Hello, good morning everyone. Hi there, Aless, how are you doing? Fine. That's good. Welcome to another episode of Ask Aless. This is our December, our final one of 2023, so that's pretty exciting. And in the Northern Hemisphere in Canada, where I am, we have snow on the ground and it's a little cold, so in my short sleeve wiki-tree shirt, I've got my volcano scarf to keep me warm. We also have snow, but just one centimeter. Almost, I think. We had a lot on the weekend and then we've lost a little bit of it, but we still have snow soon and we'll probably get more, so we'll see. It's the beginning of the season, so great. So we've had some comments going as far back as on the October G to G post. We had a couple of comments on the November one after we did this and we have some for today as well, so that's great. And for anyone who is live and in the chat, please ask your questions and we will answer those as well. But it looks like we should have a good morning of questions, so hello there, Azure and Yoke and Bill and Vicki who are joining us and a few others who are on the stream, but haven't said hello yet. And welcome to everyone who's watching this after the fact. So do you have a preference of where we start? Well, let's start with October since it's the earliest. Okay, so October, on November 27th on the October post, Patty asked about, he said, I don't know if this is a question for Alessia Grig on the livecast. So one of my Saturday livecasts, I had mentioned that all of the featured profiles because it was a Thanksgiving one and all the profiles were about Mayflower, people who came over in the Mayflower and they're all really close together, like most of their connections were single digits. And so he was wondering, wouldn't it be neat to have some way of showing not just a list of how one person, the profile person is connected to all of these profiles of the week, but if we had sort of a matrix and how they're connected to each other. And he referred to it sort of how on maps you often see lists of cities across the top and the bottom and use a matrix of how far they are apart from each other. So that could be an app in fact, and David Weinberg I think has taken up the challenge and might be creating something or playing with something like that. But Alessia has an idea of, you could actually, you could build this yourself and it wouldn't take too long because you have some information anyways. You have, actually you have distances to all other featured profiles at the bottom of the screen. So you just need to visit all 13 profiles and put this in a table and you will have exactly what you're asking for.  So it's really relatively easy to build a matrix if you need one. But maybe there will be an app for this. We'll see. So the short answer is you can do it yourself right now, but it would be fun if, you know, some people are lazy, Alessia, they're not as adventurous as you are. So I can see why some people will say that's nice, but it'd be even nicer if someone did it for me. So, but that's good. So then we can watch our three dimensional graph of connections between them and which, oh, that's a challenge for you to make the common ancestors across multiple targets profiles. Exactly. Well, you know, that occurred to me as well. You know, once we have the connections and then some of those connections are actually relative so they could have come. I know I was thinking of that. But I didn't want to say it out loud, but now I have said it out loud. Oh, look at the Patty said, yes, I'm lazy. Well, I wasn't specifically accusing you of that Patty, but, you know, okay, so let's go to that was October. That was the October question. And then in November, after the chat, we got what, two more questions. I think so, yeah. So Alan, we answered a bunch of Alan's question and then Greg, on November 22, Greg had a question here.  Clearly, they're not sorted by last name, birth date, branch status. All the results, if you don't specify the sort order, they are sorted by creation date. Oh, and you don't see the creation date anywhere in that? No, you don't. But I mean behind the common identifier for all data is user ID. And that's a number that is based on creation date. So default order, if not specified, otherwise is creation date. There we go. Okay.  So here we have a few fields that can be used for sort ordering. You know what? My eyes go right by that. I didn't even notice that. Drop down. There we go. Okay. But the answer to the question was actually... Is there a way to, is there a way to force them to sort? So this is interesting for connectors because they want to kind of, he wanted to sort by these three ID that appears on some profiles. So that's a group of people that are connected to each other, but not to the global tree. So you have here one of the possibilities. You can use the grouping here at the bottom below the table. And one of the possibilities is connected. Okay. This will perform a grouping on the connected field. And now we got first 72 items are unconnected. And here are a sample of first five profiles. And the three dots at the end where you can... Can you? No, you can't. Yeah, I thought it's possible to click it there, but maybe... No, not in this case. On other groupings, it is possible to display all, but here not because this one is done specially. Then you have far more profiles that are connected, that are actually connected to the public tree, to the tree, but through the private connections. So these are all separately here. And then there are all the trees that you, all the profiles that you wanted to connect are listed further on. And here you have, for instance, unconnected. 86, that's the size of a group of people that is in this tree. And also you have a link to the tree. So if you click it, you get all the profiles that are connected to each other, but not to the global tree. So you can then here select a person where you will start to branch out towards to find the connection. And also here, and then you have a field count where is the number of profiles that are... The number of profiles that were found by this search and connected notables five stars that are in this tree. So three profiles, these three profiles are connected to each other in this small tree, but not to the global tree. So connecting one of them will actually connect all three of them. Okay. So the tree itself has 86 profiles, but only three of those profiles satisfy the notables five stars? Yeah, were a result of this. Right. Okay. And you can then sort this by whatever you want, by each column. But okay, basically the point is to get this grouped tree first to start here because you will connect more profiles. Right. Yes. Okay, that makes sense. Good. Okay. I think that answers Greg's question. That was one of the November questions. There was a one underneath that about the Barbados sticker. What was this about? It says, hello, Elash. The sticker for Barbados was created earlier. I would like to track progress. What search do I run to check how many profiles have the sticker? Well, all templates have attached the parameter analysis on the profiles. So it is all on all template pages. So this is the page of the template. You have here a grid and one of the cells is parameter usage stats. And here you can get for each profile, how it is used on profiles. So here we can see that profile is used 1200 times and 1189 is just the Barbados sticker. And with ancestry parameter is used 60 times. Oh, neat. So here you can see how any proof, any template is used. Now here in preview, you get some grouping of the parameters and you can also see each parameters analyzed separately. Now here we don't have, here there is not much to see. So let's go, for instance, to England sticker. Okay. Now where this parameter usage, oh, okay, it's still being produced for this week. Let's go to last week. Wow. So here the sticker is used 300,000 times and here you have all usages and the number in the right how many times it was used like this. Then you can go, then here this sticker has two parameters. One is country, one location. So county, if you can check the county parameter and here are all different usages of county parameter. Now this is a new thing. If the parameter has a list of associated with it. So list means, let's go back. That's here at the bottom. If the possible values of the parameter are listed, then this, those are marked as bold, those items are bolded. So you can see here 6,000 times for this one. And these are the typos that happened. Now, just this week, I also, the England sticker, I added this typos as a suggestion. So they have 2,000 suggestions to correct. Oh, no. Or such typos. Yeah, because those are typos, right? Yeah. Yeah, mostly a typos or incorrect usage because here probably in some places, the place is listed in the column for county, which is wrong. It should be to separate parameters. So they will probably correct this one. And then you can also see the location column, how, what is parameter, what is used in that one. But here there are no rules of what is correct or not. You can just see that approximately 100,000 templates use this column that are listed below and 230,000 are empty. So this end on the preview one. Okay, here just one. Here the up to three preferred parameters are listed. So here only one is preferred. Oh, okay. So, and this is done for all, for all templates. So this is, for instance, it's interesting for, if you check, find the grave. Oh, yeah. So last week. This is Tuesday. So I just posted the new, this week's half an hour ago. Now here, where there are number parameters, I usually mask the number as digits, letters. So these groupings have some sense. So for instance, if we check the memorial column, you can see, so the spikes are here 900,000 times is used like this. So that's one, four, eight, nine, nine, nine digit number. Okay. And there should be eight digits also has even more, I think, four, eight. Yeah, it's 1.2 million times. And the rest are type was probably with here we can see