in love with those people. You're not going to let them down. And the lesson I learned was that that's a powerful, powerful motivator for those people around you. When you're in going towards that machine gun after that, whatever it is you're going, the thing that keeps you going is you're not going to let your fellow Marine down.


Yo! What's going on Leaf Nation? It's Leaf for back again and welcome back to the channel. Today we are opening up some hacks. I haven't done a pack opening in a while for my main account so maybe our luck's gonna be good because we haven't worth packs in a minute. I don't I don't know. So I have my hutch hands rewards. I have my hutch rival rewards and I have an x-pack to choice pack to open and then we will be doing a team update. But quickly let's show you the new content that is out. We have the 87's rule that you can do through moments. I'm still trying to obtain it. We got these prototype cards. Fantasy hockey cards are out as well. We'd love to pull one of those. More fantasy hockey cards. We got a new team in the week featuring Jack Hughes, John Carlson, the two big guys there. We got Plays of the Year, Trish Durkin, Sorokin, Milano, okay. Hutt headliners. I would love the 86's William Nylander. His 85's unreal so I could only imagine a plus one of that card. Milestones. These guys just retired recently on the weekend. Cassian, Plekanix and Joe Thornton. And then some live moments, Pasternak, Caulfield, Panerans have been a jajari. Some decent cards out. And we got some decent packs as well. So let me show you what we got. X-Factor pack, two jumbo elites and an omega players pack. Let's get into it. We're gonna start with the mega player packs, 30 items, all gold players with at least 580 plus overalls. Give me something good game. Here we go. Come on, baby. Give me something good. Okay. Gabe Velardi, not great. Brian Gianta, Capococco. Come on. Let me see a purple. Let me see a fantasy hockey card. Some special card would be nice. So far, nothing great, which is a little concerning. Brain of point, 84 overall. Not too bad. Okay. Lomburg, Lomburg. Okay. This is not looking great, but it's okay. I have faith, boys. I have faith. Give me something good. Aaron Dell, Leaf legend. Philip Gustafson, Josh Manson, Darnell Nurse. Oh, brother. We're down to what? Four cards? Nothing really to show for it. Hey, new team of the week, Jakub Slaven. He might actually crack the lineup. I'm not too sure. Jakub Slaven, not too shabby. Olimata and Tyron. Not a great pack. Let's be real with each other. Not great. Okay, two jumbo leaps here. We get 1880 plus overalls, 20 gold players. Okay. Come on, baby. Let's see something good. Kerry Price, Jake McCabe, okay. Hampus Linhom, 82 overall, not too bad. Yes, Barry Kokanyemi. Come on. Give me something worth money, man. I need some coins. You can see I only have 4K in the account right now. It's not great. Oh, brother. Callie Yarncroak again. Johnny Hockey, 83 overall, not too bad. Nick Schmaltz. Let's go, boys. No way. Did we just pull team of the week, Jakub? Oh, my God. Dude, this card looks insane. 96 agility, 92 speed, 93 excel. His shawl looks absolutely amazing, and his hands look amazing too. I don't know if I'm going to sell this card. I'm probably going to keep him, but holy hell, this team of the week card literally just came out, and we pulled them. Welcome to the team, Jakub. That's beautiful, man. That's my first purple of the year on this account too, which is awesome. Travis Kinecti, Brad Marshawn, Lioney, Amber Tuzzi. Okay, but dude, we absolutely take a team of the week, Jakub. Are you kidding me? Let's go, boys. All right. One more jumbo leap pack, and then we've got an X-Factor choice pack where we're going to pull an X-Factor McDavid because I need him. Okay. Here we are. Okay. Celebration. Didn't know you can pull that. I thought this was an all-players pack. I guess not. Own power. Okay. Timo Meyer, JVR, Mark Stone. Was this a different pack? This might have been a different pack. Okay. I think it is. Kevin Shad and Kirk. Another team of the week said Jarvis, so that's three teams of the week that we've actually pulled. Brandon Hagel. Oh, brother. Morgan Frost and Ricard Raquel. Not too shabby. Not too shabby. Those packs are pretty good. We'll take an 87 Jakubes, boys. Before we hop into the X-Factor choice pack, I want to see how much that Jakubes is going for. Just real quick. These menus suck, by the way. How much does 87 Jakubes go for at the moment? A couple. Okay. I mean, just over 100K. Not too great. I'm probably going to use them, to be honest, man. I'm probably going to use them. The moment of truth. This is what my fourth X-Factor choice pack I've opened. Give me Connor McDavid. We're going to go one, two, three. We're going to go one, two, three. All right. First card. Please be McDavid. Please for the love of God. Kachuk. Okay. We had a chance to get him before. We took Crosby. Not too happy with Kachuk. I'm going to be honest with you. Second card. Come on. Let me see that orange. Not good. Okay. Last but not least, Connor McDavid. Show me the money. We're going to take a chuck, but we're going to do the X-Factor re-roll. I'm not happy. I need this McDavid, man. I'm not going to use Kachuk. Eventually. Why did I think I had an X-Factor connect me? What happened? What happened? I swear I had another X-Factor. Okay, boys. Well, I'm dumb. For some reason, I thought I had another X-Factor. I don't know what happened to my X-Factor connect me. I don't know if I used them for a re-roll already, but we can't do the re-roll. So we're stuck with Kachuk and Gudro, but eventually we'll do a re-roll. With that being said, let me show you guys what the team is looking like. Another team update for you guys. The first line after pulling Lil' Jizzy. This line looks insane. Marner, Matthews, and Jack Hughes. Are you kidding me? Yeah. Okay. I can deal with that. Second line. Nylander, Joe Neuendike, who I just made yet to play with, and Evgeny Kuznetsov. All right. Pretty good line there, too. Yari Curry, Sydney Crosby, and Joe Sakik. I pretty much really like this line. And then the fourth line, sorry, is David Pastronok, Connor Bedard, and Nekita Kutrov. On defense, we've got Kail McCart, paired up with Paul Coffey. We then have Eric Carlson with Nicholas Lidstrom, and then Drew Dowdy and Rasmus Dallin. And then in that, we still have Jake Audinger, and we have Shooting Boost, Sniper Forward, Offensive Defenseman, Two-Way Forward, and we are one off of Playmaking Forward. So the team's looking pretty spicy. I'm excited to try out Lil' Jizzy. I'm excited to try out Neuendike for the first time, but the team's looking pretty good, boys. I don't know. I'm pretty happy with it. Anyways, guys, this is going to be it for today's NHL24 video. If you guys did enjoy, be sure to drop a like on it. If you're new around here, make sure to hit the subscribe button down below. We are on the road to 6,000 subscribers. And if you guys want to see more NHL24 content, I mean, subscribe. They're going to be more rolling out. Anyways, guys, like I said, that is it for today's video. Thank you guys very much for watching, and I'll talk to you guys later. Peace!


