Magandang araw sa inyong lahat. Good day to all. I am Dr. Carmencita Padilia, one of the proponents of the newborn screening program in the Philippines. Join me in uncovering the wonderful story of the newborn screening program in our country. And together, let's zoom in on what makes newborn screening a comprehensive program for every Filipino here at newborn screening in focus. To ensure that newborns are truly healthy, they must undergo newborn screening, a public health program that helps determine if a baby is born with one of the more than 20 congenital disorders that can be picked up at birth. Its importance cannot be overemphasized. If any of the congenital disorders is left undetected and not managed immediately, it can lead to mental retardation and even death. It was integrated into the public health delivery system with the enactment of the Republic Act of 9288 or newborn screening act of 2004. Now, part of the PhilHealth newborn care package, newborn screening is being offered in more than 7,000 hospitals and birthing centers nationwide. It has also saved thousands of babies, now children and adults. This educational series is intended for health professionals who deliver services of the newborn screening program. Whether you're online or offline, this program aims to further enrich your knowledge in newborn screening and be able to apply the highest quality service to Filipinos, especially during challenging times. We will discuss the very process of newborn screening from the moment the baby is born and into the continuing care available for newborns found positive. We will also zero in on the features and manage and management in each of the conditions included in the newborn screening panel. We will also interview patients and their parents. And in keeping up to the challenges, talk over how facilities and centers manage to give quality service despite the limits brought about by the COVID-19 pandemic. This program is the newest educational platform for our newborn screening coordinators, one in every 7,200 health facilities throughout the country. We also hope that this series will also benefit the health professionals, physicians, nurses, midwives, nutritionists, medtechs, as well as the students in the health professions. So take a seat, get comfortable as you're in for quite an adventure here at Newborn Screening in Focus. I'm Dr. April Grace Burboso. I'm a pediatrician with a subspecialty in clinical genetics and I'm currently the newborn screening coordinator of Dr. Jose Fabella Memorial Hospital. Ang Dr. Jose Fabella Memorial Hospital ay naglilingkod sa mga nanay na nanganganakan, katiling usually sa Manila, Greater Manila area. So we have about 400 bed capacity. We have 30 newborns a day roughly. During the height of the pandemic, we had additional areas which include the areas for the suspect, for the COVID suspects and areas for the COVID positive mothers, for the COVID positive babies. So many areas were added. We had a number of trained staff during that time to do newborn screening sample. At that time, because there was increase in the number of areas that had to be serviced, there were times that we lacked the trained employees on the newborn screening collection. At that time, there were some delays in the newborn screening sample collection and at that time also there was an increase in the unsatisfactory and contaminated sample. So what we did was as the newborn screening coordinator, I talked to the staff, to the nursing staff, to the midwifery, to the newborn screening staff. And we looked at the problem and we saw that there were lack of trained newborn screening midwives and nurses at that time because of the increased areas. That's why we requested for skills training from the newborn screening center NIH and from the Department of Health newborn screening unit. Now we have more trained newborn screening staff at Josef Abela Memorial Hospital. During the time of the pandemic, we learned that of course the mothers will continue to give birth and babies will continue to come. Our newborn screening services couldn't stop. Also, we cannot compromise the quality of our newborn screening procedures and our collection methods. We learned that by coordination, talking to the staff and asking for help from the different stakeholders such as the newborn screening center NIH, the newborn screening reference center, will be able to overcome that problem and we got the answers naman in the response from the different units. Sa newborn screening, alam naman natin ang goal niya is to save the lives of babies. So timely newborn screening in order to save the lives and also to maintain quality of lives for the babies. So you shouldn't be complacent whether it's pandemic or not, which should do our best to do timely and efficient collection of the newborn screening samples. So we'll be able to screen the babies correctly and save them on time. For this episode, we will talk about newborn screening in the time of COVID-19 pandemic. The local transmission of the coronavirus disease 2019 or COVID-19 in the Philippines resulted in rate adjustments in the healthcare arena, including the newborn screening program operations, where timing is very critical. With a total lockdown, temporary closures, and modified schedules of the official courier partners, the transport of newborn screening samples to the newborn screening centers were halted. In this episode, we have invited