a dash in between or forward slash name. All these that are not in the correct form are reported as suggestions so they can be corrected. But you get, you can get everything as a parameter and the same as, okay, we have n and zero and no, but no, no. I really mean no. It is interesting here to analyze how parameter is used of the template. So we can see no was used 100,000 times and yes, a bit more 110 and 2 million template usages are empty. Right. Okay. And I know that only three people made typos. Yeah, they are getting corrected because if you make a typo, there is a suggestion for it. Okay. So it's okay. Yeah. So usually this, this, this typos was, were most likely recently done. So that's a doctor's do tend to these suggestions and right. Yeah. Keep the number low. Okay. That's about templates. Good. Well, that's neat. So Patty, when you were talking about sorting and you're also the, the wiki tree number, Patty just reminded people that so that there's, there's two, like there's the wiki tree name, which is a name dash and then a number afterwards like Clark dot that 11007. But the number that you talked about, you can get that if you mouse over the wiki tree ID and see it in the status bar. Here at the bottom, I'm going to hide his comment so you can show people what he means by that. So like this. So here at the bottom here, here at the bottom, the link will appear there at the bottom. I had to move, I had to move our pictures so you could actually see now. It's pretty tiny. So you, people who are watching can't actually read the text, the number down there probably, unless you use your binoculars. But there's the ingredients. I can three to seven, eight, four, four, eight. No, but I did read it on the video. Yeah, that's right. You should just enlarge your video. That's what he means. Yeah. And that's, that's helpful to know. Sometimes in the app developers, I need to use that number to track. Well, you get that number also here. If you go to on edit, hover on edit on wiki tree, you can see at the bottom, the also the user ID, or if I click on the edit button, it's part of the URL. Oh, up top. There it is. Yeah. Or if you use wiki tree browser extension, you get here user ID is added to the scissors. And you can just copy user ID. That, that, there used to only be three things and with this. Yeah. Without the extension there. But I added this because I use I often need the user ID for challenges and all over the place. So I added this to the scissors. So it's easy for me to copy it. Nice. Nice. Okay. So where were we, which version of it were you using so that, okay, we want your screen as big as possible. So here we are. Tiny me over here. Okay, I think that covers November. So let's see and this month. Okay, we messed up the time and date. Wednesday wasn't going to work for a lash. So we threw around a few different things, but we came to this one. And Patty, we got your question. And yes, he did say he wanted automated because he was lazy, but that's okay. Someone will work on that Patty. Is it possible? Yoke has a question. Is it possible to use wiki tree plus to search for profiles that have or haven't an image or a photo attached? No, I'm guessing she means profile picture. Yeah. No. Oh, in the moment. I do have some info for images, but there were no requests to actually search by that. That's too bad. Because now we have a suggestion. If there is an image, there is a link to an image that doesn't exist. This was read a few months ago. So those profiles with links to an existing images can be found and corrected. But there were no requests to search by that. I also, I mean, it's a profile photo attached is a very generic term because it just means that it has photos. A photo then can be the profile photo, background photo, or just one of the photos attached to a profile. So I don't have information for all the images. I think the the icon photo is imported, but I'm not sure. I also don't see a real use of this because, I mean, if you have a person's image, you will surely edit. And if you don't have an image, there's nothing much you can do. Yeah, I suppose. Yeah. Well, I'm thinking, like, for myself, if I have a fan chart of it's nice, if there is a profile picked added, then their picture gets added to the fan chart by default. Otherwise, you get the standard silhouette. And it'd be nice to be able to sort of pull up that list of the ones that just have the silhouettes. Yes, but most likely you don't have the images of people born in 17th century. That's right. There's a limit to how far back you can actually go. Unless they were not of us that someone drew them. Yeah. Yeah. Yeah. And Yoko is, she's specifying, it's not that she wants to know what the image is, just whether there is one or there isn't one. So like a true, false or a yes. No, I don't think that's, I don't have that. And I don't think I will. Now, I have a related question I'm wondering about is, a couple of times when I was doing profiles of the week on the Saturday livecast, I'd open up a profile page and in the middle of it, there'd be like the image unknown icon, because the image that used to be embedded in there either got moved or got deleted somehow. So I don't, is that something that Wikitree Plus can pull up or is that a suggestion now that people can fix? I didn't know that's even possible. Yeah. A couple of times when I discovered that other Wikitreers have gone back and fixed it, but it happens if you have an image and you've embedded it as part of your bio. Yeah. So and then the image, something, something, the image gets deleted somehow or moved.  It can get deleted if it was originally somewhere else. Yes. And I think just used on this profile. And then the privacy setting of that space, space page, for instance, went to unlisted or private. In that case, I think the image disappears. Yes. I could look into it if this would be possible to find such cases, but I didn't actually see one until now, although it's possible that I have, I'm using, I have CISO pride, so I don't think it's hidden for me. Right. Yes. You could probably see everything anyways. I have that trouble too when I'm testing apps. I think everything is working perfectly. What's people talking about?  Yeah, I need to. Well, if you will run across such an example, such a profile, you should give me a profile example so I can look into it explicitly. Yeah. And if anyone else who's watching this, either in the chat live or after the fact, if you find a profile that has an image missing in the middle of it, and you can see just that image question marker, that blank spot, yes, please let Alessno send them a message on G2G or Discord or whatever because that would be helpful because I've run a few times, not a lot. Most of those times people patched it up. So it's even if I went back to find that livecast, it's not there. It's going to be broken. But I know I've seen it a few times and that would be a helpful suggestion if it's something that could be framed as a suggestion somehow. I don't know. Yeah, yeah, because people usually the profile manager most likely have no idea that the image is missing. Yeah, and I think you're right. It used to be there. It was probably something they copied from another link like, yeah, another profile page or something, a free space page. Yeah. Jay has a question related to the ID number. Does it stay the same when the last name at birth changes? No. Okay, so if you change the last name at birth, the new user ID is created and the existing profile is merged into the new one. It's similar to merging two profiles. Right. Okay. So if you use the old one, does it automatically switches you to the new one? Yeah, okay. Yeah, all the links are redirected and all the internal references to the profile are corrected at the merge. So it shouldn't be, nothing should break because of this, but it is a different ID. So the suggestions do break. If you mark some suggestion for a profile as false suggestions and you change the last name at birth, it will reappear. So, but it's also possible. I mean, if you change the last name, then you most likely changed quite a few things on the profile and maybe the suggestion is no longer may not be false or whatever. That's right. So Vicky has a question related to our talk about broken links. If there's a broken link to a picture, would it show not show up as a broken link suggestion? The suggestions that are created are only for the images used in the bio. So for instance, if this image here will disappear and I would get here a question mark on the link and that it doesn't exist and that will be reported as a suggestion. So we can actually find such an example if you go to Wikipedia. So these are the latest suggestions and it should be in the links section. DNA links. Okay. Here we are missing image. So let's check. Okay. So here they are here. This image is missing on a lot of profile. So and let's check the profile now. Okay. And here we see image. This image should be displayed here in this sticker but it's not. I don't know why but this image no longer exists. Okay. It was on profile, on this profile at some point in the history. Right. So but it was maybe deleted or I don't know what something happened to the image but it no longer exists. And it broke the display all of this profile. So this is something the manager should tend to. Right. So you've got the logic there to look for broken links for images. Yeah. Well, this is in the bio part. So the bio part. Yeah. But that's because it's not should be this one is implemented differently. But I think it could also be validated. So the ones I was talking about were ones that were actually in the bio not inside the template but just in the like in between two paragraphs for example. Oh, those are reported as those are reported then. If you find here an example where there's only one for instance. Okay. Maybe this one. This is then not part of the sticker usually. So here should be one missing image. I don't know which one but I know where there is a missing image. Oh, actually there is a name. I could probably search for the name. Okay. Fine. Okay. Here is missing. Okay. So it does show up in the report there. Yeah. But the profile picture if that's missing that may not have profile and background image. Those are not checked. Okay. So I didn't I didn't know that the profile that it's even possible that the profile image was missing. Yeah. So you can just un-set it. Yeah. The one I was talking about was the one embedded in the file. Okay. I wasn't thinking of those ones. I was thinking like inside it like in between two both are checked. Okay. So this is just all in these suggestions. There are just 5,897 cases like 5,000. Only. But some are easier to correct since they are all part of a sticker or something like that. To go back to Yoko's question Patty has a comment again. And now again he's telling I mean he's hard on himself. He's calling himself lazy again.  