and welcome to This Weekend Laumont for Friday, October 9, 2020. I'm your host, Sergio Angelis. Let's get to it. Get a free book for your four-year-old. The Colorado State Library conducts an annual statewide book giveaway to put a new book in the hands of every four-year-old child. Stop by the children's and teen services desk or the curbside delivery table at the Laumont Public Library, located at 409 Fourth Avenue. Between October 13 and 25, to pick up a free one-book Colorado picture book, books are available in English and Spanish, and the giveaway will continue while supplies last. Activists and allies, a virtual panel discussion. Join this lively conversation between two senior university professors at 7.30 PM on Thursday, October 15. They will compare notes on their journeys of activism, helping others make sense of the long history of slavery and segregation in the US. This program will be livestreamed on the museum's Facebook page, on LaumontPublicMedia.org, and on local Comcast channel 880. Volunteer for police review panel. The city manager of the city of Laumont is accepting applications for five volunteer positions on the Laumont Police Department Professional Standards Review Panel. This group reviews highly confidential information, including internal investigations and allegations of misconduct and makes findings to the chief of police. Panel members must be able to read and comprehend large investigations and must be registered to vote in the city of Laumont. Applicants with misdemeanor convictions in the past five years or any felony conviction will not be considered. Current employees of any law enforcement agency, as well as immediate family members of Laumont Police Department employees, are not eligible. Please visit bit.ly.com or call<PHONE_NUMBER> for an application and more information. The application deadline is 5 PM on Friday, October 23.  Compost. After you're finished playing in the leaves, bag them up for a collection instead of putting them in the trash can. Curbside leaf collection begins November 2, and collected leaves are composted. Visit bit.ly.com or call<PHONE_NUMBER> to find your pick-up date. Maintain your trees and shrubs. Public sidewalks, streets, and alleys must be kept clear of low-hanging tree branches and overgrown vegetation that impede pedestrians or vehicles. There must be a minimum of 8 feet of vertical clearance over sidewalks and 15 feet of clearance over streets and alleys. Shrubs and other vegetation must be maintained so that the entire width of the sidewalk is clear, and vegetation and alleys should provide adequate access for waste collection vehicles. Please use a locally licensed tree contractor to remove larger tree limbs. You can take tree limbs and other yardways to the Waste Diversion Center at 140 Martin Street at no cost. Volunteer to make Longmont more sustainable. Do you want to contribute to Longmont sustainability and community resilience? The City of Longmont is offering volunteer opportunities to become SOLL, Sustainability Ambassadors, to provide education and perform cost-saving eco upgrades for Longmont residents. Applicants must be 18 years plus and live in Longmont. Training and health safety wear will be provided. For more details, please visit bit.ly slash LongmontSOLL or email soll at LongmontColorado.gov. That's it for this week in Longmont for Friday, October 9th. Thank you for watching and we'll catch you next week.


So, Ms. Tank. Okay, thank you. So, like I was saying, we're going to move to the next session, the program. Due to this last-minute issue, we're going to change the session and we're going to start with the scholarship and capacity building program session. So, for that, I would first would like to invite, as you know, I send you, sorry for the tons of emails I have been sending you over the last weeks, but there was one in which I was requesting those of you who wanted to show some of your activities you were doing in your countries and present here into the AGM. So, there were four brave people that accepted to do that. So, I would like to invite to the stage to Daniel, Nikita, Varda and Cristina now. So, if you can just come up to the stage, please. And also, if it's possible now to have the headsets. Okay, good. So, just as a little intro... Oh, well, one thing before starting that, as Hanson and Ananda said, please feel free to use the... For those of you who asked Twitter to use the hashtag NPE AGM 2018, I know I'm very handsome, but I don't want to see my picture there for the whole weekend. So, just try to twist them on first things, because when I went to the back of the room, I was a little bit scared. Just look at me smelling. It was kind of wet. So, please, twist. Yeah, yeah, yeah, just sitting here and also Cristina, yeah. So, as I was saying, you know, we in NPE two years ago, we were thinking about how we could really do one of the main goals that we have in the DNA of our organization, which was basically helping you to build capacity, to develop your skills in order to support better the patients in your own countries. As you know, in our position as a European umbrella, sometimes it's difficult to have a direct impact on patients. We were sometimes working in fields such as access, research and development, which certainly has an impact for the broader community, but we are not so many in touch. And you are the ones who really in your countries are doing all a great work of supporting, informing, educating patients and all these kinds of stuff. And for this reason, in 2016, we decided to develop this capacity building program, which mainly two aims. The first of them, as I said, was giving you some training on those topics that you find useful or beneficial for the myeloma community. And at the same time, even though our budget is limited, giving you a little economical support, so in these two years, we have been able to deliver above 20 grants, more than 60,000 euros. And you have been running some wonderful programs and activities in your own countries, which I think is great. And we're going to keep on doing that. But before, what we wanted to do today is to invite you, and in this case, these four brave advocates, to present the work they have been doing in their own countries to serve as an example, as a spirit exchange. And also, just to let you know that this year we have opened again this program, we are providing 15 grants for those of you who have any kind of program that probably would like to run in your countries. I know some of you have already been granted. I know, Lisa, you have been running this wonderful initiative on the clinical trial search registry in Germany. Lucica, you were holding this panel with multiple stakeholders in Romania. So this is open for you. And just please feel free to apply for a grant and for the training because we will be happy to support you in any manner that we can. And being said that, I'm going to give the floor to these four for friends and advocates to explain what they have been doing in the countries. So first of all, I would like to introduce Daniel, who is going to talk as about the project, the name of the game that they have been running in the Amelie Dosis Israel Organization. So please, the floor is yours. Hello everybody, I already said my name is Daniel Dreamer and I'm the chair of the Amelie Dosis Israel Association. I myself also am an Amelie Dosis patient for nine years. We represent about 80 patients of Amelie Dosis, both AL and familiar Amelie Dosis in Israel.  