All right, so while I'm loading up, let me just introduce myself with a caveat that this is going to be considerably less polished than what we've heard so far. I'm basically coming here to vet some ideas from my dissertation proposal, because I think this is going to be a wonderful place for me to do that. And I'm also looking for my, I'm a Mac person, so this is, yeah, okay, perfect. Thank you. So also just to remind you, you know, I'm now a PhD student in health policy and management, so I still focus very much on genetics, and I'm still very concerned with rare disease populations, but the focus of my research is a little bit different in that it's intended to inform the development of research ethics rules and policy. And so that's just to bear in mind. So at the end of the talk I'm going to vet some ideas and issues from my dissertation proposal, but at the beginning I want to kind of talk a little bit about how I got there, because it certainly bears some explanation. So at the moment there is a large sort of federal and non-profit focus on funding research that involves patient engagement, and this is a little bit different from cognitive engagement, which Jillian was talking about, although I like the definition of cognitive engagement a lot more. I think patient engagement is still a kind of concept of work in progress, and the largest organization that's funding work for patient-engaged research at the moment is the Patient-Centered Outcomes Research Institute, which was established by the ACA. Basically there's just very little definitional or conceptual clarity about what patient engagement is, and very little data on how and why different kinds of patients believe that they should be involved in research. So what does PCORI in particular want patients to be engaged in, and I put patients in quotation marks because it's even unclear what they mean by that. People I think is what they mean, but anybody who might at some point in their lifetime consume healthcare. But so they want patients to be involved in setting research priorities, formulating research questions, self-reporting and volunteering personal data, monitoring projects, ethical oversight, all kinds of things. If you look to the literature, obviously the concept of patient engagement is a little bit of a repackaging of earlier notions of community-based participatory research and participatory research models, and so if you interpret the literature broadly and you incorporate some of that previous literature, you'll see that there's many different arguments for why we'd want to do this, why would we want to involve patients in research more meaningfully. And so the most common argument is that it's instrumentally valuable in some way that it actually improves the research process and the outcomes of the research. There's also political arguments for doing so, that patients basically are empowered by engagement relative to powerful academic institutions and medical institutions, and then there's also arguments that they actually just derive meaning from doing it. And this, I apologize for this word, this is a bioethics word, deontological, but basically, you know, it just means that it's inherently the right thing to do irrespective of any empirical evidence. And so how did I get to think about this? So when I worked at Kennedy Krieger in the clinic, I worked in the excellent Adrenalucid Dystrophy Clinic there and became very close with a number of the patient advocacy groups through that involvement. And in 2013, a couple clinicians and a few advocacy organizations bound together and formed a nonprofit research advocacy group, which applied for funding from PCORI to be part of what they're calling PCORNet, which is essentially a giant national database for comparative effectiveness and clinical research. And the idea is really just to basically, in a nutshell, take 11 kind of hospital or practice organizations or health plans and 18 sort of patient groups with some provider and health institution buy in, put them all together in a giant database that's going to have HR data, it's going to have self-reported data, it's going to have claims data, it's going to have pre-existing registry and biobank data all in one place with kind of a social network wrapped around it. So it's a pretty ambitious endeavor and it was funded to the tune of like $93 million to be executed over 18 months. And the program's about a third the way through now. So ALD Connect, that was us. We wrote this grant and we didn't think we would get it at all and we did. So that and I left Kennedy Krieger four weeks later. So it was all a bit of a surprise. This is just to show you the grant timeline, the patient engagement initiatives that they're rolling out are being rolled out kind of contemporaneously with the actual building of the registry and the import of the data. And although it looks like it's kind of sequential, it's really all happening at once in this kind of iterative way. And so it's quite hectic. I've never seen or heard of anything like this. And it's, you know, a lot of different patient organizations with a lot of different institutional cultures and values in the mix. So just as a quick reminder, for excellent adrenal leukodystrophy specifically, there are actually numerous phenotypes and the two, I guess most clinically obvious ones are childhood cerebral disease, which occurs in less than half of the kids who are affected and less than half of the boys. And then pretty much everyone by the end of their life will have developed a progressive spasticity, which is more like HSP, which doesn't come with white matter brain involvement usually. And so this population is actually not one population. That's what became apparent immediately after we won the grant was that there's many different ways people wanted us to spend this money. And of course, there had been no foundational research about their attitudes or their beliefs at all. In fact, very few people had even known that we had done this. So I jumped in as quickly as I could and I tried to convince them to spend some of this money on a pilot interview study, which was done not, was not executed as rigorously as I would have liked, but, you know, I felt pretty strongly that it was important to get some data about what people thought. And I, you know, tried to sample a mixture of people with adult onset adrenal myoneuropathy and mothers of children with childhood cerebral disease to maximize variability with respect to their urban rural geographical location, and really just did interviews that covered two domains. What were their experiences and beliefs about being engaged in research, you know, just generally, and then and what do they think specifically about ALD and PCORnet's plans? And I won't go into it a lot. Obviously, this data is not representative in any way, but one thing that was quite striking is the AMN men were pretty similar in what they had to say, you know, they had relatively little prior experience in orchestrating and advocating for research. They generally viewed patient engagement as kind of a cool opportunity to compare and socialize and figure out where their disease progression compared against others. And they were very supportive of PCORnet, but they weren't jumping out of their seats, you know, to come and be a part of it. They thought that was fine, but it wasn't something they were hugely enthusiastic about. Now, the mothers, I haven't really been able to distill this into themes because we never really saturated I think the themes, but the point in sharing these quotes is just to show you that they were kind of all over the place and very different from the men. ALD mothers, you know, some of them basically felt that this was just too much to all of a sudden be employed as a full time research team member was was too overwhelming that the disease was already so all encompassing in their life that they wanted time away from it, not more time with it. And, you know, others just alluded to the fact that, you know, stuff that we all know about, you know, members of couples cope differently with severe childhood illness and and that, you know, for some being involved in research as a coping mechanism for others, it's just not it doesn't work. And so, you know, from this, I had many of my clinical intuitions were kind of confirmed that parents of affected children, you know, are going through something very different than what adults with AMN are going through and that that is relevant somehow to their roles in the research process. And then there's this alternative kind of framing where some people were just kind of indignant as if to say, you know, who are you to tell us about engagement, we've been doing this for years, everything that we know about this disease is because of us.  And that's still something that a lot of ALD advocates are very proud of, you know, that the parents had were drivers of that. And then ALD mothers also really talked a lot about competing priorities. And you'll see also here, you know, who said we need this for years, nobody paid attention. And all of a sudden we have half a million dollars, what's going on. So that's just to show you that I at this point, oops, I stopped. Can I go back? Well, I stopped because I realized that I was more here than I was going to be able to investigate in the scope of this rapidly accelerating giant infrastructural grant program. And I needed to quit my job at Kennedy anyway. So I did what PhD students do. I did a literature review. And again, found lots of evidence for something that we all know already. And that's basically that since the early 80s, rare disease advocates have really transformed the research landscape in all kinds of ways by building biobanks, by patenting genes, by discovering drugs, by orchestrating clinical trials, by funding, you know, investigators, all kinds of stuff. And surely I thought this must be relevant if patient engagement is going to be something that we're now focusing on this experience in this history is something that needs to be documented a little more systematically. And another thing I noticed is that a vast majority of these people of these early organizations were parent organizations advocating on behalf of diseases their children had. And more recently, I don't you may have seen in the New Yorker there was a recent article about Matt Miten, Matt Willsie, who whose kids, they basically found each other on the internet and facilitated the discovery of the first genetic disorder of D. Glycosylation. And in general, I think patients more and more now are using the internet to connect with one another and facilitate research discoveries without using advocacy organizations as an intermediary. So this is a dynamic landscape, but it's very significant and particularly in rare disease, it just hasn't been documented all that well. Rebecca Dresser has looked at the role of advocacy in research and she's noticed in HIV and in cancer. Generally, these qualities tend to manifest in patient advocates involved in research. And I kind of did a lit review to see whether this is true of rare disease advocates too. And I think to an extent, these things are true, but maybe not entirely. I don't think there's enough evidence to support that they're definitely true always, but certainly there is a tendency among advocates to frame research participation