two special guests to share with us the challenges they have experienced and how they address this to facilitate continuous quality newborn screening. Here with me to discuss this topic is our nurse from the newborn screening northern Luzon, Anthony James Almazan, program manager of NSC NL. And we also have Michelle Meg Gilaran, program manager of the newborn screening center in Mindanao. Welcome to newborn screening in focus, Sheila and AJ. Let's start our conversation. Let's start with how long have you been with the program? Sheila? Ah, hello ma'am. Magandang araw po to all the to-you-chancellor Padilla and to all the viewers of TVU screening series. Okay, I started newborn screening in newborn screening center Mindanao in 2009. So magde ten years na po ako sa programa. And I've been through many challenges na rin sa nil sa dito sa Davao. Ten years, ma'am. Actually, I don't have any body here. So talagang, adventure talagang up na ting sa Davao. Pero I'm not really new sa newborn screening. I have been exposed to the newborn screening program before 2009 at UPI's machine. Thank you. Thank you, Sheila. What about you AJ? How long have you been with the program? Hello daw, good afternoon and to all the viewers po. Though I've been with the program since NSCNL started in 2017. So I'm four years in service now po. Okay, so ang tanon po sa inyong ngayon ay. What is different in terms of your responsibilities? Maybe you can say a little about what is your overall responsibility in the center. And then how was it before COVID and now under COVID. I'll start with AJ. Okay, daw, I am the program manager of NSCNL. And our responsibility is to check on the proper implementation of the program in our jurisdiction, which is regions one and two. So with that po, we are responsible for monitoring, evaluating the program. And as to the difference po na pre-COVID and this COVID experience. Actually sabi ko ng first week daw ng ECQ parang it's been a month. So parang ang hirap ng COVID experience. Dahil unang wala kaming ming sample na na re-received. So parang hirap mag-received ng sample from the NSF. And also we have to think of the operation of the NSF also. So dalawa po yung iniisip namin. The NSF and also the NSC operation. Okay, so dalawa yung pillow problema nyo. Just for our viewers ang tinatawag ng AJ na newborns na NSF. These are newborn screening facilities. These are the hospitals and the birthing centers collecting the sample. Yung kanyang pinanggit naman na newborn screening center. This is actually the laboratory. And your laboratory is based where? Where is the center base, AJ? Doc, we are located po here sa Mariano Marcos dito po sa Patap City. Kailakos, northe po. And how many hospitals and how many facilities are you servicing? Total? We are servicing more than 700 hospitals po, in the regions 1 and 2. Okay, so thank you. What about Kenshila? Ma'am when I started in 2009, actually, covered ko po lahat ng administrative aspect of the program from the accounting to the procurement, to the human resource development, even to the program development. So medyo malarok talaga ang aking part. So meron kaming program at laboratory manager who handled the laboratory part. But as I said medyo malawak talaga ang administrative part. Challenging na noon ng wala pang COVID, pero naging medyo doble challenging ng COVID na. Kasi mahiap ng sa career, wala ng career, meron pa kaming ihandle ng human resource na hindi mo dapat sila. May mga working arrangement na may implement ang civil service to prevent COVID infection among the workforce. Tapos meron pa rin kaming mga laboratory procurement issues nung time niyan kasi wala ng career to transmit the sample, as well as we cannot procure the supplies and bring in the supplies. So wala kasing airline, operations airline. So medyo may hirap talaga. Presently, sa awan ng Jaws, hindi naman nag-close down ang center. Meron din ba ang positive cases nung time na yan nung juring kasagsagan ng COVID, pero so far hindi ko nag-close down ang center. Thank you Sheila. So just for the benefit of our viewers, I just want to share with you that the structure of the newborn screening program is such that the 7,200 health facilities are actually divided in terms of location and as to where they will submit the samples. So as you've heard from AJ, NSC NL, NSC Northern Luzon, received samples from the hospital working centers of Region 1 and Region 2. As for Sheila, who belongs to the NSC in the now, they covered the whole of Mindanao and actually they have about 1,800 facilities. Sheila is sitting there. I think 1,300 if I'm not mistaken. Yes ma'am. So this is something probably that most of our viewers are not familiar in terms of operations, but you can see that the operation of every newborn screening center is really very complex and now with the COVID became more difficult and that's going to be part of our discussion on how we were able to adopt the program. So let me just talk about the staff first. Before we go to the challenges for the program, kumusta naman yung staff nyo, AJ and Sheila when COVID struck a year ago because it's been a year now. How would you describe the feeling, the spirit inside the newborn screening center? Let's start with AJ. Yes. At first po, very anxious lad ng staff dahil takot silang infect ng COVID and what is good po is no one got positive ng COVID-19 from our unit and we remain operational all throughout the crisis and as of