And I will start with a kind of metaphor. So this word describes what we need in order to go on with supporting the Amelie Dosis patients community back in Israel. So now let's make a little game. Let's imagine that our city is attacked by the enemy and bombed. It's not nice, but we as a government, what would be our priorities dealing with this situation? And now it's randomly arranged, maybe run workshops for mental support of the population, organize meetings and give speeches about the patriotic reason to endure the harsh situation, teach the population to hide from bombs and so on and so forth, stop the bombs falling. And this is really randomly arranged. It's not the right prioritizing way to do it. Going back to Amelie Dosis and our association, I would say that the enemy is Amelie Dosis. The bombs falling in my opinion are faulty diagnostic treatment of the disease. So the right priority should be stops the bombs falling. What I mean is we have to do the right diagnostic of the disease, which is lacking for now. It's not so good. And how do we do it? By enhancing knowledge and test facilities for physicians. And this is our ongoing activity in the past and the present and in the future too. Teach the population to hide from bombs means this patient will be proactive in dealing with the disease. Somebody talked about it a couple of minutes ago. It means that because it's such a rare disease, if people are not caring about themselves and keeping track of all their tests and asking the right question, it is not good. I mean, it's not enough a good doctor, but the patient should be his own advocate. We're running workshops for mental support of the organization of the patients. Trying to have as many drugs for Amelie Dosis paid by the medical insurance. Teach patients to see the half full glass instead of the half empty glass, which is very important to be optimistic and not have only bad thoughts. One of the surveys made in 2015 showed that on 443 patients showed that 230 hematologists and 220 cardiologists missed the diagnosis. So each patient had to go through at least four MDs to get the right diagnosis, which is a very bad statistic. So let's go to the basic assumption of our organization. The rare disease is the fewer physicians who can diagnose it or treat it. It's a matter of practice and if you don't see a large number of patients really a physician doesn't have an exact procedure how to deal with every patient because every patient is different from another patient. Second rule is to have a good relation with an excellent center wherever it is in the world, like in Italy, England or USA. We keep in touch with most of the physicians in MDs dealing with the disease in Israel trying to help them to give them more knowledge about the disease and trying to have the most veteran position which is the best to teach the younger ones. Trying to also to connect the physicians in Israel to excellent centers where they have much more experience like the center in Italy which sees about two or three thousand patients a year and in Israel the most experienced center maybe has 20 or 30 patients per year. And try to create a forum of MDs that will talk together like every month or two and discuss only about the disease. The main thing we think about was the saying of an ancient Jewish rabbi that said that if I'm not for myself then who will be for me? So actually if the patient doesn't help himself nobody will help him. It's the most important motto or sentence about the amyloidosis patients. I think that everyone, at least one member or two members of the organization should learn the disease in depth and to be an advisor for all other patients whoever calls and give him the right advice but it doesn't mean that the patients themselves don't have to learn about as much as possible about the disease. They have to keep track of all the results because doctors don't have the time to track. I mean they are tracking the results but not looking at them so patients should have to see all the results and see if the numbers and the critical tests are going up or down and talking to the MDs. Also patients have to be very assertive in meetings with MDs and ask the right questions and even argue if necessary. And be in touch with an excellent center. That's it. I'll try to do it as short as possible. We could talk about it much more time. But thank you. Thanks, Daniel. So for the next one I would like to invite to the floor to Cristina Modic from LNL from the Slovenian group and she's going to talk to us about these rehabilitation programs in Slovenia. Thank you. Hello again. As I told you I'm representing Slovenian lymphoma and leukemia patient association where we also connecting myeloma patients. I'd like to present to you our new huge running pilot program comprehensive rehabilitation for blood cancer patients. But first of all let's start to say about the project starting point. Blood cancer patients have for sure significant need for the comprehensive rehabilitation during and after treatment. And patients in Slovenia have poor accessibility to comprehensive rehabilitation and systematic organized rehabilitation. It's quite a problem in our country. And we know that significant need of patients that is significant need of patients for physical, nutrition and psychological support and counseling. And in May 2017 we got a huge opportunity because our Ministry of Health published a public tender for the period of 2017 to 2019 on the field of the rehabilitation comprehensive care and then we apply with our pilot program and we won. For two years we want 100,000 euros for this program and we were really very happy because we can start it. What are the benefits of this program for the patients? The systematically organized comprehensive care and rehabilitation prevents or successfully eliminates additional problems caused by aggressive treatment and significantly increase the patient's quality of life during and after treatment. What is very important not just after treatment but also during treatment as well as aids them in successfully returning to their social and working environment. Who are the program implementers? The program leader is our association. Our huge partner is association of hematologists of Slovenia. We prepare the pilot program together and also we work on this program now and running program together. Our direct implementers of the program are hematologists, also some oncologists, nurses, physiotherapists, kinesiologists, clinical dietician, clinical psychologist, social worker, and of course our lay advisors. The program as I said is co-financed by the Ministry of Health and by the pharma companies and as you will see further on we are starting with huge campaign awareness campaign in Slovenia and we will ask also our public to help us with this pilot program. Who can join the program? The program can join patients with certain types of blood cancer who are in the process of active treatment. Those are patients with myeloma, lymphoma, CLL and AML and patients after the bone marrow transplantation. Each patient stays in the program for six months and right now from October till now we have 27 patients involved in the program and 13 of those are patients with myeloma. Every Monday two new patients joined the program and of course one or two left the program because they finished the program. What are the program goals? One goal is empowerment of 120 patients in the period of two years. Better outcome of the treatment of those patients, faster recovery, better quality of life of the patients and making it easier to return to the social and working environment. And of course less sick lives due to the treatment consequences when they get back to the work. The program consists three modules. One is physical module. It means that patients go and have a regular physical group exercising with physiotherapists or kinesiologists. It depends on the patient, from patient to patient. They have also exercise at home every day and make and record everything. Then we have nutrition module. It means assessment of the nutritional status of each patient and patient get a nutrition plan with ongoing monitoring. So everything is monitoring from time to time. And then we have a psychosocial module. It means assessment of psychosocial status. Patients have tests and conversation with clinical psychologist and then patient join support group. We also have some other forums of counseling for patients to support all three modules. It means that we have regular monthly group consultation with experts, some kind of workshops on the topic of the nutrition, physical activities, psychosocial status. And of course also the management of the problems which are caused by treatment or recovery. And then