in positive or hopeful terms, and that can often be very therapeutic, I think, but there are concerns about whether those positive hopeful terms are always realistic. They tend to have strong opinions. They tend to represent broader populations with uneven quality and legitimacy. There tend to be wealthier, more educated people who are more successful in research collaborations and they tend to want to change things. Which, I mean, all of these things are not necessarily good or bad or anybody's fault, but they just are characteristics, I think, that we need to look at more closely. But we also know that many parents of children with special healthcare needs are more likely to experience financial hardship. There's plenty of people who have absolutely no time to even do their jobs, let alone take on a research volunteer position, and there's plenty of people for whom advocacy is just not the right place to be. And so, you know, I think about my experiences at Kennedy Krieger in the clinic, there's so many families there who you never see, you know, at the podium at NIH and you never see them writing up a quarry grant, and I don't know that we've ever been really good at bridging the divide between those two types of people. So the overall aim of my project is to determine, to kind of take a step back and to try to think about what we would do if we could have done this before the PCORI award had been given. And that's just to determine what parents of children with rare disease believe a parent's role should be in research on their child's condition, how such research should be structured and executed, and how these views vary depending on the nature of their prior patient advocacy involvement. And I'm going to try to get parents of children who have been very involved in advocacy in lots of different ways, and then people who have never been involved at all. And to do that I'm going to try to recruit them through advocacy networks and then through the clinics that I used to work in. So at the moment I'm looking at three disease groups, or hoping to look at three disease groups, childhood cerebral ALD, background Duchenne muscular dystrophy, and then Phelan McDermid syndrome. I think these three tend to represent a quite wide spectrum of issues that you'll see in a PEDES neuroclinic. And all three of these disorders have patient groups that have won the PCORI grant. So they're all kind of in this system swimming around and learning at the same time. So my first aim is just to explore, you know, kind of landscape a little bit and explore what they've actually done, what roles they've played, what skills they've developed, what experiences they've had, and kind of use that to guide the interview and the sampling a little bit because I think we don't even really know the full range of roles that have been played. And then the second aim is to explore the views that should be offered. They think that should be offered to parents in research on their own children's conditions. You know, because I think there's so many roles that the PCORI is trying to give patients. We have to figure out some way of prioritizing which are the really important ones, or which are the ones that people can opt out of, which are the ones that, you know, we need representation from lots of people, which are the ones where, you know, I think just to kind of put it all on people's plates is it's very overwhelming. So to try to sift through a little bit their prioritization of what they think patients should really do, and then mechanisms. And this is really specifically about a database like PCORI. You know, what are actually the acceptable ways of being approached for research participant? What do they think are acceptable data sharing practices in the network and so forth? You know, really trying to hone in on the nitty gritty of how their data is getting in and out and what role they're playing in those decisions. Because I think that if you talk to people about these things in a more systematic way and you report it publicly, transparently, that in itself is an act of engagement and hasn't been done in a lot of these groups. So I'm going to skip over eligibility because I want to just quickly focus on this. What I'm struggling the most with right now is how to sample. Because there are so many ways that these individuals can differ besides their nature and degree of advocacy role and in ways that could really affect their views. And one thing I also struggle with is I'm so likely to get more moms than dads that I'm wondering if I should just cut the dads out altogether, although I hate to do that. I just want to try and clean the data a little bit so that we're talking about things in comparable ways and I can compare across disease groups. So that's what my advisor and I are going back and forth about a lot right now. And just another note to mention is that this is not part of my dissertation but I am involved in it. I sit on the Patient and Consumer Engagement Task Force at PCORnet and we are in a separate endeavor designing a quantitative survey which is trying to evaluate the patient engagement process through this network. And so I'm hoping that my qualitative data will somehow complement this. I'm trying as hard as I can to map it on to some of the things that they're looking at at specific intervals.  But I am hoping that, you know, they're looking to measure so many things in a categorical way and I'm hoping to come out with some qualitative data that will explain why people have done well or poorly or why people rejected or accepted certain patient engagement methods or processes because I think you can learn a lot from the narratives behind the categorical answers. And yeah, I mean, I have some still have some issues to work out, you know, especially I think the main one is that I want to include people who've had a diverse range of advocacy roles. But I don't necessarily know what the full range of advocacy roles is going to be before I go win. So I have to do some scoping first and then sit back and try to code them and figure out, okay, what is the scope of activities I want to really make sure I include and reflect in this sample and then go back and kind of try to sample them iteratively. So really qualitative stuff. But and I'm not sure whether I should exclude really recent diagnoses because I just think especially in the ALD bucket that's such a crazy time. I can't imagine people will have time to speak to me at length about this. But it's also I think an important observation is to kind of find out what people who are recently diagnosed need and don't need. So those are things I'm working out and I would really appreciate anybody's feedback either by email or later today. And just to sort of summarize, I think, you know, the implications of this work could be helpful. Many rare disease advocates really feel like they're the people who invented patient engagement. And I think with it being about a 30 year history of that, it's time for us to take stock of it and figure out what lessons have been learned. And I think also advocates have found it hard to represent everyone. And now that engagement has scaled up and become this broad national push. We have to figure out whether and why that matters. And then PCORI is actually going to basically preferentially award money to groups that do well at patient engagement. So, you know, if rare disease groups don't get this right, then they're going to get squeezed out, I think, of what's right now a kind of unprecedented opportunity to get funding. And because I'm a bioethics student, I have to have a conceptual question. And so my conceptual question is looking at the relationship between patient advocacy and patient engagement and research and figuring out whether there should be different rules of play and methods for each. So I went through that quite quickly, but yeah, I hope to hear your thoughts later on. Thanks. I have a question that's more of a process question that I think could be applicable potentially to all of you, but I can imagine you each answering it somewhat differently. So for people in the room who are thinking about engaging themselves in other people's research teams or with other groups to help address a research question or potentially engaging in collaborations around a question. Do you have thoughts about how that's worked for your studies? I originally thought of this when Julie and Danielle were talking about how that collaboration happened, which might role model for some of the other alums or for current students. But I think all of you may have something to say about how you engage with a specific team or build collaborations to answer a question. Yeah. So I have a really great experience with that and a really not so great experience with that. This was the not so great experience. But I don't want to I'm sure other people have things to say, but I'll just say that this was a really difficult situation initially when the money was awarded because everybody knew I was a PhD student interested in research. But at Kennedy Krieger, my job was not a research job. There was no dedicated time for research. I had no research funding and I was supposed to be covering Julie Cohen's maternity leave when all this was going down. So and then when the funds were awarded, there was a lot of squabbling about how they were actually going to be dispersed and spent. And so I don't know that I could have done much about that other than I think I probably shouldn't have really gotten involved because there was no compensated time set aside for me. I knew I was leaving the job anyway, so I didn't care that much. I was just concerned about doing the work. But my my my other project aside from this is working on the Med Seat study with Amy McGuire's team down at Baylor College of Medicine and that's also a really big collaborative project and it's it works very, very well. You know, we're collaborating with Brigham and Women's Hospital and with Duke University and everybody's doing all different things and there's different arms to the project. And it's so structured and so well organized that I think I'm I'm glad I have a model for how to do it right. But I'll be more careful, I think in the future about identifying those characteristics. Mm hmm. So it's really interesting. I wonder about what you think about including muscular dystrophy. And this is completely biased question because of working closely with Holly on the clinical trial studies. I wonder if groups that have clinical trials available to them as part of the research aren't going to have quite different responses to this. And and I wonder what you thought about that. Yeah, absolutely. So actually because the River La LD does have a clinical trial now too. So I did think about that. Absolutely. And the two of those two groups are actually similar in that regard. The one that I'm not sure about is feeling McDermid feeling McDermid is the real odd one out there. And the reason I included it is in a way because I just wanted to reflect, you know, the diversity of childhood illness experiences. But you're right. I think them being different in that way could really matter. And I'm actually supposed to speak with them next week. And I may learn something about the clinical trial landscape that would change my mind, but that's important consideration for sure. Yeah.