So it'd be helpful if I could list profiles on my watch list which don't have images on WikiTree. So like for if they're direct ancestors opening up the fan chart is a really quick and fast way to see which ones don't have images profile pictures. And then he will take a box and search over a thousand pictures for that person. Though if your watch list is mostly relatives Patty in the new app that I've developed and released this week the super big family tree you could just create a family tree with lots you know with all the branches filled and the profile. Isn't there on an app that lists images? What's that oh there is the there is the images app tree app but they they just sort of a they appear rent well not yeah there's no order to them and there's it's not the listed underneath them with the profile. So if you click on an image it'll go to that profile but it's sort of the opposite it's the ones that lack the images that he's it's the family portraits yeah okay they just list the images no but there where you get have a table oh which one is not portraits one family maybe this one nope this is not what I was buy or check maybe do we have you know couples descendants the portraits list list portraits you've found but you know it's not that gives you the your x x chromosome chromosome yeah I don't know hmm so you're thinking one that has a table oh well the cc7 has a table okay is that the one you're thinking maybe maybe so if you go to that oh does it have like a mini image beside each person's name wait we have a privacy image home what is this that family shit there isn't a column for there isn't a column for profile pic or not if there is oh but look here we have an image here no this is something else yes okay well here it would be easy to just display the image if there is a suggestion for the cc7 app yeah picture for a picture picture of a profile whether it exists or not yep well yeah and then since most people's watch list is heavily connected to their cc7 that would solve a good chunk of it anyways hmm okay so if uh someone's uh ian or real real or david are watching or murray there's a there's a suggestion for you yet one more thing to add to the cc7 app which is amazing okay so there's the family portraits so that shows you the portraits you have yep listed 20 you're getting double duty no that's some back i think oh no but now it works okay so i suppose you could do go to the family portraits and see which ones are you missing you know i don't i don't see my great-grandmother there oh okay now moving on that's gilesh oh okay uh i wish to completely remove so this is a question from alan again from i was completely removed my watch list entries but i'm led to believe that i cannot be a profile manager and not have that profile on my watch list uh right so if you're a profile manager for um for a pro if you're a profile manager you that's automatically added to your watch list you can't remove it in an effort to reduce the size my watchers have tried several methods by replacing myself yeah okay so that is correct uh if you are a manager it is automatically also on your watch list so yeah you cannot exclude the managed profiles from your watch list watch list can just have additional profiles where you are just interested that you are interested in them but don't want to manage them okay so this is about the reduction of watch list um this is uh not very uh supported a lot by wikid3 plus it has to be done mostly manually um uh i do occasionally prepares um a list of profiles and we have we actually also helps help some users that need to remove thousands of profiles from their watch list we do that is a sipsops and um we prepare a list of the profiles to remove and they remove actually remove them from their managed list but um that we are doing that if we are talking about thousands of profiles not a few hundred um i i think there is an um i think there's an ability in one of the extensions to reduce to remove people from your watch list okay and uh i haven't used it myself and i've just asked murria a quick question if he's online if you're in or if there's someone else knows so you can hear it you can prepare a spreadsheet of the profiles you manage for instance if we uh check the user id copy so on wikid3 plus you can search for mana gear equals so not in the suggestion part we can in the search um so we get 7300 profiles that are managed by this person and you can then uh export those to excel for instance okay it is exporting it is done and then if we open it so here you can get the excel for those only 5000 are shown okay let's correct that since you have um i think up to 10 000 can be exported to the excel um on one page um yeah 1.2 megabytes okay this one we don't need and this one uh where is it here yeah now we have 7300 profiles so here all the profiles that are managed by uh are exported and i think you have a column all managers so here we can see all profiles that are all managers of each profile so if there is um somewhere there are other managers on the but it doesn't seems to be their most itself managed by him right um so as long as he's as long as he's a manager for the profile he can't get rid of that from his watch list no yeah so here we have an example where there are two managers of a profile it's listed like that we can actually sort by this column um right that uh sort of sending extent okay so um where is the man i lost the column all managers there it is uh huh okay so it's um only six profiles are have other managers on them uh huh and oh no there are a few more at the end of the list so this profile he can give up if he wants for others he's the only manager but uh profile does not as necessary require a manager it can be orphan it could be orphan right yes yeah if it's from if it's an older one if it's private right then it's sure it can't be i opened it a few times actually what do we have now murray just answered my question he's he's live in discord helping me he said that the wiki tree b extension um does have a new feature they've added that there's an if you are a profile manager there's an x that shows up in that information box that you can click on to remove yourself to automatically remove yourself as the profile manager so you can go through profiles that way to quickly remove yourself as the manager now i went to look if there is a if there is a some keyword about managers but nothing useful for this case but still if you if uh if one if you want to uh it's not really necessary to be manager of a profile because you can for if you want to search for profiles you create it so you can use create it uh something like death i think uh actually he just corrected me i miss spoke it's not the wiki tree b it's the wiki tree browser extension itself the official wiki tree browser extension my mistake the usability so we can uh oh i'm a creator uh i have this creator and this will return our all the profiles that were created by this person oh not in excel let's go back to html so these are the profiles that were created and now we can add uh not mana girl equals come on really bugging me it's fading out it's fading that's wild now the chrome my is kind of sluggish well can i let me share my screen and i'll show how another way of doing that with the wiki tree browser extension okay uh let's see so now this isn't using a wiki tree plus so i'm kind of veering away from the topic of our video but another way to reduce your watch list is to as we mentioned to remove yourself as a profile manager so i went to my watch list here so you just go under my wiki tree choose watch list and and it loads up and i just picked um the i just picked the second person on the list lauren adam and i don't recognize her name so i know she's not a direct um this uh descendant or ancestor but apparently she's my second cousin six times removed and somehow i am her profile manager um now wiki the wiki tree browser extension which i have installed has now added this little x here so i can quickly and easily um remove myself as the manager of this process i just have a double click on that and now she is no i'm no longer the profile manager but i visited her page made sure that this is the person i don't uh i don't want to be following anymore um before i did that so uh and the way i got that was i went up to the corner here and i can't i can zoom in on the page but it's not going to zoom in this stuff on the top up here to customize the wiki tree browser extension i click on that icon it brings up all of the options under other and under usability tweaks so this is a brand new option that's just that's just been added and it's not been turned on by default but i just turned it on now and there's a button there that says under profile add a button to your profile pages to remove yourself as manager that's what i turned on by default it's off so you have to click it on and then once you've done that then it it saves automatically and now if i if i go to the next person i load up joseph's page see there's the the x is there i double click on that again this is someone who's distantly related to me i don't need to necessarily