now po, staff are physically, socially and mentally healthy and we follow ating health protocols inside and outside of our hospital or work premises po. What about in India now, Sheila? When you said AJ, na dundin yung first few months of the COVID pandemic and dundin yung fear and dundin yung uncertainty, yung anxiety and yung worry then for the other than the staff yung program operations paano ipadala yung samples paano ipadala yung matanggap yung sako sa amin. So aside from the health ng staff namin, may program concerns din po ma'am. So we deal with it every day as the days passed by nung COVID-19 at nag-ahalap kaya yung solution nakaupakaming yung solution na nadoo na yung confidence and confidence and uncertainty nandun na rin yung hospital who has provided so much with the safety measures also management and si Minda now mismo administrative that provide safety measures. So medyo na bawas na naman sa ngayon yung fear and anxiety. Pag-usapan natin isa-isaya na Sheila. So na rin nyo, pareho si AJ and si Sheila na meron talagang mga agam-agam nagsimula ang programa at sabi ng AJ nung unangata walang sample dalulang courier. Yalangan natin naintindihan ang proseso para makalati ang sample sa laboratory ay the courier and nung nag-lockdown pag-imang issue. But I'd like to share with the audience that if you remember from episode one I explained in that lecture that the coverage of newborn screening in the Philippines actually only dip by 12%. So parang sinasabi ko dito na bago nag COVID ang coverage ng newborn screening sa buong Pilipinas nasa 92%. Nung after COVID, after one year of COVID we went down only by 12% and really that is really a that's amazing. Nakakatawa talaga hindi tayo mo siya dumubaba kasi yan dahil sa lahat ng ating newborn screening center ay gumawa ng paraan para mapaksilbihan ng hospital and boarding center. Jana atin magsisimula ating episode ngayon pag-usapan natin kumusta ang operations ngayon under COVID-19. So AJ, maybe you can share maybe what were the most challenging cases that you had in either Region 1 or Region 2 and give us the join me for these very specific challenges. AJ? I remember dog yung meeting namin with NSRC no March 17, 2020 that parang may advise na in case that NSC will not receive samples we might close temporality. So with that fear ko parang nagsip kami ng strategy how to facilitate ating receiving of sample from this NSF. So we experienced one time ang nareceab lang namin na sample is sample lang so with that number of sample parang inisip namin sayang your agent but still we have to test them so sa amin sa program with that issue ang inisip namin yung pang partners na pwede like the Philippine National Police who are having their duties at the provincial border sila po yung aming kinausap para i-allow yung mga newborn screening facilities nearby to send samples sa amin directly and also for the province of Ilocos Norte we talked to all the hospitals na magkarao ng drop of points among the area para yung mga malalayo na hospitals drop to the hospital near our area and then ipipikap po siya na aming mga staff doon so from there dun po kami nakapugot ng mga idea namas implement pa yung aming advocacy and also yung strategy namin na yung newborn screening by and hand strategy. So AJ sabi mo, you have drop of points so how many drop of points did you have in region 1 and then in region 2? I think for region 1 we have identified 6 for Pangasinan and I think 5 for La Union and also 5 kasi ang geographical area kasi ng Ilocos is pahabap po so dun din yung isang challenge sa amin especially that Ilocos implemented one of the most strictest community quarantine sa Luzon so ayun, kailangan nalagang aming mag accept ng drop of points among this area and for region 2 I think we have I think 16 po din na facilities na from different provinces po including those that are considered po na So Pangasinabi nyo where as before pinipicap sa Bawa to hospital this time yung hospital mismo ang nagdadala ng sample sa drop of points and with that we will go to 5. Yes po. So sa Mindanao, Sheila how did you handle kasi laki ng Mindanao and you have how did you what we did during the first few months is to address muna yung samples within the city so inuna na yung namin yung samples within the city we call we have several big hospitals so at least yun lang naman ma-address namin so continue yung operations na lang mga new birth screen dito sa malaking hospital like SPMC, our own dali lang so din na transport dinadala lang nila from the new birth screen collection ng hospital para saan malaking samples na siyang at 36 spot that time per day na-address namin within the city we ask the hospitals or the facilities inside the city to bring the samples to us fortunately din merong isa 2-3 years na operational pa at that time na they work within the city lang so yung na-address namin yung facilities within the city so okay na siya so we accept samples within the city then we go outside the city so pang nag-outside na kami like pijon 9, 10 11, 12 karaga and arm so na una actually nag-ask kami assistance from DOH regional offices so nag-response pijon 10 pijon 11 pijon 12 kasi di they can transport the samples via land so madali lang po nito mam so they use their own transportation first what they did was call at na ng aging may drop of hospitals then or points sa kanilang provinces so nagset nagset silin ang hospitals where they where the facilities can drop off their