patients can get also individual consultations with experts if they need it. And consultation with our program coordinator who is my colleague Brina. I can say lead this program and coordinate this program and if you will have any questions you can give it to me and also to my colleague Brina. What are all activities for one patient? They have to be very active. They have to follow the instruction of the clinical dietician regarding diet. They have to visit physical group exercise once a week and of course they have to exercise at home every day. They have to visit workshops with experts and then they have to visit a group consultation with a psychologist once a month. And what is very important they have to keep a daily and record all the observations. You can see our daily here on the picture and on the picture you can see a small group of our patients when they have their exercising. If necessary they make, as I said, they make individual consultation with experts and they keep in regular contact with our coordinator Brina. To make some conclusions, comprehensive rehabilitation for patients with blast cancer is extremely needed and has a great value to treatment outcomes and patients quality of life. Comprehensive rehabilitation is currently available only in Slovenia, I mean, is available only for limited number of patients with specific blood cancer types under the pilot program and we expect that the results of the pilot program will demonstrate the importance and need of rehabilitation for the patients and for the treatment outcome and quality of life of the patients and quicker return to work environment. And when the pilot program finished we will strive for availability of this program also for all patients with blood cancer in the whole Slovenia and finally also for all patients with cancer in Slovenia. And as I told you, we would like to support our pilot program to be effective and to give really good results and we need some more money. So in May we are starting with huge awareness campaign and fundraising campaign in Slovenia back to life and we are asking our public, Slovenian public to help patients with blood cancers back to life and we will ask them to give five euro for this program and we are sure that we will have success and we will reach all of our goals of our program. This is working, this is not a final version but I can show it with you and this is a man who would like to have his life back with his family and I think that we will have a good success also with the campaign and with the program. So thank you very much. Okay, so our next speaker is going to be Barda, if I'm correct. She's going to present us about this program I think you apply for the capacity building program and this is one of your programs so it's about the responsible patient so Barda, you are welcome to have the floor. Thank you. If I'm at second. Yeah, I mean the template is the same but I think this is yours. Oh, sorry, this is, no, no, sorry. This is Nikita, sorry. They were both using the same slide. So Nikita, I give you the floor. Barda, you want to present that. Yes, but I think that we are very close and empowering at least is a key word of next presentation. So my experience in hematology is very impressive for my life and I'm excited of its success and problems. And I found that the main problem is responsibility of the patient. There is no other way to empower patients than to give them understanding that they have to do their, not only their life by themselves but also their medical records. They have to take in their hands medical records and there is no reason to sacrifice medical doctor mission. It's simple human behavior to use reasonable intellectual algorithm as it's name now to fulfill case history and we have to inspire person to be partner in this work. In Russia during my practice we have dramatic period of losing paper medical records and to enter in dramatic period of mixed documentation both in paper and in electron. It make situation much more difficult and now I told you that we have lawyer with me. Doctors doesn't want to write to fulfill medical records because they afraid to be, to have problem with law because official organization, our administration is looking for process against doctor to make society, to ensure society that they are very caring about them and that they are very strong, strongly defend their life against the doctors. It's very difficult and painful situation. So what we have to do now we have to use new technologies and it's certainly, I don't remember what is there, it's smartphone.  It's the main instrument of life. So we think that via this instrument we have to teach patients to participate in their medical history. And this, the problem is how to involve patients and how to involve doctors who, as I told you, are afraid to write. They prefer to speak with patients through telephone and they imagine that these words disappeared in air. But it's not true again. So we started with most perspective patient as we thought with diabetic patient and with pregnant women. This group are younger and they expect to be interested in monitoring their vital sign of disease. But it's also not very simple. So I think that though we have not very successful history with patients of my hospital of National Center of Hematology, that now we should return to them and try to inspire serious but already using computer equipment, patient with myeloma to follow and monitoring their own vital signs which is protein level and immunochemistry of serum and urine. It's very important and clear signs and misdiagnostic which we discuss is the reason it happens because doctors not recognize the high level of protein in urine as reason for immunochemistry. In Russia still we have the only high level laboratory in our center. It all happened in my eyes. Then great scientist, I believe, the person who opened the first cancer-specific protein, alfalfeta protein, he created for us the technique of immunochemistry concentration of myeloma-specific proteins. And now it's work but it's the only laboratory in the country. So the problem is how to involve patients. I think that it's one of the main problem of all patient organization. It's the instrument we can give to any person because to write text is the most human behavior in the world. We have one independent journalist in Russia, Dmitry Byakov. He is very aggressive for government and very reactive to events but he also created eternal phrase, I think. He wrote that God created human being to have something to read.  All the text in the world except DNA written by human being. And God is interesting. So I think that now our main goal is to present to God our medical records. Please help us. So I'll be happy to present to send you all my text but you see that I told you practically all what have been written here. And this instrument also have, you see about, I think that I didn't, this is our classic picture we did on Excel 20 years ago and it's the still picture how we imagine modern case history should be. So we, as Google map, we should have all data integrated in one vision and doctor and patient should recognize situation by recognizing of picture, image of disease. So I'll send you the modern picture. They are not so beautiful but they have automatic monitoring of blood, sugar of pulse of different simple signs of health but we have to add our blood patient monitoring events as well. So please do it for your patients, for your people, for your friends and for yourself. You have to understand that now the only creature who will take care about your all life long medical history is you. I can tell that such behavior possible because in my experience there is great doctors who takes care of their patient during all their life, during all their disease. It was possible in previous stage of human culture but now it became much more complex, much more data and each person have to do it by himself. Good luck. Thank you. Thank you very much, Nikita. And last but not least, now I'm correct, I'm inviting to the floor to Vada who is talking about the worst foreign power in the patient. Hi everybody, many