be the profile manager for this person anymore i double click and i've been removed so that's one way to go through your watch list it's not automatically it's not quite as quick as having a whole spreadsheet and just checking off boxes but i think it's actually a safer way because then you actually can check each one and make sure that we do it it's still going to be a bit time consuming but it's one way um okay back to you a lesh have you got your screens working well i'm not sure if it's working or the crash uh i don't know crumb is kind of sluggish but if i restart the crumb i will go offline so oh okay i don't really want to do that unless necessary okay um well let's see can we answer any other questions i can always share my screen and you could talk me through stuff if you wanted uh oh the only other question we have is from azure and she said would it be would it help with the wikii plus maps showing a plethora of cemeteries remember how whenever you turn on cemeteries it's just black um if it waits to display the detail of the listing of the cemeteries until down to the county level or at least for your usa and canada for example since they're so tightly clustered uh since they're grouped by that entity level for example lanark county ontario cemeteries instead just show a count of the cemeteries by the entity level so she's just offering a suggestion on the mapping and how when you turn on the cemeteries map it's just okay i will show this is the example how you can search for profiles that you created bar but are no longer managed by you okay you can uh search for creator and your victory id and not manager this the same id uh and here are 900 profiles that were created by and and whistle yeah in german it would be yeah how would you pronounce it in german now seation uh but are no longer managed by the person now to wikii plus mm-hmm ah just die oh no i will have to terminate to restart the chrome i think okay so that means we'll be seeing you in a few minutes what the hell is this is this a sign we need to bring our december one oh nope there we go nope you're still here a lesh oh i spoke too soon a lesh is gone okay then um hi there folks uh while we're waiting for lesh to show up let's see if i can um are there any other questions in the chat uh so jay was talking about using the bulk tool to remove yourself as manager so yeah there is that and where uh jay can you remind us quickly where to find that bulk tool in case people are wondering i have i don't use it or i haven't used it so it's um that's why i don't have i use the tool after challenges yeah makes sense and a lesh is back okay i'm back okay is your chrome back as well uh yeah i mean it's running now screen entire screen the right one okay okay so maps yes not not the google ones no not the google maps all right it's plus wiki 3 so the question was about what the one place that this no no uh it was about cemeteries actually she was okay the one place studies i did remove the cemeteries from one place oh you did all right after last month's session so now you can only see the one play actual one place studies um in the region okay um on the cemeteries okay let's hold yes that's we get this massive yeah yeah i mean it's a lot of cemetery also quite a lot to the to my server to process but i do have the detail level is just a circle uh maybe i can even change it to a simple dot but on the other hand if you are looking at another country at some other country you need to display a lot of profile all the cemeteries in such scale so yeah i could probably i will probably at some point reduce the number of profiles but uh the number of cemeteries displayed but since it should work everywhere not just in us it's hard to preset the density that's for sure yeah based on the density also the density is very different here i mean um it does change the appearance does change and the information displays does change depending on the scale right but it's done so that on the most dense areas it's still okay so i can't do different for us right yeah and again then if you are if you are doing coloring by parent for instance uh or by grandparent um you need to display all right cemeteries in england or in a bigger region so um it's not that you can okay that's very cool that is very cool yeah there are circle okay here we have one that goes from texas oh yeah okay the south maybe a mistake yeah that's a typo yeah yeah it actually surprised me though in that map there's a there is a sort of um i don't know if it's the rockies or what is it like there's a there's a dead patch in beach um here in the in the like next to california not the ocean side of california the other side of california yeah here it's a cemetery park and so i don't think here the population is so so dense your cemetery it's not that big is it i think it is here somewhere should be oh wow that's in nevada that's oh actually uh and your cemeteries here that's nevada that's actually desert who will live there oh okay wow i didn't realize the desert was that that big well i don't know how big the desert is i'm not from there but there's not a lot of around las vegas there isn't much okay just in the middle of nowhere well desert that big there could be people buried we just don't know wow okay um yeah but it's interesting how west uh eastern part of us is much much more denser it's like i don't know populated or uh cemeterized yeah yeah because i would have expected all of the states to be just as as solid but you know interesting no they are not and you can also color by parents so here the uh the cemetery is in the same county other right groups together and here you can then see that something is wrong now it looks more like constellations in the sky yeah it does so i have but it's very little overlap here yeah it shouldn't be with and there shouldn't be yeah that's good very cool well i love the maps uh all the stuff you do we have a few minutes left before um my granddaughter comes and uh i have to leave so did you have a quick update on things that you have added over the last month do you want to share i have no idea what i added so this is the i don't think there were any i think significant yeah okay i did change the validation for the sticker um template i added i improved a template reports that i showed already at the beginning i also did some additional checking of the for the locations of the places nice so the location table was updated a few times um i also adjusted the algorithm to locate uh profiles location since there were some uh if there it was if the location wasn't entered uh in exactly defined way it it found the wrong leads for instance the wrong leads yes um and so on so i did just the algorithm and i think the the found matches now better that's good um okay removed cemeteries from one place study page maps and that was it this month okay well it was a busy month um with november i i i also removed here in the maps uh when you are displaying uh cemeteries for instance you can also display errors on cemeteries the one category errors where there is something not defined and so on um um but uh i and now i did the exclusion of the um now if you go closer we'll get what exactly is the problem so naming convention but if the suggestion for the category was marked as false it's not displayed so it's hidden from the map oh good uh so you get actually only the ones that are wrong that was one of the changes um for astro hungary also nice category detail display i have no uh probably let's go to the plus again um and if you search for a category uh huh okay here i think i added it uh huh here i added this uh editing i think editing section was added okay and if you select here is what here you can select what is displayed on the right uh in the right part of the table for category search okay and uh one of the possibilities uh so for the default one is stats that you are probably used to when you get a number of profiles in the category and so on you can also select editing then you see who was the last editor of the category and when it was last edited nice how many times it was displayed if it's top place level the size of the contents of the category and this is the size without the parent categories so here we see these are and these these categories have absolutely no content except the parent category right um this um this is also something i didn't really show often so maybe we can you can also display the aka status of the page so if it has pages in different language uh and so on so if you are reviewing something about language structures this can be helpful three cemetery required what is that uh no i don't know and then uh you can here display the the information from the category info box boxes of the category so let's go to some cemetery okay um this would make more sense and um so this now so here this this place uh okay these three should be cib most likely i just probably erase the contents uh so this is the uh uh required fields so coordinate find the grave id parent id parent and name then you can list preferred parameters of the uh template so here location is mostly entered others are as they are then also you can display other uh the rest of the parameters um that are entered on each category uh links so these are links uh i mean they're all actually you can list check all that amazing yeah of the uh cemetery and see their status that's really helpful it's great okay the images are not used and if it's not in a template so this part is not this is as a fixed content of the page okay cool um azure has um we were talking about watch list before and someone said you could there was another place you could change your watch list and she's given us the link to find that under watch list another place another way to do that yeah there were many ways to manage watch list because it's a problem once it gets big exactly yes and i need to go through and call mine as well so uh i will do that but but now i'm afraid it is time to okay i think yeah we did the new yeah well thank you very much a lot of questions and everything else i think we got through all the questions i don't think i don't think we left any here um like and subscribe hit the like button um azure mentioned that earlier so we got to do that so thank you for reminding us because i don't always remember to suggest that but yes please do um thank you alash for a wonderful year with wiki tree plus and we're coming back again in january right we're going to keep on doing this yeah okay when it's on wednesday so on third on the third january okay nine o'clock eastern time uh what's the utc the same as this time the same as this time okay if you made it on time this time it's the same time just on january third usually i just i express the time in see you in two hours you know in a few minutes but it'll um unless something else has come up it will be the first wednesday of every month um unless there's something special happening and we have to adjust things but we will try and make that g to g post accurate or it will become accurate eventually well we don't we never change the time so time is the same the time is the same the day may have to have changed because of schedules but anyways thank you i thank you again alash thanks everyone who was who were watching live thanks everyone who was watching after the fact and who've helped in the background with questions and whatnot um have a great holiday season and we'll see you in the new year take care bye bye