samples to these provincial hospitals na DOH will schedule pick up of the samples from drop of points then the regional offices the NBS team from this regional offices bring the samples to us so kung region 10 ka ang office ng regional office so they travel first they pick up the samples around the kanilang provinces then they will travel this to us sa Davao dito din ginawas karaga from butuan inikot nilang nearby facilities sa butuan so nabild nilang sa Davao the most challenging duns arrangement na yun was sambuanga kasi they have to fly we have to fly in the samples kung land trip kasi ma medyong matagal siya so what we did we tapped the Philippine Air Force to bring in the samples ang medyong difficult na dun kasi hindi araw-araw yung schedule ng pag-flying ng kanilang aircraft so meron talagang schedule ninsan pumaabotan isa sa isang lingo ninsan sang besi sa dalang lingo but we really try to bring the samples sa Davao yung regional office ng sambuanga pininsula nag-tap din sila ng mga drop of points at simbuanga pininsula para sambuanga city e-endorse yung samples sa Philippine Air Force ako sa Philippine Air Force if applying dito sa Davao ng mga samples so yun yung na-dress namin mga outside the city so from every week ma may delete reek kami ng regional offices yung arm mam yung medyo ang pinaka active nung time na yung isang may pop-up so they give the samples to kagayang dioro to si regional office region 10 si H-10 so si H-10 pinapadala dito sa amin meron din ng mga malalaking hospital mam like Subtown Kadarat Provincial Hospital na sila na rin ang nag-gather ng mga samples within the area ako sila na rin ang nag-pop nag-transport ng samples sa amin so yun mam ang arrangement namin before wala pa for a year thank you sila alam mo nakakatawa paking ganyong story nyo na kasi if I go back to 25 years ago nang nagsisimula pa lang ang programa ako ng tanong ng mga hospital e pa na dadalin ang samples sa laboratory and para bang it became part our responsibility to make sure that we pick up the samples kaya naging proseso natin yung courier service but I think itong COVID-19 pandemic has shown that this is a time when we just have to find ways together at takita natin sa dalawang example yung the society getting engaged in the solution identification of roughly points big hospitals bringing the samples for other hospitals and that para bang kailangan gawan ng paraan hindi pwede hindi hindi and puwede naman pala talaga kung talagang pagsasabasa mahi natin talagang examples and na rinig natin kaisila yung challenges every region as a challenge and the people will have to work together with the Department of Health and the Newborn Screening Center to come up with the solution at halo-halo na yung ka dila solution sa pinigay so na rinig natin ang police na rinig natin ang Philippine Air Force babalik ako ngayon k A.J. hanon yung hinandal ang batanis ay ganda sobrang hirap actually ni batanis seems talagang total lockdown for how many months so what we did po is to contact yung ating nbs coordinator sa batanis general hospital dahil three facilities lang po ang active doon batanis gen itubayat which is far from the main island ang batanis so sobrang hirap ko talaga kaya we have to connect also with the provincial DOH office and the provincial health office of batanis para lang makakukuhan ng solution and they gave us the idea na what if we contact natin ang Philippine Navy so with that po putin na lang po that time ay schedule ang Philippine Navy na pumukunta once a month so with that medyo medyo we felt we felt overwhelmed kasi parang we will may support kami na makakukuhan from batanis to test the samples from batanis and what is good pa doon is with the health ng DOH region 2 CHD2 mas na facilitate namin yung pag-receive ng sample kasi it's either Philippine Navy dadaan ang Santaana kagayan then the regional coordinator doon sa region 2 will have to go to Santaana kagayan and then isa-send niya yung samples through LBC doon yun yung isang way then the other way naman is si Philippine Navy will may may port sila sa Laon doon and then from batanis to Laon doon to CHD1 naman nang to pick up sa 4 point sa San Fernando Laon doon and then the NBS coordinator to region 1 will be the one through LBC or yung ating official career partner po then with that arrangement doon pa namin na facility yung yung sending ng sample from batanis it takes time pero nakakatawa pag-receive namin ng sample dito siya NSCNL kapag nakita namin na yung envelope is from batanis sa around 2 ang 2 ako kami dahil will have a chance to save the babies so ano po very nakakahapin na nakakapagod siya pero it's it's worth it naman po Thank you A.J. na-renid nyo na mo lang batanis hanggang sa buhangga in the new bursary ni program sabi ko nga ay we are in 7200 health facilities and with COVID-19 we just had to go back to the drawing table and find out paano ba natin pararatingin ang sample mula sa boarding center papunta sa laboratory yung pala ang pinagusapan natin ang unang asusunod natin tanong kasi pinagusapan natin yung sample mora sa hospital pukunta sa laboratory pagpunta naman tayong ngayong sa results meron ba kayong binago sa steelo niyo ng pagsabit ng results kasi ang na-renid nyo na both in northern Luzon and in Minta now in all of the laboratories ilaran nila ang samples no question about that so meron ba nabago sa pag-release ng results let's start with Sheila siyempre mga mo lang career so ginawa namin balik