Hey guys, happy August 2nd. Today we are starting off the day by going to Home Depot and we totally forgot the last time we were here to get like rope for the shelves that we DIY'd Well, he DIY'd, he pretty much did it at all. We might have to get nails, but I don't know I feel like I'm gonna wait just because last year mom Bernadette has so many nails Also, we do not deserve mom Bernadette Like I feel like all the Katie house girls and like everyone Katie can relate like she's just so nice She saw us like staining the boards yesterday She brought out like gloves and like plastic bags and like all this stuff that we didn't even think we would need Those gloves definitely came in handy by the way, but yes, very thankful for our house mom But we are gonna go into Home Depot now Just the thing we were looking for Is that the one we were getting? I thought it was like a lot smaller, but That's it Well good, I mean if I have it that's good Okay, let's get it looks cute. I love it So we actually found a pack that comes with 50 feet for only like eight dollars So yeah, it's a lot cheaper than if we got That one over there. So yeah, I think it's pretty much the same So we are gonna get it last time we talked we were in Home Depot But now we are on our way to New Smyrna Beach because I Wanted to take Ryan to the beach one last time for back to school And we decided I think we're gonna get like Popeyes. Is it even open? No No hiring damn, I don't think it's even open There's like literally no one there damn we're literally gonna get it I'm over here talking about like how I want to get my recruitment body Ryan needs to go back home So he doesn't This is the type of picnic I live for like just to sit in like the shallow Hey guys, happy August 3rd I'm starting off the vlog by going to a meeting with my internship boss pretty much Basically, we're just gonna be talking about like everything I'm gonna be doing this year and like my goals and stuff like that So I'm really excited to just start like learning about everything I feel like everyone in that department like the videography crew the photographers the Social media coordinator and manager like they all have so much knowledge that I'm so excited for them like share all their secrets with me But yeah, so I'm gonna go over there and then after that I'm gonna change out of this and Probably just like unpack like literally get so much done because I feel like I haven't done that much at Katie if you guys haven't watched my previous vlog then you wouldn't know that I'm actually currently moving into my sorority house for my senior year UCF University of Central Florida, so I still have a lot to do my roommate is actually gonna be there today And I think I started moving in What day did we start like Tuesday or Wednesday? And it's currently Friday, but I still haven't gotten that much done But I also wanted to kind of wait for my roommate to get here so we can like decide together So you'd be like, you know a little bit more cohesive, but yeah, I will see you guys after my meeting So my meeting went really well and Ryan just picked me up and you went to Starbucks, right? Yeah, he said do you want me to get you anything and I was very tempted But I really need to like lean off this coffee thing now. We are going to Capedalta and we are gonna get shit done I feel like I keep saying this but We really need to like do a lot because I almost thought you have a key with you again My car is pushed to start and I always have a purse with me So I put my key in my purse and then whenever he drops me somewhere like he doesn't have the key So whenever he turns it off, he can't turn it back on But for some reason like the car like can drive without a key if it started with a key like I've done that before yeah So yeah We had to have someone drop me off at Chipotle last night and come get him because I had the keys so Yeah, so we got this rope yesterday at Home Depot if it's these shelves, but not these little planters This hole is a little bit too small, but honestly it looks really good against the white doesn't it? Like I really like this color so so if you guys watch my last year's moving vlog to Kappa Delta, I had Too many t-shirts like now. This is pretty much all my t-shirts I'm very proud of myself for actually getting rid of some because my t-shirts last year literally didn't even fit in like this Deep-ass drawer We're getting so hungry right now.  It's cold. I don't even remember but It's so good. I was honestly thinking about getting suit high But then he said bento. I was like I could go for some bento. So I think that's what you're gonna do my room currently looks like this Not much has changed over here, but I'm just trying to like organize everything Charlotte and Katelyn and all their boyfriends because Ryan just like hits it off with everyone So they're just like all wanted to hang out which is so fun We went bowling and to a home of rays and now we are in Hobby Lobby because we have to get back to work and Yeah, we just saw the shelves that I asked Ryan to make me and how much did you say it was? 18 and we made it for oh Hashtag DIY and our rope like looks a lot better our ropes like actual nice rope So so we went to Hobby Lobby and then we went to Target So I thought I'd just do a little Target haul and Hobby Lobby I guess okay, so the first one's pretty big this like farmhouse mirror kind of thing I don't know. I thought it matched like the headboards because this part is like the same color as the headboard So I thought that was really cute. It was originally 34 99 and all mirrors are 50% off So I got it for like $17 or something like that and I got some more jute But this one is a little bit smaller just to fit into those planters I wish it was the same color as the rope that I got from like Home Depot because I like this color a little bit better It just looks so much more real. I'm like Nice, you know like farmhouse and article rope, but this is like Another cheap stuff. So the next thing I'm so excited about is this wooden bead Garland strand It was $16 at Hobby Lobby, but they always have like coupon codes and like 40% off one item so you can always like really get good discounts at Hobby Lobby But I thought this would be so freakin cute to just hang like right on the headboard I also saw really cute like lights like little Christmas lights, but not Christmas lights They have mason jars and then they have like these frosted kind of balls and I really wanted to get those But I think I'm just gonna wait for Tiffany to get here So she can like kind of put her input just because I do want to match for the most part But yeah, I really like those beads So I hope Tiffany likes them too because then we will both have them and it would be really cute And then I got this little pot and rope and it has like all these cute little Seculants in them, but I don't know. I just thought it'd be something else to hang on my wall This was 2399, but again, you can find really good coupons on wine So that's what I did. I think I used my coupon for this Or no, maybe four already discounted. I don't know. So now for the not so fun things from Target I got some dryer sheets. I just got the snuggle plus super fresh I don't know. I've never tried this brand as long as I've done my laundry myself I got an extension cord because There's literally no outlet and here this mini fridge and that's a problem So we got this then I just got some nails because I didn't know if I would need them So these are like $1. I was just like why the heck not next I got tied pods I got like the biggest package. Please. Let me know down below if you guys have Done your laundry for a really long time because I'm not gonna lie I didn't do my laundry in high school my mom did so I Pretty much learned how to do my laundry when I got to college But I always thought tied pods were just so convenient Especially living in a dorm and having your laundry room like all the way over there. So we don't really store like our Detergents and stuff in the laundry room because you don't really want other people to use your stuff, especially Because this stuff is not cheap. I just feel like pods are the easiest for me right now But maybe we want to have like a house and like a laundry room I'll use detergent But anyways comment down below and let me know what's better for like clothes because I sometimes can tell that there's like Stains like on my t-shirts just like random like They look like grease stains, but like I don't know they're not from Greece So I've heard that these do that But let me know what you guys prefer in the comments down below because maybe I will Switch to detergent if you know that stops happening in my clothes next I got shout because I use this at Ryan's house for like a dress I had like a pretty bad stain on and it lifted it so well I was like, you know what? I'm probably gonna need that. I got some razors.  I need something to just like clean my face after it and I don't really have anything So I thought I'd pick up this just in case, you know, I have to do a little extracting at home myself But that is it. That's pretty much all I got today And yeah, I have to like figure out what the heck I want to do with all this wall space Like I'm not joking when I say this is like so much more space than I had to deal with last year It's definitely not a bad issue to have just because our room is a little bit bigger because the president's suite is a little bit bigger But yeah, now I just need to figure out what goes where and like I still probably need to get some things to hang up my wall But I don't know. I just don't even know where to start with decor wise You're putting my shelf stuff or how he's trying to but like look how good this looks I'm so pumped about these beads. That's literally all I wanted when I went to Hobby Lobby I love him Good morning guys. Happy August 4th. We are back at Katie.  He is helping tip with her shelves We just have the same hanging ones from last night. So at 10 a.m. We had our outfit checks for recruitment But now since our council meeting is actually canceled me and Ryan just arrived in Winter Park And we're gonna try to go to Ryder Patch I just called and they said that it would be less than a 30-minute wait, which doesn't sound too bad So we're gonna go and check it out for ourselves and today is also the Winter Park farmers market So hopefully that will still be open right after we eat.  So that's what we were just doing here And I think they turned out really good. We stopped at Home Goods on the way home This is not Home Goods. This is at home. Is this like Boho? Me, she's back. Happy Delta President, no big deal. We are doing our gallery wall right now So I literally like drew it all out. Not that I'm like the best drawer But okay, so this is what I drew out and I also kind of tried to lay it out down here So as you see What? Yeah, that's definitely not straight. I swear that thing's really not accurate That's a little bit better, but that's sides a little bit higher. Just a tad. Actually, no, no, no, honestly, that's good I hung up all of Sonali's gallery wall and There was like a lot of stuff to do I finally finished and I think we're gonna go see a movie Think we're gonna see Hotel Transylvania. Yeah, maybe pass just messing around with us. Yeah, it's not doing so well Did they have to like borrow money or something like they went bankrupt for a little bit, but yeah, it's really Pissing all of us off because we're like when we go it's like, you know glitching and stuff So it's like why do we want to go and like drive all the way there? We're gonna get some candy before we go. So none of you bear a snitch on us gosh for my boyfriend because he hung up like a lot of my gallery and all so good like I literally went to at home just like Put everything in my cart that I could like find that would like maybe go with our theme I didn't even know what like our theme was really but like everything fit and everything like looks good I'm pumped about that like I'm the real show She even show you guys Yeah, I know because I'm gonna save it for a room tour I wonder why I'm gonna save it for a room tour, that's why All right, we'll film the whole movie so you don't have to pay for it. Love you guys I changed it to my comfy outfit And we got the goods


In western Kenya, the dairy sector is constrained by a number of factors. These include unavailability of quality feed and water, poor animal husbandry, and poor linkages between small-holder dairy farmers and access to evidence-based information. The AVCD program seeks to help improve diet diversity, food security, and rural incomes across the country. I started dairy farming around 2012. I bought just an ordinary one that is a local cow, but I decided to sell it because it was not giving me much milk. And it was also frequently becoming ill, and one time it almost died of PCF, which by that time I was not aware of. I started keeping cows way back in 2003.  I realized this was a loss, and a great loss to me. Ossiva Practical Action is a CBO that operates within Moroni sub-county. So we have done a lot of training to our members, and even to the greater membership. So we hold seminars, their capacity built in terms of how they can do better practices, in terms of agriculture, and in terms of the overall organization of their facilities. There's a friend of mine who called me and told me there was ill people coming to come and sensitize us on how to feed our animals and even how to do the grazing. And after attending that seminar, my mind changed. I was changed completely. Before feeding them on bracharia, the best animal gave me not more than six liters per milking. But when I began using bracharia, it increased to seven as time went by, it even gives me eight liters per milking. If we have improved animals, it means we have also improved our milk production. And that is why we sought the help and guidance from Illuri. And the idea of this chilling plant came up. And farmers are very, very happy with this one. And many have registered as members of this plant. They told us about the milk chilling plant that is about to begin working. And I'm willing. God willing I'll also be one of the people who will be taking their milk there. Through the collaboration of us, a practical action, Haifa and the Illuri, my life and my family has totally changed and changed for the good. My home is a living example to the surrounding courtesy of the three teams. Through AVCB and OCP Practicals, I've managed to have good cows. I produce the type of animal that I want.