Hello everyone, welcome to another dark survivor live video. In this one We are going to be talking about Karma because The narcissist did all of these things to you and It just seems like they've gotten away with it It's like nothing is happening to them and of course it must be very confusing for you because it's like How could they do these things and then just get away with it? Why isn't anything happening to them? Why are they not getting their karma if karma is real? Why does it look like they're just moving on without you the happier they're doing better? They're living their best lives They've got all of these things happening in their lives They're flowing to their new source on social media. I do it for you. You're miserable. You're hurt. You're upset.  Why is that our success not getting their karma and That's why I decided to create this video To let you know that in fact, believe it or not despite what you're seeing Then our says is actually getting their karma right now Believe it or not Yes, they're already getting their karma I know it may not look like it's It may look like they're getting everything they wanted But in fact that is their karma as well Even though it may not look like it That's actually a part of the problem and you got to think All of the things that they did to you they devalued you they insulted you they put you down They made you feel like you're nothing Like you're nobody Like you just garbage like you just don't even exist you don't even matter to them There's so many better things than you They'd rather just do anything other than even talk to you now And they just give you the sign and treatment it's like you're not even there Discard you, triangulate you with the new source Or I don't know if the narcissist you're dealing with Is particularly attractive they may have multiple new sources they might have five If they're very attractive they may have ten And if they're like I don't know like a Greek god or something they might have fifty who knows you know Narcissists these days some of them they have a harem garage Others they have like a whole car dealership the car showroom And of course it just makes you feel like you're nothing now you're insignificant You're just nobody and I get that and I'm very sorry that you feel that way that you're having to go through this But what you need to understand is that these things that they're doing that they did to you Do you think a happy person would do those things? Do you think a happy person would treat you that way just overlook you neglect you Do you think a happy person would do that? Of course not they wouldn't Happy person is going to want you to be happy and if you are they're going to be happy for you And they're going to treat you right they're going to treat you with love and respect If they are happy with themselves and their own lives if they love and respect themselves Then as we're then so without and how we treat people is a direct reflection of how we feel about ourselves And that's how you should know that yes the narcissist is getting their karma right now And in fact they were getting it before yes Karma is tearing that ass up and it has been and you can see that Despite observing the things that they have been doing to you how they've been treating you Because if karma wasn't getting to them you really think they'd be doing that of course not If they were happy they were in a good mood If things were okay for them they wouldn't be so worried about you They'd be too busy enjoying their happiness Of course I had to put you down I had to make you feel miserable Because they're just projecting these things onto you They're deflecting their shame but I know how it might look You see the narcissist move on It's like they can just leave you behind and forget about you so easily And then they're flaunting their new source on social media Making it look like they never needed you You never meant anything to them Like they can just forget you so easily But you have to remember that it's all an orchestration It isn't real They know how to plan and coordinate the elements of a situation to reduce their desired effect Because when they do that they put these silly pictures up And it looks like they're smiling, they're laughing They've got their arms around each other They're having a good time Maybe they're at the beach Or they might be at the pub They could be anywhere But whatever it is They make it look like they're having a great time without you And all that's meant to do really is it's intended to hurt you And maybe the new source was aware of you And it's also meant for the narcissist to show their allegiance to the new source By posting it up on social media Knowing that you're going to see it It's kind of funny when you think about it It's like they do this to prove their loyalty to the new source When it's like hold on a minute, how is that? Loyalty? They just abandoned you They just completely betrayed you What has that got to do with loyalty? Anyway, that's how they think That is how they think They're getting it right now They are They're getting their karma Just look at how they've been treating you That tells you everything you need to know I've said it before How a person treats you is a different reflection of how they feel about themselves A happy person is not going to seek to intimidate, harm or try to destroy you Or to do anything negative to you People do not engage in negative behaviours That's something that negative, miserable people do As within so without They're miserable That's why they want to treat you that way They want to make you feel bad about yourself They want to make you feel small Because That's how they felt around you They felt inferior to you They felt like they weren't good enough for you Still some left but I just can't get it out But yeah All the time When they were devaluing you They felt like they weren't good enough for you Many of you didn't even see it You didn't even realise it But that's actually how it was I've said it before The victim initiates the devaluation They don't just go to devalue you for no reason It's just after a certain amount of time Because of their disorder Their dysfunction They can't just be normal They can't function in normal environments So because of that they slip up Their mask slips They say it would do something stupid And then you see it You may not say anything But they can read your facial expressions And they can see that you Disapproved of something they said or did And then they kind of turn against you then It may not happen overnight But gradually They just don't see you the same way After they've seen that you've disapproved Of their false self Which of their minds is meant to be perfect So you just cause a narcissistic injury And then They've got to go and devalue you Because at that point It's like they either choose You Or their false self And I can tell you that No narcissist is going to choose their source Over their false self If they did that They wouldn't be a narcissist They will always choose the false self So if they say or do something And you disapprove of it Even if you don't openly say it But they can tell They can read your facial expressions Your body language, whatever it is And then they know that You disapprove of it They're going to turn against you They're going to devalue you And it's never going to be the same again After that Once you've caused that narcissistic injury After that it's all over That's how you know From that point on After the injury They're just so miserable, so bitter, so angry They're already getting their karma And I think a lot of times the karma Comes from them just Having no empathy at all Not trying to listen or understand you Something that you may not approve of And You may be justified in that Of course we cannot just agree On everything Some things you might not like When that happens And it's time to talk And work things out Cooperate, understand each other But with narcissists what do they do It's like They sense that you disapproved of something And It might not have been a big deal to you You were okay You still stuck with it You were still okay with them But they took it as something more They felt offended by that Because remember they're easily slighted Easily offended and upset So they took it as though Right it's only a matter of time now You're going to turn against them You might even get rid of them You're not happy with them anymore So then they turned against you Because they already sense that Maybe they would be a rejected Even if that wasn't even the case But