familiar faces and I feel like we are really one big family. Just to give you a little bit introduction about amen. Amen is the only Mi'aloma organization in Israel which established in 2005. We are doing a lot of activities for our patients and one area that we are covering is support groups for our patients which we hold in three different geographical areas every month. In these groups they meet each other, they mingle with each other and they have some professionally lecture like from a doctor or other related area. And we have also the hotline which is activated by our patients. And we understood over the years that there is a need for a special workshop, especially for new patients for patients that are going to relapse. And we decided that we will establish a special workshop for them because we have limited budget. We identify some members from our patients which went through the facilitators, as I said, there are many staff members that went through a seminar. And this seminar was based on the WCC model. It's an integrative intervention model that talks about the family, medical approach, the practice approach and the approach developed by the wellness community. We established a special workshop which is for patients and their caregivers. Also caregivers are coming for this workshop. We have about a group, each seminar is for about 14 to 16 people. It's a very small group. They are going through six sessions, three hours every session. We publish the publication of this workshop through our Facebook group, through a website, through emails. And right now, up to now, we maintain the two seminars and the third one we starting this month. The main idea of this program is to provide our Mialoma patients and their families tools to cope with this chronic disease, to improve their quality of life and to teach them how to manage the disease. When I talk about how to manage the disease, our former head of board of a man, she always said, I want to manage my disease, that the disease is not managing my life. And this is the point. We teach our patients how to read the blood test and all other tests. We teach them how to ask the right questions from the physician and how to get all the information that they need because we believe that patients that control their disease, that they take, they manage their disease, they feel much better because they feel they can control the situation. The second topic that we are going over in this seminar is all the topic of the side effects. As we know, there are many side effects and not always the doctor has the time to go with the patient about all the side effects and we talk about the area, we talk about neuropathia, thrombosis, rash, fatigue, anemia and all these side effects that you know about them. And we think it's very important that somebody will tell them what they are going to go through and to talk with experienced people that went over it already. All the topic of interpersonal relationship, the connection, we believe that there is a connection between the body and the soul and that the patients need a lot of support from the family and the surrounding, along the disease. And the sense of feeling belonging is something that don't let them feel lonely and we believe that all the activities that they should continue alongside the disease. Another topic is the relationship with the workforce. This topic is relevant for people which are in their 30s, 40s, 50s and it's a very important topic. In Israel we have an NGO which is called Kergiverse and one of the missions is to go to different workplaces and talk with the people there and build a special program not only for the patients but also for the caregivers. We believe that our patients have need to make their boss a partner for their disease in order to be able to build a new routine and to continue to work which is very important. The other topic is all the relationship with the kids, how to tell the kids, how to deal with their parents, how to deal with your body which is another topic that this seminar is dealing with. And all the area of nutrition, sport, hobbies and other activities that the patient should do in order to go back to kind of routine. Now, the outcomes. We already had about, I guess, 30 people that went through this seminar and what they told us that there is a significant change in their mental state once they began to take control of their disease and they learned how to cope with this chronic situation and they helped themselves to go to a new routine they felt much better. And also, they learned a lot from each other and they got support to get more support from their family and not to be lonely with the disease. The next actions, we are going to hold like three seminars each year in three, in different geographical areas. We want to make meetings of those that graduated from this program to meet with them like once in a quarter. We understand today that we have to hold separate meeting for caregivers and this is our next mission to have some separate seminars for caregivers. We need to train more facilitators and these facilitators, we believe, have to be myeloma patients. And that's what we do right now. We try to identify more volunteers to lead these and other activities. Just some pictures. Here you see Shlomit. Shlomit is one of our facilitators. And Shoshi, she is also from our board. And these two people after the session made themselves new shirts. As you see multiple myeloma, love, we believe, faith, courage, all these words. Thanks. Thank you very much, Rada. Thank you very much, all of you. So before we are proceeding with this open discussion and this dialogue, I would like to ask you the audience, if you have any questions or something that you'd like to share. Yes, this might be the moment. I have a question for you. What did you decide to split between myeloma patients and caregivers? What was the need to do two different meetings? Or I didn't understand well. Yeah, you understood correctly. In this empowerment seminar, we invite also caregivers, but we understood that we need to do separate meetings. Another doesn't connect to this seminar for caregivers, because caregivers cannot talk about all these issues, all the issues next to the patients and they believe that they need different sessions. So we are going. Yeah.  They are trying to save. They feel that they don't see themselves. They don't see their own difficulties. And when they feel it, they don't dare to put it on the table. So we realize that if we will give them a special seminar for them, they will be able to speak to open everything and to put on the table all their difficulties. It's not instead this seminar. It's something additional seminar that we are trying to establish right now. Is there any other question? Yeah. It was really wonderful to hear the presentations and I'm very happy to see that so much is going on when it comes to cancer rehabilitation in the blood field because there is a huge need. And I was curious, Cristina, about your experience because you mixed several diagnoses, some that might be chronicle and some that are curable. And what is your experience with mixing that? Because we had a training program in Norway for younger blood cancer patients where we had all our diagnosis together and we saw that it was difficult for those with multiple maloma who had a shorter life-horizont to be together with those who are struggling with severe side effects, for instance, from GDHD from heavy treatment because it was two different worlds. What's your experience? Maybe my colleague Brina will later on talk more about it because she is all the time in the connection with the patients. But now, in the first six months, we had mostly chronicle patients. So they have quite similar needs. But now, I think, we have two young patients also with Hodgkin lymphoma and it's, yeah, it's different. But we'll see what will happen during this pilot program and we are recording all our outcomes and we'll see. Maybe, I don't know, Brina, do you have some different, some experience? It's, you know, it's first six months, so we have mostly patients with maloma