So I just want to understand if people in this room you guys have seen the slides already have you No, nobody so that's the reason you're here So what I want to understand is I just want to really understand if this is at the right level for all of you because some Of you might be doing it already and some of you might want to know more So that's one of the reasons why I've always put my PPT in place. So you guys know what it takes So what am I doing in an agile conference? What am I talking about something which is not even related to agile and how it's going to be relevant? So any idea so any thoughts or do you have any clues like what is that? What do I even mean by it's not an agile story when I'm going to talk in an agile life cycle topic any idea? No nothing all right cool. So let's begin with this. So you guys know these two Mythology characters. They are from the great mythology. They're called the Apollo and Dionysus You know what they represent anyone you know what who up aloe is who dinosaurs is? Anyone no all right. So Apollo and Dionysus are the two sons of the one of the great gods with this so they represent logic and Emotions that's what they represent. So which is something which is very common You know, we all know there are like multiple instances like it's not just about Apollo and Dionysus We have yin and yang we have water and chaos. We have black and red Sun and moon we have day and night and a lot of things and we also have something which is the items on the right versus the items on the left So does it bring any bell does it sound familiar remember the agile manifesto? So technically when we speak of agile manifesto the crux, you know What are they trying to say is about something which is very fundamental which is very fundamental not just for agile But for anything and everything in life You guys are green Everyone right so obviously so if that is the case there has to be a reason why even the agile manifesto was even written You know, it should be like something about something was not happening in the past And there was a reason and hence we have an agile manifesto and today we are at an agile conference after a couple of decades But unfortunately today so when I when I listen to a lot of speakers when I have this keynote Conversations with a lot of other people was in the conference today. What do we hear now? We just say that people are telling me that agile is dead So do you think agile is dead? Anyone? Yes, so why do you think agile is dead? So if I'm saying there was a reason why agile was formed in first place But today if I'm going to say that agile is dead in my mind. It means that the reason is dead Isn't it does it make sense? Possibly one of the ways how we can actually bring back agile, you know Give some life to agile is somewhere doing something and trying to restore that balance that we are talking about What is this balance again the things about right versus the left? So that's all it is. So I do believe that Even though we have not embraced the balance yet. That is something we all agree, but there is some progress That is a lot of hope


And who was that person who came through the door? So everybody started to gaze towards the door. فأشخصوا أبصارهم. They started to fully analyze and look at towards that door. وشرقبت العناق. Those who were short were stretching out their necks to see who's going to come through that door. Who can this person be? As they were looking. فإذا به الصادق و الأمين. The truthful one. The reliable one. نبي الله محمد صلى الله عليه وسلم و وقت through that door. When everybody saw the Prophet عليه الصلاة والسلام and they laid eyes on him. And they realized that he was the one who came through Quraysh. Not one of them showed any hostility or rejection towards what نبي الله محمد صلى الله عليه وسلم يقول. Each person when they saw him they said هاد الأمين. This is the truthful one. رضينة. We are pleased. هذا محمد. This is who? محمد صلى الله عليه وسلم. We're pleased with the judgment that he passes. So the Prophet doesn't know. He walks in and he just sees the people saying this. So they went over to him عليه الصلاة والسلام أخبروه الخبر. They told him about the news. When they told him about the problem that happened and what took place and the news time didn't go by. The Prophet صلى الله عليه وسلم was wise. Very smart. صاحب العقل النفيس he had a very amazing mind. عليه الصلاة والسلام. He said to them هلوم إليه ثوبن Bring me a garment. A big garment. So they brought him a garment. فأوت يبيه when they gave him the garment. فأخذ الحجر الأسود. So the Prophet took the black stone فوابعه فيه. He placed it in the garment. When they brought it to him, he took it and he placed it in the garment. ثم قاله. He then said to them لتأخذ كل قبيلة. Every single tribe from amongst you let him grab بناحيته من الثوب. Each person take a representative from you. Each tribe let a person from amongst you grab it. ثمار فعروه جميع. And all of you then lift it from the ground. The stone is in the middle. The cloth is everybody's holding it from the side. All of you lift it at one time. So everyone's playing a role now صاحب. All of you, lift it. They all lifted it up. Until they reached موضع who the place that the stone needs to be put in. Then the Prophet صلى الله عليه وسلم took it with his own hands. عليه الصلاة والسلام. And he placed it inside its place. And he put it in عليه الصلاة والسلام. And this was what prevented a great destruction that could have come to the atoms. They were fighting. They were going to fight over who's going to place that stone in the place. The Prophet saved عليه الصلاة والسلام blood. عليه الصلاة والسلام. And the war could have been torn between the custodians of the Ka'bah. And this الله تعالى تعالى chose it a wisdom. It was a wisdom. الله تعالى تعالى was willed and intended which there's no wisdom greater than it. That Allah تعالى تعالى chose. قريش building the Ka'bah they made a decision. What was the decision that قريش made? That they're going to build the Ka'bah with what? النفقة الحلال. حلال إنخم. Every single tribe has to bring حلال إنخم. And the money that's going to be built with the Ka'bah can't be any money that's حرام. So that shows you that they knew that what has to be observed in building this house, it has to be حلال. They knew that. So what did they do? They bought all the money that they had. So what happened? The money finished. The money that was حلال finished quickly. حرام is always more. If you ask a person today the money from your money that's حلال كثير من them they can't. Where is it? Yeah? Or even if you did it might be 200-300 from 10,000 that you have made. That's problematic. So قريش they tried it and they put all the effort in making sure that the money they bring is حلال. So it finished from them. And the Ka'bah still needs to be built. It's part of the Ka'bah that needs to be finished off. They weren't able to finish it off. The angle that stopped was جهاتو الشمالية the left side of the Ka'bah which today is called the حجر حجر نبيلا إسماعيل That part of the Ka'bah they couldn't build. So the Ka'bah is actually longer than that. It's meant to be longer than that. So they if نفق are finished so what they did was they made that wall around the Ka'bah to say that this is part of the Ka'bah that little wall they built because you're not allowed to do طواف around that part because that's inside the Ka'bah you have to do around the Ka'bah, right? The person is not allowed. And the reason why they did that wall was to inform the people that this is what مينال بيتي that is from the house and this is what is known as today as the حجري. It's known as the حجر. He says وهو مينال بيتي The حجر is part of the house و لذلك لا يصحب طواف إلا من ورائه And because of that the طواف is not permitted except around it. The طواف is what? It's allowed what? Around the Ka'bah و السمية بذلك لأنه حجرة أي قطط عمين الكعبة The reason why it was called حجر is because it's broken off from the Ka'bah. It's not part of the Ka'bah. It's part of the Ka'bah so it's a broken part of the Ka'bah. That's why it's called حجر. The Arabs they say يقطط عمين الكعبة it was broken from the Ka'bah. The length of the Ka'bah the length of the Ka'bah at the time of إبراهيم and إسماعيل it was تسعطة بروعين it was سك لينسرين أمس من That's how long it is. That's how long the Ka'bah was. At the time of who? إبراهيم إسماعيل عليهم السلام And it used to have two doors at the time of إبراهيم and إسماعيل. A door was باب شرقي one was on the east and one was on the west and غربي. The reason why they had two doors is that one door you would enter into it and the other door you come out of it. One door was for the people to come in and another door was for the people to what? Come out. But when Quraish built it what they did was زادو في إرتفاعها When Quraish came they added on 9 other an armspan onto it 9 that إبراهيم and إسماعيل built they added an extra 9 onto that And as for the door وقتصروا على باب واحد As for the door they took away the other one and they only left one door And with that door what did they do ورافعوا بابها They lifted that door from the floor from the earth They made it in the middle of the Ka'bah And anybody who would want to enter it لا يصعد إليها إلا عن سلمن The person won't be able to enter the Ka'bah unless he has a unless he has a ladder The reason why they did that is يتخلوا من يشاووا So they can bring in whoever they wanted ويمنعوا من يشاووا And they can stop whoever they wanted So they made the door high You can't come It's too high for you to come up So you need a ladder To be able to what? To come up And it's still the same today It's just that you have a stairs that you go onto it But it's still high today And it's just got that one door as well الرمام البخاري المسلم بوطن ريتن من حليت عائشة ربي الله تعالى عنها That the Prophet صلى الله