taran kami na DOH regional offices pag-mind na transports nila dito ng samples ibigay din namin nila namin yung results sa kanila so kung sino doon ang pwede nila nang madistribute na results una pwala din lap off nila sa mga drop off points so kung sino doon sa drop off point pwede nalakunin yung results doon mam mam kasama na kasama na po dito yung MBS kits kasi may mga orders pa nung time na yun eh so biditigay namin sa DOH regional offices sa kung kailas na kung puta dito i-exchange namin din dibigay din namin ng results normal results tumam ha and yung MBS kits nang procurement so balik taran kami ma kung ano ang tumating sa amin ibabrik namin sa kanila tapos nila rin nang didistribute doon sa kanila jurisdiction or provinces What about in Northern Luzon AJ How was it? Yes, in Northern Luzon naman po since may isang courier na talagang very workable with whole regions ng one Ilocos and kagayan what we did po is to provide tracking numbers and new board screening facilities and if may mga hindi dumating po sa kanila we advise them to call immediately yung aming result officer and then kung talagang hindi po makakatating sa NSF yung result ang ginawa po namin kinoordinate po namin siya sa provincial DOH office through our through the DMOs that are assigned to all the provincial DOH office sila na po ang nabibigay sa mga areas ang panilak responsibility po nila Thank you AJ I'm so happy to hear always the Department of Health being part of the picture because that is exactly the purpose of being part of the public health program It's a program ng DOH DOH is the lead agency in the implementation of the program at nakikita nyo naman dito kung papano napakasupportive ng ating mga regional office na maparati ang sample at madala naman ng result yung kanin ang binabanggit nishila na ito yung normal results kasi lahat ng result habinabalik namin talaga sa hospital so sinasabi nga nya pag nagdala ng sample ang DOH from the hospital hindi naman na result so ang tanong ko sa inyong ngayon what about the patients with a positive screen paano naman naging nahirapan pa kayo sa pag refer ng paciente because of the COVID-19 I'll start with Sheila may nagbago bakta process of referral nung umpisaman sa first few months of the pandemic mahirap talaga ma talagang i-recollect your patients lala na if the results need confirmatory testing so what we did was ginamin namin lahat namin na sa disposal namin like phone calls kung kailangan namin sa tawagan through mobile kung may positive form result unapot at nang tawagan talaga namin in hospitals kung ang result kailangan significantly elevated at kailangan nang confirmatory testing we also call the patients the mothers so kung further management we do tele consult or even videoconferencing with the parents and also we involve the hospitals and the health professionals at the patient so nung pang una talaga namin ginagawa initial recall of the patients with positive results yun mam dun sa mga hindi namin makontak kung geographically challenge ang kanilang area what we did again DOH regional offices parang very active talaga nila mam nung time ng pandemi so we refer these patients na hindi namin makontak through phone call sa kanila tapos dito the local tracing itatrace nila yung mga patients sa addresses nung mga patients so e-endorse din nila ito mam sa mga tinatawag nila na the patient nurse deployment project or NDP nurses na sa mga local barang guys health offices so ninyutilize nila ito mga nung nurses mga midwides local health barang guys officials or mga midwides nang nagtatrabaho local sa kanila so nila nagtatrack of patients para lang mag-recall ma-refer sa amin for management so at also mam nung sa management na nang mga patients for CH let me just mention ma for CH confirmatory test we asked the local in herbal hospitals na pwede mga accommodate nang nila patients kung very basic lang yung mga test for CH for gentle hyperthyroidism sa CH naman mam ito po yung kailangan so what we did was since nila nang isa lang ang confirmatory testing dito so napadala sa amin kung ang DOH merong schedule delivery sa amin nerequest na namin na nila kung pwede kuna nang NSF yung patient na kailangan of confirmatory testing yung DOH napadalini nila ito sa amin tapos kami na magpapadala dito sa dapa for those disorders na kailangan confirmatory testing yung maglopin nopati and metabolic disorders yung hold namin tumaw because we don't have careers at that time to send sa samples yung biological specimen tumanila kasi urgent dito tapos next day delivery so we know namin mam merong kami bakulag pero still urgently called this cases tapos in assess nang kunila immediate assessment whether attending practitioners so in assess ko talaga ng practitioners we still inform these patients that confirmatory test will be done when trouble restrictions access or at least allowed so sinasabihan pa namin yung paciente mam sa ngayon nili namin kayo makapuka na ng specimen for confirmatory testing pero later on mo balikan kaya namin para kuna yung mga specimen nito for metabolic disorders naman cases were managed based on clinical assessment by our metabolic specialist hence metabolic management was initiated immediately even without performing the bio chemical metabolic workup so for him maglopinopathy cases immediate referral to a pediatric hematologist were advised so that even if confirmatory testing was not done these babies would be assessed and managed appropriately by the