whenever there's any kind of Ill treatment You just have to remember Would a happy person do that No Of course not A happy person would not do that They do these things because And also they never really come to you And actually say What the problem was Or what you were meant to have done wrong Instead they just become really passive aggressive It's like they give back-handed compliments Maybe they give you the silent treatment There's always just some form of COVID passive aggression Instead of them just coming to you And saying Okay yeah I didn't like this I felt like you were happy with me You disapproved of this It's like they never want to talk about it Because in a way It's like they just don't even want to accept Any flaws about themselves Remember they've got this false self That they think is perfect And if you don't see it the same way Then in their minds Something is wrong with you That's just how they see it I mean the false self It's not even for you anyway It's just all about them It's just something they use to get their needs met It's not really meant to make you happy Just think about it If it was And you disapproved of something about it You think they would try to correct it Instead of just completely turning against you And that's how you know Even the false self That's not even really for you That's just to get their needs met You've got to think as well Like what kind of a person has a false self Why can't they just be their natural selves And that's the thing They abandoned who they really are A long time ago They felt like they weren't good enough They created a false self They're getting their karma right now Many of you May not have believed it But you're watching this right now And now You're beginning to know You're beginning to understand Yes, they are getting it And you will know Based on how they're treating you Because a happy person Is not going to treat you that way They're just not going to do that And especially when they discharge you And they go off with a new source I mean, you think if they're really happy And they're having a good time They're really going to be thinking Oh, yeah Let me just post these pictures With my new source on social media Let me just do that Just don't even worry About the person that I was just with Don't even worry about how they feel about it And they're just completely insensitive To your feelings You really think a happy person Is going to do that I mean, just think about that When people are actually Happy Rather than And as opposed to suffering The effects of their karma When people are actually happy With themselves and their lives I can tell you What that will be like A person who is genuinely happy With themselves and their lives That type of person Is actually going to be Very empathic Very Considerate of other people That's highly intuitive And aware Of their Perceptions and feelings Measurable people Such a low level of awareness And consciousness Those are the types of people Where it's like They didn't even know that you're there They don't even think about you Or care about you They just move on Forget about you Find someone else Completely insensitive To how you feel Or they're deliberately trying To hurt you Yes That's what a miserable Person does So naturally Just think if that's a miserable person Of course the opposite is true For a happy person A happy person Is not going to try to hurt you They're going to be aware Of your perceptions Your feelings So that's how you know But yes In fact they are getting their karma Right now That's how you know That they are getting it It's usually a lot of weird Troll comments going on In the background It's all my best To try and ignore them But don't worry Soon enough We could have a mod Rater on here And there will be Zero tolerance For any weird comments I mean It does kind of Go well with the title Of this video Of course Of what I've been saying I mean These trolls They're just They're just These trolls They're just very Miserable people And that's really it They just want to project Their misery On to someone else So they come into Videos like this And it's weird I swear they're like Waiting Until I go live Just so they can jump on here It's like You really have nothing else Better to do with your life Than to come onto videos Even concern you It's like nothing to do With you It's just so you can Project your own misery That's really sad When you think about it That's what they do Rather than me Alright that's it For this one Worry about the narcissist They're getting their karma Right now Trust me Anyone Anyone who does Hurtful things to you They don't consider you They could just overlook you Hurt you Without a care They're getting their karma Right now I can promise you They are I mean a narcissist And a psychology expert I've been studying this Every day for six years I know exactly What I'm talking about I can guarantee it I can promise you They're getting their karma Right now And they're going to Continue getting their karma And their shame Is part of the shame based disorder That dick takes the Every thought, feeling, action And behaviour It's the reason why they do Everything that they do And if somehow by By magic Like some kind of miracle That they could Remove the shame You would actually see A very different person With completely different Ways of thinking, feeling, acting And behaving They are that way Because of their shame That's why they're so miserable That's why they're so hostile And friendly Malignant That's why So yeah They are getting their karma Right now Just want you to know that Just want to comfort you Just want to let you know That's going to be okay You're going to be alright So you're going to heal You're going to get better And for all of the suffering You've been through There is light At the end of the tunnel Your karma is waiting for you as well Your good karma Because you do not Just suffer in vain Everything you lost The energy you gave out Is going to come back You're going to get that back Don't worry Just be patient It will come to you Not only in this life But in the next As well So don't worry We're all here together To support each other In this community And I'm here for you Always If you found this video helpful Please hit that thumbs up button Down below Show your support Let me know what you think About this video In the comment section below I read your comments Every day And I try to respond To as many as I can Hit the subscribe button And click all notifications So that you will be notified When I upload A video in the future And if you would like To speak to me one on one You can go to My website And book a one on one session With me there It is You can also Follow me on Instagram And send me a message I will respond It is Thank you for the donation Nubia Gold I appreciate it We do have a premiere Beginning in Three hours So I hope you can join us there Otherwise I will speak to you In another live video Around the same time tomorrow So thank you all And you all Enjoy the rest of your day


Hey everyone, I'm Raif Derrazy and in this video I have the great pleasure of interviewing our special guest, Paul Edmonds, otherwise known as the City of Hope Patient. We'll get to hear about Paul being cured of HIV, his successful leukemia treatment, what the whole process looked like, and get to know him on a personal level as well. We are currently in Novato, California for the annual Hope Collaboratory Conference and meeting of all the scientists around the world working on the block-lock stop modality of pre-clinical research for an HIV cure. Specifically, we are at the beautiful Buck Institute, which focuses its research on aging, including aging with HIV, as part of their spectrum of research. Paul, it is so great to have you on. Thank you so much for joining me. How are you? I'm great. Glad to be here. And okay, so this is a question I ask a lot of my guests. Just in general, what is your personal assessment of the global HIV AIDS epidemic? Well, you know, globally, we need to work on access for treatment. Make that better and affordable for everyone in the world. And the same thing with working on a cure, make it approachable for everyone. So I think there's a lot to do. And you are the fourth person cured? I'm the fifth. You're the fifth? You're the fifth person of curing HIV? Yeah, I got all mixed up in reporting. Oh, okay. Yeah, I noticed that there were different numbers on the media. I'm number five. So you are the fifth person cured of HIV, or what is sometimes referred to as functionally cured of HIV? How does that feel? Well, it feels great, I think. I'm starting to believe it. I still have to pinch myself every once in a while, I'll tell you it's real. But yeah, it feels great. Wonderful. Okay, before we dive deeper into your HIV and cancer diagnosis and your experiences receiving treatment, I'd like to learn a little bit more about you personally. Where are you from? Where did you grow up? I grew up in decor, Georgia. It's a small town about an hour and a half northeast of Atlanta. Okay. That's where I grew up. And what brought you out to, because now you're living in Palm Springs, correct? Right, right. Well, I moved to San Francisco in 1976. Okay. What brought you out there?  