عليه وسلم يسأل يا عائشة يا عائشة أو عائشة لو لأن قومك قومك لو لأن قومك أو عائشة If your people وان not حليت عحد مجاهلية أو عائشة If your people وان not أو عائشة وان just come into Islam وان just came from this belief لأمرت بالبيتي فهو ديما I would have commanded for the Ka'bah to be broken and demolished And I would build it again فأدخلت فيه ما أخرج منه And I would bring back what was taken from it Everything that was such as I bring back the two doors Okay I would make it shorter by bringing it nine as Ibrahim And I would build it وجعت له بابين بابا شرقيا وبابا غربيا فبلغت بيه أساس إبراهيم I would make it shorter to the foundation of Ibrahim the nine other Ibrahim did I would do that And another one وان بخاري المسلم بوتن ريتر محليت عائشة That you said سألت رسول الله صلى الله عليه وسلم عليه الجدري عائشة I asked the Prophet صلى الله عليه وسلم I asked the Prophet I should say this أمين البيت هو Is the hijer part of the Ka'bah Is this part of the Ka'bah قال نعم The Prophet said عائشة yes it is from part of the Ka'bah قلت فليما لم يدخلوه في البيت Why did they not put that part Why did they not add it into the Ka'bah قال The Prophet said إن قوم مكي عائشة Your people قصرت به من نفق The provision it reduced from them They couldn't bring more money to the table قلت فما شأنوا بابي مرتفعا In the why is the door high عائشة Why is the door very high قاله يدنستها فعلى ذلك قوم قوم مكي عائشة Your people did this يدخلوا من شاءوا So they can bring in whoever they will ويمنعوا من شاءوا And they can stop whoever they want ولولا If only إن قوم مكي If your people حديثوا عحدهم بالجاهل If these people are not new to Islam recently coming to Islam فأخافوا أن تنكرأ قلوبهم And I was not scared that their heart would reject this What would I have done أن أدخل الجدراء في البيت I would have taken the Ka'bah and built it And add the hijab part of the Ka'bah Or be built it like that وأن أرسق بابه بالأرضي And I would have made the door stick to the earth The door not make it high like it is This حريث ابن حجر رحمه الله وفتح باري He extracts six benefits from it شاء الله تعالى We are going to take those six benefits حافظ المحجر يفتح باري He extracts benefits from this incident بين عائشة And the Prophet when they were talking about this issue The first اجتناب ولي الأمر ما يتسرع الناس إلى إنكاره وما يخشى منه تولد الضرار عليه في دين أو دنيا He said The leader should abstain That which the people will hasten to reject The leader should abstain And stay away from doing something That the people will hasten to what Rejecting it from him They won't take it from him وما يخشى منه تولد الضرار عليه في دين أو دنيا Or he stays away from That the leader should stay away from Whatever he says It will bring about harm Whether it be religious harm Or whether it be worldly harm The leader should stay away from things like that Number two فيه تعالوا فوق قلوبهم بما لا يتركوا فيه أمر واجبن Number two is Whatever will bring the people's hearts Close To do it As long as it is بما لا يتركوا فيه أمر واجبن As long as you are not leading On something that's obligatory The shari'a we take into consideration What the people feel As long as it's not The leaving and the abandonment Of an obligatory command From Allah Number three وفيه تقديم الأهم فأهم من دفع المفسدتي وجلب المصلحتي وأنهما إذا كعارضة بديئة بدفع المفسدتي Number three is that You give precedence To the greatest thing in importance So you prioritize things How is it? By prioritizing here The most important thing is to repel the evil Which is more higher Bring about good or repelling evil Which one is greater in the shari'a The bringing about good Or the pushing away of harm Which one is The pushing away of harm Is greater The pushing away That's a good But he has to get rid of the The people are going to People are going to reject the religion They are going to say now Mohammed has gone to the Kaaba And he is destroying the Kaaba Is what? He is destroying the Kaaba In this situation In this particular situation We do the The repelling of the harm Then bringing about good And this is very common because If you know a brother who is giving In front of a haram place In a club He goes to the club He stands in front of it And he is saying to the people We will say what you are doing is being You are trying to bring good You are trying to guide people from But we are going to repel the harm And you might be A person who may fall into this club Tomorrow And you might be a member of The security guards that are standing there So Repening of the evil takes Presidents over what A person may say for instance I want to work with a deviated group Now I am going to work And share a platform with people who are misguided And when he says that He means I am going to bring about good And I am going to listen to me And I am going to convince them what they are doing is wrong And at that slot of time I am going to guide A lot of people will say The repelling of evil takes presidents over They are bringing about good Which is what about the people That you can make them You can get to listen to him To listen to them And you becoming convinced with them The repelling of evil takes presidents over what Over bringing about Good And the repelling of evil is addicted to watching Things that are haran It comes from the telephone It comes from gadgets that they use Dar ul mafsada awla من جل بالمصلحة You get rid of these gadgets and these things You don't use them But you think oh sometimes I read Quran from it Sometimes it reminds me that You know the Quran reminds me It's Friday till I read Surah Tulkah Dara ul mafsada awla من جل بالمصلحة And you are not allowed to use it That takes presidents over any good That you think is coming about with it Point number four We take from it وفي أن المفسادة إذا أمنا وقعوها عاد استغباب وعمل المصلحة Number four is that If we are safe From any harm coming الحمد لله أمنا We are safe from any harm coming Or any harm taking place Then we go back to bring about the good عاد استغباب وعمل المصلحة Once we know that The harm is not going to come Then now we can start thinking about Bring about good he says Number five وفي حريث الرجل مع أهلي في الأمور العامة Number five This حريث shows us the permissibility Of a man talking to his family About what General matters As long as he is not backed by it in a gossip General matters A husband can talk to his wife And he spouts about it with them General issues Of the way that the Prophet was talking to عائشة He wasn't specifying any individual This is permissible And it's allowed Number six وفي حرص الصحابة عالمت ثالي أوامر النبي صلى الله عليه وسلم And this حريث It also shows us How the companions would hasten And they would go fast And execute in the Prophet's command When the Prophet said He knows who's going to do that His companions They're the ones who are going to street As soon as he tells them They're going to all go and do it Because there are people who followed him And if you look at the Quran today Allah says in the Quran وفي رسول الله وصوة حسنة في رسول الله عليه وسلم إذا ما لقد كان لكم It is in it for you guys وفي رسول الله وصوة حسنة وصوة حسنة Pay attention here Allah did not say there is a great role model In the Prophet's speech Or in the Prophet's action Or in the Prophet's etiquette Allah says There is a good role model In the Prophet himself That means everything that comes from him Is a role model for you He is a role model in it for you It is in him لقد كان لكم في رسول الله He did not say في أفعال رسول الله في أخوال رسول الله He said In the Messenger himself عليه الصلاة و السلام عليه الصلاة و السلام So you follow him in everything he did Where if he spoke you speak like he does And he does something you do it With the action and the intention Simultaneously When you follow him in If he does something you do it How he did it and what he intended from it Does that make sense brothers He is a role model in everything عليه الصلاة و السلام الله سبحانه وتعالى الله سيثه و اتكلمه من The Dharan The Fulf of Jahlia الله اتكلمه منه عليه الصلاة و السلام Before he became a Messenger He was a person who lived حياتا فاضلة شريفة Very honorable life Very virtuous life He was never known عليه الصلاة و السلام To have done things that were wrong That went against etiquettes Morality He wasn't known to do that And the Prophet ﷺ was never accounted From any Zalla and Hafwah He wasn't The Prophet ﷺ All of his life he was under the protection Of Allah سبحانه وتعالى Allah protected him from what من أقدار الجahlية The filth and the wrongdoings Of the pre-Islamic Pre-Islamic people and his people What they were upon And what I did all of that Is to honor him ﷺ And to honor him with what A message that's soon going to come He's going to become a Prophet of Allah So he doesn't become a person who was known To be bad and now Allah guided him There's always a what A protected individual عليه الصلاة و السلام If Quraish was looked at The Arabs were looked at The Prophet ﷺ From even amongst them He was the most honorable person In terms of morality و أحسنهم قلقا In terms of etiquette he was the best و أقرامهم حسبا He was even the best in terms of religion عليه الصلاة و السلام He was a person who was great for what و عظمهم حلمان He was the greatest in terms of forbearance و أصدقهم حديثا He was the most truthful person صلى الله عليه وسلم و عظمهم أمانة When he was entrusted with And he was far from و أبعدهم من الفحش و الأخلاق التي تدنس الرجال He was far from anything that could damage A man's dignity and reputation He was far from it عليه الصلاة و السلام Until he became well-known In the midst of Quraish He became very well-known to be what بالأمين The truthful one عليه الصلاة و السلام حافظهم الكثير الرحيم إن استفسير هيسيس ثم قال الله تعالى يعدد نعمه على عبده و رسوله محمد الله حافظهم الكثير الرحيم أخي الكريم أخي دون بلعنة الثلاثة زمان ثم قال الله تعالى يعدد نعمه على عبده و رسوله محمد صلى الله عليه وسلم و عليه الله سبحانه و تعالى هو قامت بفعله لجميع انه مباشر ها وردتchuckles هو قد تحملوا صلى الله عليه وسلم الله تعالى الم يجدك يا تيمن فأاوة فلل Greens Mars يتم إشكارك سواب انت مهاك ورساله وفق게 و because his father died وحمن في بطنه ابيه عليه السلام و السيدة كانت في أمه وديه و وديته قدنا ثم توفية أمه أمن بنت وهبن و أمه قدنا أمن بنت وهبن وله من العمر ست ست سنينة كانت 6 سنينة و أمه قدنا ثم كانت في كفالة جديه عبد المطالب و أمه قدنه بالنسبة لأمه يوجده هو great-father عبد المطالب إلى أن توفيا أنته و قدن وله من العمر 8 سنينة و كانت only 8 سنين فكافيله عمه أمه وطالب فهي تحرق باستخدامه وحرق باستخدامه. هو أبو طالب. ثم لم يزل يحوطه وينصره ويرفع من قدره ويوقره. أبو طالب يبقى تحرقه ونظر بعده. يتحرقه ونظر. يتحرقه ونظر. ويهرقه ونظر. ويكوفه عنه أذا قومه. ويحرقه منه. ويقوم باستخدامه. بعد أني بتاعته. بعد أني بتعته الله تعالى على رأس 40 سنة. أبو طالب يتحرقه ونظر بعده. ويقوم باستخدامه. ويقوم باستخدامه. ويقوم باستخدامه. ويقوم باستخدامه. هذا وأبو طالب على دين قومه من عبادة الأوثان. أبو طالب كان على رلجنه. ويشهده في عيدوز. وكل ذلك بقدر الله تعالى وحسن تدبيره. إبنه كثير يقول. كل هذا قدره. مع ما؟ يبقى الله تعالى. أن الله يكون جيدا. إلا أن توفي أبو طالب. أبو طالب تقوم باستوى. قبل الهجرة تريد قليل. قبل الهجرة ومعروفه قليل. فقدم عليه صفحة القرش. فبسرحة القرش يتحرقه. ويقوم باستخدامه. ويقوم باستخدامه. فخدار الله تعالى له الحجرة. الله يتحرقه للهجرة. من بيني أضغره إلى بلد الأنصاري. من الأوسي والخزرج. الله تعالى يتحرقه للحجرة. الله تعالى كبيرة من قرش والتفقد مدينة. وقاموا باستخدامهم ونصروا وحاطوه وقاتلوا بينه يريد يقادفونهم وشلتونهم وفوتون بهم عليه الصلاة والسلام رضي الله عنهم أجمعين بي الله بيبقى كلهم وكل هذا من حفظ الله تعالى وكل هذا كان محاولة الله وبرفص الله عليه وسلم وكلاءته وعنايته به وكلاءته وعنايته به وهذا كان موضى الله سبحانه وتعالى for the Prophet صلى الله عليه وسلم الإبرا كثير say that all under the ayah ألم يجدك يتيما فآوة الله protect him until he died عليه صلى الله عليه وسلم so this is what النعام الله تبارك وتعالى upon the Prophet the Prophet صلى الله عليه وسلم he hated I do worship him بغضة للرسول الله صلى الله عليه وسلم الأسلام الله made him hate I do worship him and the Prophet صلى الله عليه وسلم نشأ سليما العقيدة he grew up and was nurtured upon a correct عقيدة عليه صلى الله عليه وسلم العقيدة which was the fitrah he was upon the fitrah عليه صلى الله عليه وسلم صادق الإيمان believed in Allah didn't believe I do worship him he didn't like that عميق التفقر he was one who would feed a lot عليه صلى الله عليه وسلم and he would ponder around him غير خاضع اللي تروحات الجهلية and he was no one that was known عليه صلى الله عليه وسلم to humble himself from the wrongdoings of the pre-Slamic people what they would do فمعرفة أنه it was never known of him أنه سجد الإصان من قر the Prophet was never known to have prostrated to an I do whatsoever أو تمسح به or that he touched and tried to find baraka from it أو ذهب إلى عراف أو كاهل or that he went to a a fortune teller or a magician بل بغض إليه عبادة الأصنان وآذد The Prophet صلى الله عليه وسلم وزحيت إنيز حاته حيت العيد واشكن الإمام أحمد ريتيز إنيز مسند بسند صحيح العنورة ابنوزوبيلن قال حديثة ليجارا اللي خريجة بنتي خوائي لدن ربي الله تعالى عنها أشياء الإمام العلم أحمد شاكر رحمه الله authenticates the story الشيخ شوائي بالأرناء that عراف ابنوزوبيلن he said حديثة ليجارا اللي خريجة بنتي خوائي لدن a neighbor of خريجة the wife of The Prophet صلى الله عليه وسلم ربي الله تعالى عنها he told me أنه سمع النبي صلى الله عليه وسلم هو يقول لخريجة that he had The Prophet صلى الله عليه وسلم saying to خريجة أي خديجة أو خديجة والله لا أعبدو الله the Prophet صلى الله عليه وسلم is to خريجة والله لا أعبدو الله not going to worship لاة والله لا أعبدو العزة أبدا والله I'm never going to worship عزة عزة was an idol of قريش قال فتقول خريجة عن خريجة والسيين ربي الله عنها خل للات leave of لاة خل العزة leave of عزة ولما لقي والنا The Prophet صلى الله عليه وسلم بحيرة الراهب the monk قال له بحيرة بحيرة ستهم أسألوك باللات والعزة I ask you by لاة العزة إلا أخبرتني عن ما أسألوك عن that you're going to inform you of that which I'm asking you of وكان بحيرة سمع قومه يحلفون بهم بحيرة he had this quiche when they used to come as traders they would come to Damascus and they would say these statements they were the ones who would say أسألوك باللات والعزة he had this from them when he said that to the Prophet the Prophet صلى الله عليه وسلم he said to him لا تسألني بحق اللات والعزة شيئة don't ask me anything in the affairs of اللات والعزة فوالله ما أبغط فوالله ما أبغط شيئا قطن بغضي لهما the Prophet صلى الله عليه وسلم he said I have not become angry whatsoever the way I have become angry with this issue of اللات والعزة so the Prophet صلى الله عليه وسلم was very well known for that ألمام النسائي ونسونا الكبرى المجتب الكبرى ونسونا الكبرى نسائي has two sulams one is سغرى and one is كبرى نسائي mentions نسونا الكبرى بسند قوي a salad which is authentic وزيد ابن حارثة رضي الله تعالى عنه زيد ابن حارثة رضي الله تعالى عنه يسد كان الصناماني من نحاسي there were two idols that were made out of copper يقالوا لهم إسافن this idol was called إسافن that was the name of the idol قريش placed that idol around the ka'bah so what they would do is they would go around it and whenever they go around it they would touch it in their طواف so the Prophet صلى الله عليه وسلم he done طواف around the ka'bah and زيد ابن حارثة رضي الله تعالى عنه he did طواف with the Prophet around the ka'bah زيد أبن حارثة رضي الله تعالى عنه he did طواف with the Prophet around the ka'bah زيد أبن حارثة زيد أبن حارثة every time فلما مرحت whenever I went by these two idols مسحت به I would touch it فقال رسول الله the Prophet said to Zaid لا تمسه don't touch it قال زيد أبن he said فطفنا went around the ka'bah again فقلت في نفسه I said to myself لا أمسنه I would touch it حتى أنظر ما يقول so I could see what would take place فمسحت who I touched the idol فقال رسول الله the Prophet said to Zaid لا تمسه don't touch it ألم تنهأ will you not prevent it from it did I not stop you from it did I tell you not to do it زيد said فوللي أكرمه I swear by the Lord who honoured the be of Allah Muhammad وأنزل عليه الكتابة and set the book on to him مستلم صلى من قط the Prophet never touched an idol عليه الصلاة والسلام حتى أكرمه الله تعالى بالذي أكرمه until Allah honoured him with what he honoured him with which is that Allah honoured him with رسالة الله may Allah give him a messenger وأنزل عليه and Allah set a revelation on him وبغض إلى رسول الله صلى الله عليه وسلم الشعب the Prophet also hated poetry he hated it عليه الصلاة والسلام it was never known that he عليه الصلاة والسلام أنه قال الشعب that he said poetry for himself أو أنشد قصيدة أو that he read a poem عليه الصلاة والسلام أو that he even tried to do that the reason is because لأن ذلك يتلاقم ومقام النبوة is in conflict with the station that Allah has given him which is prophecy and as you would know is that the شعراء the pre-Islamic poets they were not known for good etiquettes they were not بداول أخلاق people were good etiquettes and they didn't have سيرا المرضية if anybody reads for example مرور القيس for example from the mu'allaqat who is the first between him and the Prophet عليه الصلاة والسلام was what? 150 years it is mu'allaqa if you read it and you listen to why he said if you read the story behind his poetry his poetry and why he says it and what was the reason why he said it they were alcoholics they were people who were known for speaking bad their poetry consist of foul language so this was not befitting for the Bible for the Prophet عليه الصلاة والسلام Allah prevented him from this عليه الصلاة والسلام Allah gave him something even better which is the Quran who would not need to do something like that Allah says in the Quran وما علمنا وما ينبغيله الله said we have not taught him poetry and it is not even befitted for him to be a poet but even then any poetry that had wisdom in it that was calling to the truth the Prophet عليه الصلاة والسلام يتذوق he would enjoy listening to it if it had good in it and it had no bad statements in there and if there was a hikmah in there and he would ask his companions and say he could read some of him مسلم ريطن مسلم ريطن عن الشريد بلسويد ربي الله و تعالى عنه he said ردفت has the Messenger of Allah I rode on a riding beast with a Prophet on the back one day and then he said to him هل معك من شاعته من أبي الصلط ام it with you the poetry of أبي صلط شاعة do you have any of his poetry يبارغة مليئة يبارغة مليئة هناك قاة بلوكي إن شاء الله تعالى ف-E02YHJ ومن أحد الذي يقوم بلوكي another قاة هو من أخلاق وإنسة أتكتس تتعطي قاة بلوكي من الناس فالبرسة عسلم بسقل المعلومات المرهة يعلي عنها هل معك من الشعري وميّه ابن أبي صالط هل هل ترون على نفسك قیلت هناك أقل نعم هناك فالبرسير يقول قول له من يعيش قاول على رقمنا فأنشد to him بيتن أردت انه تماما النبي صلى الله عليه وسلم استحسن الشعر أمية واستزاد من إنشاده لما فيه من الإقرار بالوحدانية والبعث ففيه جواز إنشاد الشعر الذي لا فعش فيه وسماعه سواء شعر جاهلية وغيره وأن المدموى من الشعر الذي لا فعش فيه or if it's other than that... وأن المدموى من الشعر and the thing that is disliked and blamed worthy about poetry is الليلة فعش فيه the poetry that does not have bad in it the ones that are disliked and blamed worthy is إنما هو الإكتارو منه when the person makes his whole life poetry وقوضه غالبا على الإنساني and also when the person makes this when the person makes this ويجب أن يفعل هذا شيئاً بشكل كبيراً من المجرداتهم فأما يأسير ونوي يقول إن هذا صغير، فلا بأسل إن شادي ويقول إن شادي ليس بشكل كبيراً، ويقول إن شادي وسمعه وماذا؟  يمتلك فهذا يجب أن يتحدث بشكل جيد لأنه يتحدث عن الأشياء الإسلامية يصبح مرحبا يصبح مرحبا ويصبح مرحبا يجب أن يتحدث عنها حتى ما ليس من it فهو رد... ووجه رواية بما عملا عمل لم يكن علي�� أمرنا من توهر الرغم والإصلاح الخ德 كان صلى الله عليه وسلم يتدو�� فيه التاع Thank Allah لكن exams are Van في إلقانسي there is magic, إلقانسي وإن من الشعري حكمة and from some lines of poetry is what some شعر have wisdom in it and it was رضي الله تعالى عنه that the prophet would say to أه جل مشركينة go and attack the disbelievers the pagans فإن الجيبريلا معك جيبريل is with you حساني بلوثابت يبلموذل الانصاري he was from the khazraj tribe of Ansar and he was a person who defended شاعر النبي صلى الله عليه وسلم he was a prophet's poet and they said حساني بلوثابت he lived 60 years before Islam and he lived 60 years what passed in Islam so he lived for 60 years 100 years 100 years 100 years 100 years 100 years he became very old he became very old and he died at the caliphate of Muawiyah رضي الله تعالى عنه سنة أربعين وخمسينة من الهجرام when he was the age of 54 هجريام اذ حافظ بحاجر المنشز في تميز الصحابة the prophet was also وَلَا قَرُبَ مِنْ فَاحِشَكِنَ he never came close and was never made to come close to any عليه الصلاة والسلام شاء الله تعالى will stop there for today anything which I said that was wrong or incorrect is from me الشيطان and that his message are free from it سبحانك اللهم بحمدك شدوى الله إلا إله إلا الله ستوفروا كتوب إلي