specialist so yung pung kinagawa na namin mam habang hindi ko namin niyo ko confirmatory testing so I think recalling the patient for now this time for confirmation and further referral is as complex as bringing the sample to the center but about in your case AJ how did you handle the recall of the patients as well as the management sa amindok same with mam shila yun lang yung recall of patient naging double yung effort for doing that kasi akot yung mother na pumunta din sa hospital so first we have to counsel them the importance of that having the repeat sample having the confirmatory or being referred to a specialist we have to we have to counsel pa or the mother or ilang panami pagsabihin yung mga parent para lang mag-comply sila sa recall and also yung ano po the same din po dun sa ginawa nilang mam shila for the confirmatory especially kung yung patient is galing ng ilakos norte ang ginawa ko namin we ask for the assistance ng aming host ang Mariano Marcos to transport this samples to the confirmatory testing center in Manila para timely and para ok yung quality yung sample pagdating sa Manila kasi ang difficult dun is pwede yung masiray yung sample kasi may mga times na pagpinadala through courier late ng dadating ng Manila so the facility will have to collect again the sample so kaya yung po nag-request kami ng transport assistance for for the patient and ang isa po po is with the aid of the DOH pa din po na we requested for ambulance conduction to reach those patient na mahirap or malayo especially those located in geographically isolated areas thank you AJ no I think with your sharing both you and Sheila it was very clear that the COVID pandemic really affected the operations of the new birth screening program but you've shown that it is possible and you've actually tapped so many resources to make sure that you're able to perform to fulfill your vision and your mission for the program so we've tackled actually moral and how it's affecting the staff and we've discussed how samples how to reach how to reach the laboratory we've also discussed how to recall the patients and release the results what are other things that you would consider as additional challenges because I think we're here for another year na mga ako mga hindi naman tumagi-end siguro ka-agad mo so do you do you see additional measures that are needed to ensure that we will be able to cope for another set of months in running this program let me start with AJ AJ Doc if we all remember no November and December region 2 suffered also yung massive flooding so that's an additional challenge po sa amin noon so madami po kami late samples na nakuha from the province of Isabela and kagayan and of course hindi na namin mag-send agad-agad ng sample dahil hindi talaga possible so what we did po is to really come up with a regional contingency plan in order to in order to facilitate the sending of samples and your operation din na ating newborn screening sa region namin sa one and two po so yung aming regional contingency plan was drafted together with our partnership with the DOHT we also have our continuity clinic and also ating mga G-6P the confirmatory testing center so yung po yung sa tingin po is makakatulong sa amin to cope up with this challenge actually last kahapod po kahapod we had a meeting with our follow-up team we were planning to conduct sana I mean the follow-up long term and short term follow-up po so we are trying to collaborate na para ma-softend yung para ma-softend yung yung operation ng follow-up sa region dahil bumabapo yung aming return rate so with that kailangan talaga ng collaborative effort with from the different partners to address these issues sa amin sa center hindi talaga namin kakayanin ko kami lang po okay thank you AJ the realization that you cannot solve the problem alone is already a first step and the development of a regional plan with the other stakeholders is actually really planning for the future and as you said you just have the COVID pandemic you had the floods and you know the Philippines will always have disasters even after the resolution of COVID-19 pandemic but about minda now do you first see any other challenges with regards to the physical health or health mental and health status of our staff the vaccination program of the government really helps na mapanat ang kalooban ng mga staff na made in terms of risk exposure sa hospital tapos yung fear na when they get infected even outside at their homes and at their offices or outside their personal activities just na ma normal activities outside the office so yun yung welfare na our staff okay na yun ma with the full support of the hospital nagkakasakit ko kami in terms of COVID kumay symptoms like anong kami na ralang daman na mga sakit ang doon yung full support may meron kami PHS a personal health services na tele-consult na very very responsive sila kung meron kanong cases na kung bulang kung ting kating nang lalamunan pwede ka agad makakasult sa kanila via FB messenger so you don't have to go there physically so meron silang medium to assist us so yun yung sa health na our staff pangalawa medyo bumabalik na rin po yung operations ng career medyo di na ganong kakirap ang aming results mag-received ng results even confirmatory testing medyo may hiwanag sa tunnel mag pangatlo the online doing tasks online really helps us to connect with other offices and other partners outside the cloud so we use that to our most minamaksimize