The place to go at the time. Yeah, it's different these days. You can really kind of live almost wherever you are near a metropolitan city and find a gay community. But I imagine maybe it was a little different. Well, I think it was, and a lot of people were moving to San Francisco then. And I had that reputation for being the gayest city in the country at the time. Okay. Now, moving into your cancer diagnosis, when did you find out that you had leukemia? Well, I found out I had MDS, Myelodysplastic Syndrome in June of 2018. And my HIV doctor sent me to a hematologist because all my labs were off. They changed in a three-month period, and everything was off. And he did a bone marrow biopsy and diagnosed me with the MDS. And I told him, and I was thinking of moving to Palm Springs at the time. I bought a condo there, and he told me about City of Hope. The doctor in San Francisco wanted me to start on chemo right away within a couple of weeks. So I went home that day at Google City of Hope and called them, got an appointment, and went down within a week. And I decided to go with them. And my doctor there suggested that I might want to think about not starting chemo yet because I really wasn't having any symptoms, some fatigue. But otherwise, it was just my labs all being off. And can you explain for those who aren't aware what MDS is? It can often be a precursor to leukemia. Not always, I guess, but often it is. Mine turned out it was. But I was going to say when I came down to City of Hope, well, what happened after I went to City of Hope about a month later, almost exactly a month later, my doctor called to tell me they had found a donor and the donor had the CCR5 Delta 32 mutation. And I kind of didn't expect them to find that because it's so rare. So that was thrilling to say the least. So I moved down in October to Palm Springs and City of Hope started to work up for about a week before the transplant. And that's when they discovered that it had progressed to AML, acute myeloid leukemia. I see. And what does that affect specifically? Or where is the cancer in the body? In your blood. In your blood. Yeah, yeah.  It affects the bone marrow as well? Yeah, yes. Yeah. And so I take it that you already had HIV when you discovered the cancer? Right, right. Because you were going and getting your labs? Yes, I tested and got an AIDS diagnosis at pretty much the same time. In 1988, my two cells were around 50, I think, at the time, although I wasn't sick. But they gave me that AIDS diagnosis because of that low T-cell count. And so at the time, it wasn't necessary to have an AIDS-related complication? Well, no, they were counting the T-cell count. It dropped under 200, I think. The number? And back then they didn't have the medications that most of us are familiar with today. That was the height of the epidemic. Right. In the beginning, it was just the ACT. That's what I started with. They had, before I started ACT, they had decided to drop the dosage and cut it in half. And I think maybe that's why I might have survived because I lost a lot of friends, I think, because the ACT was so toxic. You know, you're not the first person that I've spoken to who said that they personally decided to drop the dosage and that might have contributed to the success. So then other things started coming along, things that I remember. I don't even know how many HIV drugs I've been on. I could figure that out. DDC and DDI come to mind. They came along next, I think, after the ACT. In the 90s? Well, that might have been 89 or 90, I would say. All those drugs were really bad. They pretty much kept me feeling sick most of the time. Yeah, alive but sick. Yeah, exactly. Well, I can't imagine because even in 2012 when I was diagnosed and was put on a triplet, that was horrendous on my body. Yeah, it's a shock, I think, to our systems. Yeah. Things didn't prove, though. Protease inhibitors changed everything. They were kind of rough in the beginning, but they quickly got better. And initially, I believe it was like a one-drug approach and then was the protease inhibitor like the second component? Right. That makes me think of Norvier. I think when I started taking Norvier, they started using Norvier as an add-on drug. I think when I started taking it, I was taking it not as an add-on, and it was a pretty rough drug to take in that high of a dose. Yeah. So, does your particular kind of cancer that you had, is that what qualified you to be able to have this stem cell transplant? Well, yes. Yeah.  I mean, I could have opted, I know people who have had leukemia who just had the chemo and not the bone marrow transplant. And you did both? I did both, yeah. But in order to do the bone marrow transplant, they wanted the leukemia to be in remission. So that took three different kinds of chemo for that to happen over about three months. It was in the hospital five months. And, you know, I didn't know what the chemo was going to be like, expected it to be pretty bad. Yeah. It wasn't as bad as I thought it would be. Really? Yeah. Not as bad as just some of the medications that I've dealt with over the year. Okay. So you had something to compare to? Yeah. Well, that's the fortunate. Yeah. So for folks watching, Paul received a stem cell transplant from a donor with a rare genetic mutation, also known as homozygous CCR5 delta 32 mutation. And I believe it's prevalent in only one to 2% of the population worldwide. So it's an extremely rare mutation. And he was fortunate enough to have access to that. And I get a lot of questions from community asking, oh, great, we have a cure. So can we all, can everybody do this? Can everybody just get this stem cell transplant and then be cured? Yeah, yeah.  But yeah, it's not for everyone. But hopefully the science will, the things that are learned from it will create something that's everyone, for everyone. So to be, so to be clear and to sort of reiterate what Paul was saying, the risks that are inherent in the procedure are so high that it's not recommended for the general population and in someone like Paul's case where they're facing possible death because of cancer, it's, there's a risk, there's a cost benefit weighing that has to be done. And in his case, it was worth it to take that shot. Yeah. And it turned out well. Absolutely, it sure did.  A little over 31. Over 31 years. Last anniversary. February will be 32. Amazing. How did you meet? We met at Happy Hour at the Midnight Sun. What's the Midnight Sun? Midnight Sun's a bar and sandwiches come in the Castro. Cute. Been there a very long time. Amazing. Was there when I got here in 76. But not in the same spot. Yeah. And what is your secret to a long lasting relationship? Well, those of us want to know. Well, you know, we were normal. We've had our ups and downs, but we, we, we for a long time, we worked, we work as a team and we try to be honest and open with each other. And we, we work together, but we also don't lose our own identities. I think that's kind of important too. So you kind of have the permission and the freedom to be yours, be yourself? Yeah, absolutely. Have your own hobbies and likes? Yes, yes. Like Arnie, Arnie does acting and you know, that's definitely not my thing, but he's very good at it. I love seeing him. I paint. Arnie paints some too. And does Arnold also have HIV? Yes. Okay. Yes, he does. Yes, he got tested. When we met in 1992, he had not been tested and we talked about it and he decided it was best to know. And he got tested and he was positive. He's, he's undetectable. We also had a strain of HIV, he has HIV one. So I'm immune to that. Great. And was that a source of comfort in a way to have someone who understands you and what you're going through as well? Well, yeah. Support each other? Yes, absolutely. Yeah, we kind of, all these years we've done it together, you know. My boyfriend is negative. I'm also undetectable. So fortunately these days, you know, once you're undetectable, you're untransmittable and he still supports me. He's there for me as well and we don't really have to worry about it either. Okay, I wanted to ask, what is that dynamic like now that you are cured of HIV? Your partner's living with HIV? I feel like when in life we're afforded wonderful opportunities, amazing opportunities, you're now functionally cured. We want to be able to take our partners along with the ride, on the ride with us. Does that dynamic impact your advocacy work now? Basically, I just want to know you being cured and Arnie is living with HIV. Right. Knowing that between you and your relationship, does that motivate the work that you're doing now as far pushing for, you know, cure research and funding? Well, of course it does. You know, I really want to see a cure for everyone. You know, I would love to see Arnie cured of HIV. But you know, and then on the other hand, it hasn't changed things a whole lot for us because on a practical level, yeah. Well, that's, I mean, that's a testament to how far we've come. Absolutely. Okay, so you had, I read that you had a strong resilience and optimism, hopeful, hopefulness for the outcome of your cancer treatment. Tell me about what you were thinking, what you were feeling as you were getting preparing for it, going through it, where and where does all that resiliency and positive outlook come from? Well, I think it comes from the, all of my years of having HIV. I mean, I've had HIV, you know, over 30 years. You know, I never gave up and I still don't. So, you know, I don't necessarily, like I didn't convince myself that I knew this would work. I just kind of let myself go with the flow and trusted in my doctors and, you know, it all worked out. But I just, I've never, I don't ever give up. But I don't think that's an innate quality. Like, did you have that quality when you were diagnosed with HIV and going through the thicket? I did. You did? Yeah. Yeah. So, there was something in you already? Yeah, yeah. Obviously, I think there was. Yeah, I just fight her and I don't give up. And what was that initial news like when you were told that they found a donor for you? That was, well, just one of the best days in my life that I can think of. Did they bring you into the office? No, it was a phone call because I was up here in San Francisco and he was in Los Angeles.  And what did the doctors tell you about the stem cell transplant procedure? What was that process like? Well, you know, they told me that it had a great risk came with it. You know, tell me it could be fatal. You know, if they see of hope, that's the main thing that they do are bone marrow transplants. And I knew a number of how many they've done, but that's a lot. And if they're one of the leading places in the country doing it. So, I imagine that was a, you had a sit-down conversation with Arnie, too, when you both kind of came to the same agreement, same page. Yeah, I, you know, like I said, I didn't, I didn't have to think about it very much. I just wasn't ready to die. So, I needed to do what I needed to do. That's kind of how I've always been.  