chronicle lymphocytic leukemia and lymphoma. Yeah, the younger one just entered the program, so we don't have so much experience yet, but we will see. I think that maybe in the future we could split, but now it's the same program for different diagnosis. Any more questions in the room? Oh, yeah. Well, thank you all for your interesting presentation. I have a question for both Israeli and Asian patient groups. Just curious, do you work also together as both patient groups, for example, in meetings in Israel for patients? I think the simple answer is no. Sorry to say that, but no. No, it's just curious. The amyloidosis organization just was established like last year, no? No. A year ago. November 2016. Yeah, okay, a year ago. We talk about it, not yet. We didn't any collaboration yet, but we will do. Okay, thank you. Yeah, Sofia also there. Just to add that thanks to the weather, we'll have a very nice cocktail reception in the terrace. This might be the beginning of a new friendship. Christine, I think your program is fabulous. And it's one of the issues that our newborn association is dealing with. It's the back to life problem. So I'm really thrilled with everything that you have presented. And I didn't really get, if this back to life campaign, fundraising campaign, you have already done it, or you're preparing it for fundraising? We will start in May. In May? Yes, in the middle of May. Can you explain a little more about how you're going to address, who are you going to address, this fundraising campaign, which is amazing because you're not addressing for a certain disease, just going to address for back to life in cancer, which is something really amazing. We would like to aware how important is rehabilitation for the patients with blood cancer, but not so with blood cancer for all patients, because me, you, everybody will need rehabilitation in our life. So we will ask people to help us with this pilot program to support cancer patients in this program, because together we will do for all of us a lot, because if this pilot program will be successful, will show, will show good results, then it will be applicable, you know, in other cancers, in other chronic diseases. So this is the goal. And our agency is preparing a very good communication campaign. So we'll have very focused communication, very, you know, touchable communication. And we are sure that almost every Slovene will donate five euros for this program. Yes, yes, general public campaign. Yes, from 18 years till 99. So we are focused to all. What are the expectations? Now we get from the Ministry of Health, we get 110,000 euros, and we need additional 50,000 for two years. So we are sure that we'll succeed. Good. Is there another question there, Tony? I have another question, because this program is so wonderful, Christina, that you're telling us about. But I was wondering in your country or in the other countries who are represented on stage, what kind of focus is it on cancer rehabilitation from the public that's offered to cancer patients? Is it so that there is none? So it's up to patient organization to arrange it as you're doing, or how is it? How does it look? As I told, the problem in Slovenia is that we don't have systematically organized rehabilitation for blood cancer patients. And we started together with the Society of Hematologists of Slovenia, this pilot program, to show that it's important. It's a big need. So we started, yes. I don't know, how is Young in your country part of the treatment program? Well, we have been working together with people, different nurses and different doctors and researchers who are involved with cancer rehabilitation because in Norway there is a lot of offer when it comes to rehabilitation. But when it comes to cancer rehabilitation, it's a rather new field. And there really isn't very much specific for blood cancer patients. But what we have tried to do is to make a scoring system to determine which blood cancer patient needs rehabilitation because so far in Norway it's been very random who actually gets help and who doesn't.  I didn't know, I thought it was this for older people with hip problems. So that means that the world is out there but there is no systematic. So we try to bring systematic and there is no research going on at the largest hospital in Oslo. And also we hope that this way, this tool to sort of determine who needs rehabilitation will put a pressure on the governments to say that we really need to build up, we need special care for these patients because the treatment is so heavy and it takes such a long time for people to return back to normal life. And also you could save money. A lot of studies have shown giving people rehabilitation because they come earlier to work and people who are old who doesn't go back to work they could be more self-sufficient back home so they don't need that much public help anymore. Yes. All right.  To you, Christina, sorry. So how did you choose the patients engaged in this pilot study? Was that the hematologists? Yes, the hematologists say they chose the patients. This one is the right one. And then the patient come every Monday we have these consultations for the patients and then patient come has we need two hours for one patient to measure his physical ability or how to say then measure their nutritionist and the others. And then when we have all the tests and all the records our hematologists say yes, he's for the program or no, he's, for example, too bad to go to exercising. But in the future after the pilot ended and you are going to implement it in a further, in a broader way how are you going to engage the patients? What's your idea? Our idea is that it's organized systematically like a Tune essay. You know that every doctor always through the doctors. Yes, always through the doctors. Thank you. The Roman. Again, Christina. It will be not a question. It will be that confirmation. I did alone what you propose for the patient. And my doctor, I am so happy so this necessity to force a patient to work. As you said that you have to take care about you as a first person. And I've never felt so good as now. I have my personal training. I didn't know that I am Myeloma patient maybe 10 years, 15 years ago. I wasn't so happy with my body as it is now. I can lift 100 kilograms. I have my broken back bones and Myeloma in my bones in my hips, but I can manage it. So this is the right information, I think. We accept this confirmation. Follow you. Maybe Brena told you two patients are finished. How successful was the program? Brena, can you in few words? Because Brena is really all the time in the contact with patients, with experts. The two patients that already finished they showed an increase in hand griff in every measurable numbers from a physiiatric test and they really felt better. They said they had better quality of life and also the psychological tests were better and one of the patients finished the program as he finished the treatment but still got better results. So it was really it really showed that the program is effective. And everything is evident based. We measured everything, so it's not just I feel good. We really wanted to have this test in the beginning and in the end, so we can really show the difference and the founders that it's really effective. The comparison from the beginning and at the end. Good. Oh yeah, Biba. I'm sorry for Anna, because she's massive. Anna, yeah. My question is congratulations for all that you're doing. It's very hard and we know that. But my question is we all know that the psychosocial support is very important in a cure but are you struggling, each of you in your country, with the access to new treatments because we can support we can give psychosocial support to the patient but the first thing is treatment. In Macedonia, we are struggling with the new treatment access to treatments. We are working on psychosocial support but my question is how you manage that in your countries? I think it's a different topic that the MP plans to talk about it later but we didn't talk here about access to drugs because it's a big it's another area of all but we talk about