namin na online facility so na na online meeting kami consultative online DOH na kakondak activities online so at least meron din connection hindi nawa wala yung aming connectivity pa ang totoosend kasi due to the travel restrictions tapos merong isolation ang mga places hindi nga in dabao so na dun ma'am so hindi naman masyado kami affected emotional and physical medyo bumabalik na sababong normal hindi na gano sya ka kahira gawin yung mga tasks namin so yun ma'am napakansin namin kaya okay parang rinimind lang kainisila even we're succeeding in the operations of our program the mental health component must be still a priority so that the trust of our staff in the program will not diminish in the trust of the hospitals and all our birthday centers will be there just before we go to the final words I'll be asking AJ and she let to give the final words I do want to express my thanks to the Department of Health yun na kaka tabanan log itung pinagusapan natin yun na each time merong silang banggiting strategy sinasabi nila na kasama namin ng Department of Health I want to thank you and I'm sure it's happening in all of the regions maraming maraming salamat sa inyo at sa isang episode kaya naman nang kami interyuin para malaman kung how was it to run a program in the middle of the pandemic so let's go to some final words andami natin natutuna na dito ngayon and thank you thank you to AJ and Sheila but I'm sure AJ and Sheila will have some final words we'll start with Sheila maybe addressing our the other new board screening coordinators the screeners and then all the rest of the viewers but remember that all the coordinators are listening to you ano bang mensahe mo sa kanila Sheila take home message ko lang ma'am actually be resourceful and always stop others seek the help of your co-partners or stakeholders in the program kasi based on our experience namin meron kalagang tutulong matutulong sa'yo hindi ka nag-iisa sa ganitong and before or your journey mo sa pag-bigay ng quality new friends screening sa inyong kalayan o sa mga parents general public mangi inyongkala ng tutulong meron tutulong at tutulong sa inyong yan pumang and always be safe and practice the safety measures even not only in your workplace but also in your personal life and personal activities So that's the best way to stay safe in the COVID pandemic na umang. So we say always practice safety measures. Yanong umang. Naraming salamat, Sheila. What about you, AJ? Final words? Yes. Last year, daw, I requested my staff to write something sa isang paper. Two things that they miss and two, I mean one thing that they have learned from this situation. So in most of them, nag-answer na ang isang, ang isa talagang lesson na na kita nila with this kind of situation is yung closeness nila with the family, the funding, also the funding yun ko yung mga namin nila. And one year after, I made them write again, one thing they have learned, and mukhang the same po yung talk nila. And with that, para ang lesson naman na ang final word ko for this program is the NBS program yung main resilient. Parang mas naging inobative pang ang mga tao ng yung foreign screening. And with this experience, during this unprecedented global crisis, parang we still provided a lesson of hope and commitment to the program. So with this po, we are one for the NBS program. Thank you, AJ. Maraming salamat sa ating dalawang bisita, AJ and Sheila. Tutuono na ang COVID-19 pandemic ay naging isang malaking hamon sa ating healthcare system sa buong mundo. At dahil sa ating public health priority ay nag shift sa response sa pandemic sa ibang pagkakataon ay nakakaligtaan ang ibang programa. Pero sa araw na ito sa ating episode ay napakita na ang ating public health program na newborn screening na hindi na tinag. Dahil sa ang mga nagpapatakbo ng ating newborn screening center, ay nag-isip na mga paraan para matuloy ang ating programa. At sa mga nila, be resourceful, be hopeful, be innovative, at kung sama-sama natin sa sagutin itong mga problema ang ito, itong mga hamon na naririnig natin ay kakayani natin talagang mapatakbong ibang programa sa loob ng COVID-19 pandemic. Muli, maraming salamat kay AJ and Sheila. Managing the newborn screening operations at different levels was and continues to be a tough task. We heard from our guests how the newborn screening program leaders quickly stepped up to respond and coordinate mitigation plans effectively. Throughout the pandemic, newborn screening centers, regional screening teams at the Department of Health Centers for Health Development, newborn screening continuity clinics and newborn screening facilities in the country remain operational, facilitative and employed various creative strategies while observing standard protocols in continuously giving quality newborn screening services. With the COVID-19 pandemic, challenging healthcare systems all over the world, public health priority shifted towards response to the pandemic. The newborn screening program has also felt the effects of this equation and had to adapt to continue its costs. Through the innovative strategies, solidarity and resilience of the different stakeholders of the program, delivery of service and care for patients has continued in these trying times. To our virtual audience, please send us your comments, questions or the list of topics that you want us to cover in our succeeding episodes. Email us at info at newbornscreening.ph or you may tweet us at newbornph