Hi, I'm George Cao and today I'm with one of my clients, Rochelle Melander. Hi, Rochelle. Hi, George. Thanks for being here. So Rochelle's going to be sharing some of the lessons she's learned in her business building journey and hopefully you'll all get some inspiration and benefit from this as well. So let me start by reading Rochelle's bio and I will, and then we'll go into some of the lessons. So and by the way, Rochelle, do you sometimes get people saying Michelle? Yes. Rochelle, Michelle, Rachel, Rachel's a big one. So all right, let me read your bio and so folks can have some context for what your business is. So Rochelle Melander is a certified professional coach and the author of 10 books astounding including Write Athon, Write Your Book in 26 Days and Live to Tell About It. That's the title of the book. She has worked in publishing as an author, as well as a book editor, magazine editor, blogger and writing coach. As a writing coach, she now teaches professionals how to turn their ideas into books, how to navigate the publishing world and to connect with readers through social media. She has lots of tools and tips at her website, which is rightnowcoach.com, which is W-R-I-T-E and O-W-Coach.com.  And just for those who don't know what traditional publishing is. Yes. So most, you know, when publishing started or in the most recent years before indie publishing got a footing, all publishing was done kind of in brick-and-mortar publishing houses. And so I got my start working for them as a consulting editor and a consultant and an editor. And all of my books are traditionally published. My most recent book that's coming up in the next year, Level Up, will be indie published. I'll do that myself so that I have the whole gamut of experience. Amazing. Yeah. Lots of sort of hard-won lessons to share with your clients and your audience members. So when you, as you're, you know, those watching this are a lot of entrepreneurs and small business owners, share with us some of the lessons you've learned here in your business. I know one of them is sort of the importance of experimentation, but I'll let you kind of talk about your experience there. Yeah. You know, you had this, I don't even know when you did this, but you talked about the paper airplane analogy. And because one of my jobs is teaching writing to kids, we do, we make a lot of paper airplanes. Oops, that one kind of crashed. And so it just really resonated with me because anytime I write a book or launch a program, I've got all my eggs in that basket. And I'm thinking if this fails, then I fail. If this doesn't succeed, then I shouldn't be doing this. And that idea that you had that we should launch things like paper airplanes and maybe tweak them more lightly was a way for me to kind of let go, not put all my eggs in that basket. And when things didn't work, then I could step back a little bit and say, OK, what's, what's up here? What do I need to tweak? Let me look at this as information and more as a test. And then I can tweak it and make sure the next paper airplane flight goes a little better and a little better after that. And it's advice that I give to my writing coaching clients. I don't want anybody to spend 10 years on a book and hope that this is going to change their lives. But I was doing kind of the equivalent thing with my business. I was putting all this effort into launching these big programs. And then when nobody signed up, I was like, ah, I should just quit. Your way is a little bit better because it's lighter. I don't invest so much time. And I think that clients then experience it in a different way. And so they're more likely to be a part of an offering I make that's not given with such a heavy hand. Yeah, I love that. Yeah, the way you say that. And speaking of how clients take it, et cetera, you also mentioned in our conversation about this call that you are having conversations with your clients or potential clients and kind of getting some information. Maybe you can say more about that. Well, you know, one of the things I started to do since working with you is reach out to clients regularly. And not just when I have an offering, but reach out to them. I've gotten more free with my time. So if I haven't heard from a client in a year or two, I'll say, hey, let's just set up a conversation and hear how you're doing and what's happening. And sometimes that results in more work. And sometimes it results in just getting to know where they're at, which I'm happy to do as well. But that kind of rhythm of regularly reaching out to former clients and even to people who maybe stopped in and had one session or a sample session to regularly connect with them has really helped me build my kind of market of raving fans, you know, the people who are more connected to me than just those who hang out on my list. Yes. I love that. I love that so much. I think those hearing this, watching this will hopefully feel inspired to think about the people that have reached out to them, why their clients, previous clients, but like you also said, people who have had you've done sample sessions with, you know, I sometimes forget to add that group into the mix. So I thank you for saying that.  And so few of them keep in touch with me on the basis, like a personal thing, not just on their newsletter or something, but personally reaching out, thoughtfully reaching out and just kind of updating me on what they're up to, not even trying to sell me anything or asking me to refer them. Just say, Hey, this is what I'm up to now. And how are you doing? Or I noticed you've been doing this.  So when you do keep in touch and reach out, you really are like one in a thousand, you know, and and it's so much more likely that someone's going to refer you business because you just kept in touch and you're on their mind. You know, I've noticed that a lot. It's like when I refer business to somebody, it's because they're on my mind. It's not necessarily because they are the best, best person in the whole world for that thing. It's just we don't have time when we're referring business, we don't have time to think, well, who is the best person in the world? Let me like think through and look through all my contact list. Oh, yeah, I just talked with Bob. I just talked with, you know, so-and-so. It's like, Oh yeah, of course, they're they're good at it.  And so naturally going to refer. Now, another way, of course, to keep top of mind is through content. And that's something that you do very consistently on your Facebook business page. I will be sure to link that in the notes of this video. But tell, tell us, share with us what you've been learning as you continue that journey for yourself. Well, I think I was an early adapter of content marketing. So I was sending an email newsletter as early as 2000 and have been blogging for for over 10 years.  So I blog regularly and I also commit to post regularly. And so I only blog once a week, but I post that everywhere on social media. I also make sure that I post other people's resources on Facebook and Twitter. And now I'm working on growing my Instagram following. So I'm posting on Instagram once a day. And to me, the biggest value I can offer people is as I guess I call myself the resource queen. So I am providing them with resources that I have called and cultivated as well as my own information. And I think, you know, I've always done this generously. And I got to a point in my business when I was worrying that I wasn't making enough money and was I giving too much away were people not buying from me because, you know, I just I just gave away so much in my newsletters and so much in my books. But I think what I've learned from you and from the MasterHeart community is that content sharing is really about building relationships. And you need to have a relationship with people before they're willing to hire you. And so what's interesting to me is that sometimes like today I got an email from someone who's been following me and on my list for like 10 years and is finally ready to hire me. Wow. And that's pretty remarkable. But that's the sign of a long term relationship. It wasn't didn't feel mutual because I hadn't heard from her till now, but she has felt like I've been part of her life nurturing her content creation, nurturing her writing all these years. So I think I think what I've learned from you is, first of all, don't worry about saturating the market with content or giving away stuff for free because you're building relationships. And that's a necessary step. Secondly, once you put that content into something saleable, like a book, a program, a coaching program, another sort of product, you're going to make it different and better just by taking all that content together into a 50,000 word book or a 25,000 word book. You're doing something that's going to make the content much easier for the client to digest, plus you're obviously adding some more stuff in there. And that's going to make it more likely that they're going to want to buy it. Even if they've read it all before, they're going to be like, Oh, it's so nice to have this all in one book or it's so nice to be able to go through this as a program. Sure, I'll be happy to spend whatever on it. So that's really released my fears and allowed me to do something I love, which is create and share content. Yeah, I love the way you talk about that. It is I found it to be so true. The more content I give, the more people are paying attention to what I'm doing. And even if I create an online workshop or a book, that is basically a combination. Like I said, it's a combination of some of the things I've already put out there for free.  