And, you know, I just, I do what needs to be done. That's what I always have tried to do. I think, okay, because I'm trying to suss out a little bit of like what makes you so successful in that regard. And I'm getting a sense that you are not one to overthink and dwell. And you are ready to make a decisive action, a decision when needed, when the time calls. Yeah, pretty much. You know, I wasn't always like that. That's been something I've learned over the years. A lot of that learnings come from my experiences with HIV. But growing up to, you know, I was, you know, growing up in that small Southern town and was not gay-printly at all. That'll teach you resiliency right there. Sure did. Yeah, I can relate because I was definitely, I was such an overthinker.  Well, I've had to work at it, you know. Yeah, exactly. It's been a process you'll learn to just, you know, make yourself stop. Yeah, exactly. And certain routines help in planning and organizing and things like that. Yes. So now I want to jump to post-treatment. Can you talk about what that experience was like when your doctor set you down and gave you the results? Well, you know, I started getting the results of the HIV test early on that, you know, everything was just coming up negative.  So it was pretty immediate? Well, yeah, testing negative to HIV was very immediate. They didn't say it, you've been cured, but they just, you know, they kept me impressed at, you know, knowing what was going on all the time and, you know. Takes time to come to that conclusion. The longer it goes, the better it gets. Yeah, so I, let's see, it's been, it's approaching five years since the transplant and approaching three years since stopping the HIV meds. It's pretty conclusive? Yeah, yeah. I think they want to say after five years they're going to say you're cured. Okay, okay. So there's like a probationary period? Kind of, I think so. The doctors and I had planned on, I was going to stop my HIV meds a year after the transplant, but then the pandemic came along. I really was concerned about that and I didn't want to do it until I was able to get the vaccine for COVID until I waited another year. And is there like, do you have to do follow-ups now? Are they still? Oh yeah, I think probably for the rest of my life, but I went, the longest period I had gone was this last appointment was six months, but I see, you know, I see my infectious disease doctor, I see a dermatologist, and my hematologist. So a life not totally unlike those of us still on treatment? The life that I've been used to for a long time.  Well, what's next in store for you? However you'd like to answer that. Okay. Professionally, personally. Yeah, well I'm going to, Arnie and I are both going to the NIH next month for HIV cure boot camp. So I'm hoping to learn a lot there. Is that separate from the annual Martin Delaney Collaboratory meeting? Yes, it's like the day before. Oh, okay. Then we're going to go to that. Okay, so I'll see you there. Oh, okay, great. Awesome. And then after that, we're going to the RID meeting in Atlanta. That's the annual meeting for the RID. Right. Cab. So that's what I'm doing with that. And you know, I'm going to Honolulu this Wednesday from here for the Hawaii to Zero group. Yeah, so you're here with Mark Franca. Yes. The Dusseldorf patient for those of you who aren't aware. And then you're going to be both going to Honolulu to meet with Adam Castillel, the London patient. Right. Sign up kind of a tour of the three here. This would be the first time the three of us have been together. Fantastic. Yeah. And do you have a particular objective or goal doing this tour together? No. Are you fundraising? I think Mark and Adam have been doing fundraising in Europe. Gotcha. I'm more than happy to work with fundraising. I'm happy with that. But so far, I haven't done anything yet. We're all going to be on the stage and do a question and answer as a group, I think. Great. That's the plan. But I think Lish will be moderating. Lish is one of the principal investigators. There are three principal investigators of the HOPE Collaboratory. An investigator is just a fancy way of saying researcher. So the three main researchers for the HOPE Cab. It took me a year to learn what an investigator was as a community member. You get thrown in and you have all these terms and jargon thrown at you. And I'm sure as you're diving into the world. Well, exactly. Yes, it's lots to learn. I mean, I'm also on the community advisory board for RID. And the goal with my channel and what I'm doing is to hopefully be able to share that with the audience and give them little pieces here and there so they can start to learn with us and not feel so disconnected from the science community. Absolutely. Can you offer up any advice for those who are living with HIV who may feel that love relationships are no longer in the cards for them because of their diagnosis? Well, if someone, I kind of don't understand why someone would feel that way. There are a lot of folks when they're diagnosed who still lack proper education as someone diagnosed with HIV who thinks that they're going to die still or thinks they can still transmit it or life is going to be completely altered. Especially globally, I mean, the amount of education and stigma is on another level.  Yeah, well, you know, I think people just need to work on themselves and you know, whether that's with counseling or whatever and educate themselves as best they can seek out information and so that hopefully they won't change how they feel about that over time. And the HIV community is quite supportive. You know, I still I still very much feel connected to the HIV positive community. I don't think that'll ever change for me. It's part of who I am. Exactly, I agree. Has been more than half of my life. So it takes a little initiative on the part of someone living with HIV too. But the resources are especially with Internet and social media, even if you're living somewhere where you don't have local community based organizations. There's so much online. There's so many resources. It does take a little initiative, but it's there. Before we wrap this up, is there anything you'd like to share or talk about? Well, I want to get more involved in my social media accounts. I'm not not the greatest person on the computer, but I have a Facebook page. I need one to find someone to help me with that. You know, I like to do Twitter and X and Instagram. Is your Facebook page, is that public? And so I don't know how to make it. I wanted to make it like a public figure type page. And I don't know how to do that. It's just, I've got my own personal page and then I created a new one with City of Hope. We'll connect after this, and I'll see if I can help you with that. Okay, okay. Because I have one. Okay. Because I'm getting so many friend requests, and of course I have no idea who anyone is. It's helpful to separate the personal from the... Yeah. So, okay, so I'll put a link in the description box below to that once we get that sorted. So I can hopefully drive some people to your page. Okay, great. Okay, that's it. Thank you, Paul, for being so open and generous with your time and your energy and sharing a little bit about your personal life. You know, it may seem trivial to talk about some of your personal things, but I think there are so many people, I've learned who watch this and they don't have that at all. And their life, and for them it's like gold to be able to feel connected to you and to me and to all the research and science that's going on in the world. So thank you for that. Well, you're very welcome. I feel like I'm honoring to be doing this. Yeah, everyone else keep an eye out as I'm going to be interviewing Mark Franke, the Dusseldorf patient as well. I'll put up a card here as soon as that video is available. And you may also watch my previous interview with Adam Castille, the London patient. I'll put up a card here to that as well so you can watch that. To everyone on the other side of the screen, thank you so much for watching. Drop your thoughts, comments, questions below. I'm happy to follow up. Like this video if you liked it. Subscribe if you haven't already. Hit that bell so you get a notification every time a new video comes out. And please share this with anyone who might find value in this content. That's the best way that you can support me and my channel. Until next time. Cheers.


What's up everybody? Jason here for jaspyscagebrakes.com. We're giving away five Spectra R&B spots away with this 1920 Donner's Fat Pack break number eight. So first we do the break, randomize the customer names and teams that distribute the hits out Then at the end of the break we'll take all the customer names I bought in and the top five will win spots in the Spectra R&B Which will sell at Spectra Basketball. So do the break first and two to six eight times one two three four five six seven and eight Eight times Carl down to Carl So Carl did get the majority of the spots So it would be shocking to use in the top five or people sneak in you never know one two three four five six seven eight Eight times Okay, see thunder Down to the Nets. So again gonna stick to what you got Just of course to make it easier I'll do alphabetical order right now So basically Anthony of the Pacers and then Canard Terry With those teams there everybody else of course is there. Yeah, he's definitely Hall of Famer than real time No doubt. All right. Cool. Winner Brandy Clark, Bruno Fernando, Chuma, Kiki, Riggie and more base base base base There you go Switch scenes and let's go top five get in roll it 11 times out six out of five one two three four five six seven eight nine ten eleven Boom Carl Carl Carl. So there you go, man top five to you man. There you go. Congratulations, man Coming up next is the R&B with Spectra. Appreciate it