all the other things that we can do next or besides the treatment itself. I think everybody has a problem in Slovenia and we're doing a lot of activities I know that we in Israel plan to show you what we do as far as access to treatment but it will be a thing only tomorrow. I can say for Slovenia we don't have any problems till now with the access to new treatments we are up to date and that's why we can care such projects we are upgrading care comprehensive care rehabilitation because we don't have problems with access to treatment so we are happy and hopefully it will stay like this for a long time. About Russia we are not happy but I can say the story of access for new treatment because my chief was director of the national center and leader of the hematology when Glyvek arrives you know it's the first drug for new treatment and he accepted from the company drug for 150 patients and then company say well it's time to pay and my chief called to minister of health say hey brother you have problem you can't execute these people you should kill them to put them in prison it's not enough treatment it's the death so please take care and minister of health it was such person it was first minister of health not physician in Russia he was good enough to accept this proposal and next step was with factor 8 for hemophilia patients it was very expensive as well treatment and also my chief send patients to parliament and say they will climb on their broken legs to you if you are not support the program and now we have dramatic change because government in all disgusting problem of our country paying 2 billion dollars for program of new innovative drugs and all active patients able to get it it's very strange and it's story of single patient single person who forced it and then groups of course pharmacy supported and patient organization it's great story are there any more questions someone wants to ask something else I will then make one maybe first to you but it's open to everyone first of all I am quite amazed about the great activities you are developing I know some of you are also working and very good activities and I was wondering from our position the role of MP what do you think are the most challenging needs that the myeloma and the amyloidosis community has and how do you think an umbrella like MP can support and help you to run programs and activities to solve these some food for thought if someone from the audience wants to participate maybe from the amyloidosis point of view is mainly raising the enhancement of the knowledge of the MDs it's a problem I mean we are trying to do it all the time but something maybe you know they are the same doctors the doctors dealing with amyloidosis and with myeloma but myeloma is not so rare like amyloidosis and it's maybe easier to diagnose than amyloidosis so here is something which the big organization like MP can help us in achieving this goal in that sense I take the chance to inform all of you on Sunday there will be the General Assembly which is for full members only but in parallel we are running a session on amyloidosis and also we are having a panel to see how MP can help the amyloidosis community in some kind of way as you many of you know amyloidosis and myeloma are quite well linked so I would just propose especially for those members who are attending maybe you can split between the General Assembly and the amyloidosis session because this is something that also has an impact for myeloma patients and in that sense it will be great to show what we are planning to do for MP but also to hear from you to see exactly because we are quite new in the field and one more thing is that actually 50% of the myeloma patients will be sooner or later amyloidosis so we have a lot of common things that's it I think that Rabbi was right if you are not for yourself nobody can help you and our patient is awaked people they understand that their life is very expensive but all of them practically in reality wants to live you know it was in the beginning of Perestroika it was a lot of more freedom and discussion discussion about health doctors help murdering euthanasia and journalists came to our institute and say hey we have freedom for you to die let's give it to your patient and I say well go to our animation and ask them they all want to inspire once more it's the human being there is no people they want to stop respiration in reality it's so done so I think that we have to help people to continue it's our mission any final remark before closing the session Hans just want to make one comment on what you said to raise awareness also to the medical doctors about the relation between and myeloma well I must say we are in close contact especially since last year with the European medical doctor group who are focused on myeloma I mentioned in my introduction that has also a congress at the moment but in Torino and they have also quite similar program like we have a myeloma program and also an AL amelodosis program and they have there we had preparing discussion also with them just a day before our meeting and in 2020 they will have their next meeting and we discussed if we could combine things more so we are developing more and more pretty close connections with the leading medical doctors in Europe at the moment also on the AL amelodosis side may I have comment foreign training was in M.D. Anderson cancer center in United States in 1989 I jumped there and they found that they have such size of case history enormous I expected that I find something unbelievable but there was only accounts money money money about how many but I found the real concentration of interesting and very inspiring information it was letters of treatment doctor to those who primary doctors who sent the patient the problem that there was slightly adhesive because they were very sweet and it was difficult to open it but information was very precisely strictly described and the situation of patient was presented in very interesting and complex way so I think that it's very important channel from specialists who treat patient they have to return them to their primary doctor with thanks and with respect to their action that they sent them and to ensure that if they will do the same they will save life and it's their responsibility that they did it so let's inspire specialists to return their success and to share their success with primary doctors I think that it's important way okay so it seems that we have reached the final of the session I would really like to thank Daniel, Vada, Nikita and Christina for your contributions now we're going to have a coffee break which is going to be set up the outside of the room just to give you an update we are still trying I was not just looking on Facebook and Twitter we're just communicating with my colleague Anna because we're still holding for the doctor to see whether she might be available for the next session or not we'll probably extend the coffee break for half an hour instead of 50 minutes if it's possible to have the session we will let you know so thank you very much, thanks