So it's yeah, you've said it very, very clearly, Larry. So I would love for you to share, Rochelle. I mean, we have a few minutes left and I want to be able to ask you about some of the offerings you have. But do you have any tips for people who are, you know, a question that I received recently is I've got so many ideas. I've got some, you know, experiences to share. But where do I start? Like I, you know, there are people who are paralyzed with feeling if they have to put everything in order and like they can't start because there's so much of it. How do you what would you how would you advise or encourage that person? That's a great question. I think so I think if if if you're a person who's meant to share content, you're going to have a lot of ideas. That's just part of the gamut. That's part of who you are. So I'd say start sharing in an informal way. So either through videos or blog posting and not necessarily your blog. You could do it as a guest blogger, but share some things and then measure the response. So kind of treated as a test marketing experience. And so I'd say take a month and share some things that are key to you. So maybe you have four book ideas or four program ideas. Share around those four topics and measure the engagement level, measure how many people like it, how many people share it or comment on it. That's really great information for you. And once you see that, then you can see where kind of that magical combination between your passion and your fans interest is.  The other books will come because remember, these are paper airplanes. They're not big tones. So you can write this book and then in six months, you can write another book. So I think that that's been the best tool for me and my clients is to really work with reader and and client engagement. Wonderful. So tell us about the various ways that you do work with clients. Let's say somebody watching this right now and saying, gosh, you know, I would love to get Rachelle's inspiration, support and finally, you know, birthing my book or finally getting going on a consistent writing process. You have various levels of working with you and maybe you could share as many as you as you like.  We spend 20 minutes together and we can talk about if your concern is kind of in developing that writing habit and overcoming fear or procrastination. Or maybe your problem is I don't know how to write a book or perhaps your problem is I don't know how to make my book work for me. I don't know how to share it through social media or publish it or any of that. So we can discern that and then talk about what's going to be best for you. Sometimes a big question like how do I publish my book can be solved in a 45 minute coaching session. Sometimes and my most popular package is a six session package, six 45 minute sessions, and I get to look at pages. And that's a great amount of amount of sessions for someone who wants to create a book outline or wants to overcome writer's block or or establish a writing habit so that they're doing it regularly and feeling really confident and comfortable. I also offer workshops from time to time and I have one coming up called leverage your content and it's really about helping people who've been blogging or speaking or doing programs take that content and shape it into a book. And because I've worked in books for so many years, I've got some great ideas for the structures that work well for that kind of already created content. I have some ideas for how you can figure out which content's going to sell best, all of that sort of thing. And so that's a quick one hour workshop with worksheets that will really help see the cats here that will really help. Your cat wants to write a book that should really help people. Beyond all that, I have a weekly newsletter and a blog post. So sign up, get connected. I often have some cool little freebies for clients. Very, very nice. So let's end this conversation by just kind of inspiring the viewer about the possibility of having published the book. When you published, whether you want to share about your own experience or a client's experience, what what is the difference in their sense of their their abilities as well as the market sense of their credibility when they publish the book? Maybe share a bit about that. Yeah, I think, you know, in my in my book, Write-A-Thon, I talk about writing a book as being like running a marathon. You know, it requires some training and discipline and and the ability to kind of sit down and work on something for a distinct amount of time. So just the process of thinking through the book and writing it is going to up your level of expertise and ability to connect with your clients and talk about your interests with your clients. So I believe, like for me, being a writing coach who's written and published 10 books really increases my credibility because I've been through it. I understand what it's like to do the process. And so when I'm coaching people through it, they have a sense that I know what I'm talking about. And because I've worked on all sides of publishing, they know I know it from all different parts, from being the client, the writer, to being the editor, to being the publisher. So I think that's really helpful. And I think that anybody who's going to be writing a book is going to experience that sense of credibility because most people don't read a book in a year. So the idea of sitting down and writing a book in a year is pretty impressive.  And so just knowing that you have that is huge. The other thing is it gives people a way to stay connected with you. So even if they just have your book on their shelf or the Kindle, even if they never read it, whenever they're looking around, they're reminded, oh, George is the one that talks about joyful productivity, you know, and then they're connecting that content with you. So it's keeping you in their mind all the time, even if they're not even looking at the stuff. Yeah. I, years ago, I had promoted somebody's bookwriting program and I should have vetted that person better because later I was, you know, it was introduced by a colleague. So I thought, OK, well, then I go ahead and promote this person. Later, I was like, has this person written the book? And I searched and that person had not even written the book, but they were teaching people how to write and publish books and things like that. And I I just want to tell everybody, I mean, Rochelle is the real deal.  I just love that I can refer people to you and then do it very comfortably and confidently. So thank you for what you do and you continue to maintain your credibility by all the content that you generously and resources you can generously share on your blog, on your Facebook business page, etc. So I'm going to be sure to put the links. I mean, well, whatever links you want, we can put that into the notes of the video. Now that you're on Instagram, we can put that in there as well. So thank you so much, Rochelle, for doing this. Yeah. Thanks for having me, George. This has been great. Great. The Internet seems to be cutting out now. So this is a good time for us to complete the conversation. So so for everybody interested, just go ahead and use the links in the notes of the video and connect with Rochelle. And you'll be inspired and and really supported as you write your book. Take care, everyone. Bye for now. Thank you.


Not even near zero temperatures could keep anglers off the ice for this year's Brainer JC's ice fishing extravaganza. Nearly 9,000 people were on the frozen Gull Lake Saturday hoping to reel in the catch of the day. Over the course of the three-hour tournament 836 fish were weighed with the top 150 going home with prizes. It's the Super Bowl of ice fishing I guess you could say. I call it the eighth one or the world. I mean if you haven't seen this you got to see it. I'm kind of curious to see what it's gonna take. I might just take a guess. Maybe it's gonna be a four pound fish. Maybe a walleye. It'd be cool to see a walleye win it again this year. Walleye did dominate the top of the leaderboard but first place went to Gary Krieger who reeled in a northern pike wing and at 5.2 pounds. For his first place finish Krieger had the choice of a new Ford or GMC from Mills Automotive Group. Only four fish caught at the extravaganza weighed over two pounds including Daryl Smith's second place walleye weighing in at 2.92 pounds. Dumb luck and I've always been lucky fishing. I was talking to the neighbors I looked and the bobber was down and went over there and I saw it bob a couple times and just set the hook and pulled it up. Before I set the hook he felt pretty good taking the line out. Once I got him out I thought it was gonna be full to the top anyway. Anthony Scott will have more coverage of the JC's ice fishing extravaganza on tomorrow's Northwood's adventure. If you enjoyed this segment of Lakeland News please consider making a tax-deductible contribution to Lakeland PBS.