What's up Greg? It's Chris and I'm back with another episode of Oh My God Why Do People Have Such Short Attention Spans. It is up everybody. This is Chris from the Rewired Soul where we talk about the problem but focus on the solution and if you're new to my channel, my channel ain't about beef. All I want is imbues. Original content's old news.  My channel is all about mental health and what I try to do here is take different topics from the YouTube community and try to teach you how to improve your mental and emotional well-being. And one of those things is not skimming and increasing your attention span. But anyways, if you're into that kind of stuff, make sure you subscribe and ring that notification bell. A little backstory. A little backstory.  The Greg army, you beautiful, you beautiful army. They came at me horde. All right, so stay tuned to the end of this video which some of you Gregs will not do. Anyway, stay tuned because I am going to talk about some very important mental health stuff. But first, I want to react to some of the Gregs comments.  You are. And I will never subsubscribe to you. Well, I will never subsubscribe to you neither. Okay, listen dude, as a Greg myself, you can't just go and diss him like that. He is a fast growing channel because have you noticed how many followers he got within a short amount of time?  Well, I do know that Danny Gonzalez will be better than I will ever be, but I don't know. My head's my head's not stuck up there. This, this is one of my favorite ones. Like, this, this Amanda, this Amanda Greg. She rapid fired these like all within a minute. All right. So the first one says, okay, he's not lying about anything. He's just kidding. Okay. Cool. It dude. Next. Don't ever quote Greg. Okay. I'm not even sure what Amanda's referencing right there. He has more subs than you. So you can stop. He's trying to be funny. So don't take it too seriously. And you aren't, you have less subs than him. I'm not even going to reply to that one. I'm going to bring in my buddy Danny Gonzalez to talk to you about that. Yeah, obviously that's what I'm doing. I wouldn't be making a video about this guy if he wasn't so popular. I'm trying to get subscribers. That's what you do on YouTube. Everybody on YouTube is just trying to get subscribers. This was another good one because there's like different shades. Look at all these middle fingers. Do you see that? And it says, not all that he say, don't look that up. Okay. But then they had to recombent again. And it says, so now, now here's the best one because there were so many edited comments on this video. So this Greg says, one, this isn't funny. Unlike Danny's videos. Very true, mindless, awful, and not funny.  I'm 33. Thank you very much. Three, nobody watches your videos and you're getting views off his popularity. Trying to get some views by reacting to the most poppin person on YouTube for the past two months. You. Yeah, obviously that's what I'm doing. I wouldn't be making a video about this guy if he wasn't so popular. Yep. Edit. Okay. So I learned a valuable lesson today. The rewired soul is a badass and don't disrespect him.  Here's another good one. Dude, get a real job moments later. Sorry, I didn't watch the whole video. My bad. You always gotta apologize. When you screw up, you gotta apologize. I respect that. And last but not least, my favorite comment of them all. Fellow Gregs, please stop embarrassing the rest of us in front of Chris. Y'all are acting like Craig's there. I said it.  It was so fun. And what's funny is to what's really funny is I know for a fact, if you guys want to have fun with me, look down in the comments and let's see how many more Gregs did not make it to this point in the video to see what I'm talking about. They just looked at the title and freaked out down in the comments below. So anyways, I did want to talk about attention spans and skimming and causing our own problems, right? So fun fact about me and Tristan, the beautiful Tristan sitting right over there and she gonna test this. I am a skimmer. I am a skimmer.  All right? Like, and I have nobody else to blame but me. I have nobody else to blame but me. And this can be an issue. This can be an issue when we're talking about signing contracts or making arrangements or doing things at work when we skim things, we miss things, right? And this is something that I'm constantly working on. This is something where mindfulness really comes in and I have to slow down. But I cannot tell you. I cannot tell you how many times I'm reading a comment or something like that or watching a video on YouTube and I'm about to leave a comment and Tristan has to stop me and says, did you finish the whole thing? Read the entire thing before you comment because I am about to turn into one of these people who replies before I even see what this entire thing's about. So she does a great job. So I guess what I'm saying is that all of you need to Tristan in your life. Are you taking pictures of the cat? But it's really interesting to me too because personally, when I was working on a lot of my anger issues and I was kind of like taking inventory of everything going on with me, I noticed that one of my biggest issues that I had with people was people talking down to me like in a condescending way or people treating me like I'm stupid. So like, by the way, that's all me. That's all in my head and a lot of times like people were just talking to me normally and I took it the wrong way. So by the way, do you have an issue with that? Because we need to start working on your mental filter. But anyways, if that's like an issue I have, if that's a problem I have, I need to slow down and not put myself in a position to look dumb, right? Because here's the thing, I hate apologizing. I absolutely hate apologizing. So one thing that I try to do is I try to do less dumb things so I don't got to apologize for them. You know what I mean? But anyways, like this is something that I've talked to you guys about quite a bit and it's about these snap judgments, right? Judging things based on thumbnails, judging things based on titles. I had so many people, like old subscribers or people, I don't know, just coming by my channel and they like just assume, they assume things based on my title, based on my thumbnail, right?  But it's crazy because they will try to tell me, they will try to tell me their full opinion about me and they haven't even watched the video to see what it's about. I actually had a comment the other day on my Eugenia Cooney video and this young woman posted like a block of text and I'm like, whoa, I'm like, I actually discussed this in the video and she's like, oh my bad, I just have something saved that I copy and paste on anybody who makes a Eugenia Cooney video. Like you guys, don't do that. And here's the thing, I hate that. Like don't copy and text, don't copy and paste, just don't. Like copy and paste, like it helps, but I'm saying like mass messages and things like that. Like I know that sometimes when I reply to comments, like I say similar things, but that is me. That is 100% me. I never want to do that automated thing because stuff like that happens. I will be honest with you, sometimes if you guys have a really long comment, I do skim it a little. It's something I'm trying to work on, but you guys are so amazing and you all comment so much. It's hard to keep up with all of them. So bear with me a little bit. All right, just bear with me just a little bit. But anyways, anyways, Danny Gonzalez, he is an amazing man. But Danny, if you're watching this, you got to get those Greggs in check, baby. You got to get them in check. All right, but let me hear from all of you. Let me hear from all of you down in the comments. Are you like me? Do you struggle with skimming things? Do you make these snap judgments and then kind of feel a little silly afterwards? Like some of our Gregg friends. Let me know down in the comments below. All right, but anyways, that's all I got for you with this video. If you liked this video, please give it a thumbs up. If you're new, make sure you subscribe and ring that notification bell because I make a ton of videos. Hey, a huge thank you to everybody who's supporting the channel over on Patreon. You are all amazing. And by the way, right now over in the merch store, you can get one of these beautiful shirts as well as the other shirts that Tristan designed and for 10% off, use the code Solution. There's going to be a link down in the description and in the pinned comments. All right. Thanks so much for watching. Quit skimming and I'll see you next time.


This paper proposes a novel approach for predicting the number of positive and hospitalised cases due to Covid-19. It uses a multi-scale graph neural network to integrate population mobility data with fine scale geographic zones of a few thousand inhabitants. This allows it to capture the interactions between areas and accurately estimate the number of positive and hospitalised cases. Additionally, the model can be used to predict hospitalisation, which is important for healthcare planning. This article was authored by Konstantinos Skianis, Giannis Nicolenzos, Benoar Galix, and others.