or also include the hashtag hashtag ENBSPH. Before we end, I want to again take this opportunity to present to you the new addition to our tools in learning, our ENBS mobile app. The ENBS mobile app is a one-stop hub for all newborn screening health workers on everything they need to know about newborn screening. It also features a rewards program that our health workers can use to earn points and use it to claim shop vouchers with our partners. If you have already downloaded the app, answer the question that we will send to your inbox to earn those points. We continue to improve our services as deemed necessary by the emerging challenges through an open dialogue that our experiences in newborn screening. It is our hope that through this program we extend the sharing of knowledge with greater reach, empower our frontliners, improve connectivity with the newborn screening coordinators and most importantly, provide unparalleled service to every family. For our next episode, we will start to focus on the different conditions included in the ENBS panel, starting off with congenital hypothyroidism. This and more here in newborn screening in focus. Nothing is more precious than seeing a child grow healthy and normal. Let's realize this through newborn screening. Newborn screening is a gift of life. Makalipas ang 24-hours, bak si baby lumabas. Go win natin ng ENBS alin sunut sa batang.


Good day and welcome back to the Asperger's Growth YouTube channel, the home of your autism dating theory of autism related content. Yes, I haven't quite nailed down that tagline but we're going with it. So I just thought I'd make this video because it's been some time since I released my last video of my dating and autistic series. The thing is is that over the well to be honest throughout my life I have had a lot of difficulties with mental health. I have quite severe depression, anxiety, dissociative disorders and also quite recently we're at really big issue which is a binging disorder. All of this kind of stuff compiled into one as well as me starting a full-time job as well as me trying to go to the gym regularly to kind of keep my mental health. I really haven't had a lot of time and energy to create content. The specific part of creating content I find difficult is the stuff around it. The actual thing of me just getting in front of the camera chatting to you, chatting to everyone, it's easy for me, it's not a task, it's the setup, it's the trying to get all my lighting, three-point lighting sort of set up properly or my microphone and my camera sort of sync together. Oh god, there's so much stuff in that preparation stage that due to my difficulties with executive functioning, mental health tends to make it a lot worse. I really haven't had enough energy to start that process. You know if I had someone who kind of came in and just like shuffled the room about and sorted out all the lighting and got me and just said, hey Tom sit down you're going to record a video then that would be fine for me. The second thing that I really struggle with in terms of sort of scheduling myself and scheduling content is the amount of time that I have during the day. I have a very limited amount of time and if you've followed my content for enough time you'll realise that I heavily gravitate towards that longer form content. Not on purpose, just naturally because of the way that my brain works, I'm quite a slow thinker, quite complex and I like the detail in conversation and so they tend to be a lot longer and one of the downstream effects of that is that editing is much harder. Even if I was to edit stuff down to about 10 minutes I'd still have to go through the entire clip and sync the audio and do all of this stuff that most YouTube creators do and perhaps that would be easier for me if I didn't have a full-time job and I didn't have these mental health conditions and I didn't have anything else going in my life.  I need to try and cut my videos down a little bit more so that I can produce on a more regular basis and not miss these deadlines that have set me and, you know, get anxious and get depressed about it because I didn't, I haven't managed to stick to my schedule. So in order to try and tackle this I've ditched the whole tripod set up, you know, with me with my desk. It's very messy right now, it's one of the other preparation issues that I have. I have to clean. God, I have to clean my room. Disgusting thought. And so I have invested in a smaller ring light that I can have on my desk. I've got one of my other lights which is sort of over there. And for the time being I also have this new camera. I have a new phone, I got the new iPhone. I thought it was a brand about time for me to start investing back into my media work. I've been investing a lot in terms of public speaking and my time. My time's been a big part of my investment. And so I've splashed out and I got a good camera basically. And you'll have to let me know it's got three lenses on it. You've got one in the free tri-bid, tri-bred Illuminati camera set up there. And I've got it on 0.5. So if it looks a bit weird or different and you don't like it, please let me know. And if you really, you know, share with me your thoughts, please. Do you think it's a good trade-off for me to get rid of that aesthetic setup and maybe sort of looking to get like a green screen or something along those lines to put behind me? That is more preparation. I try and make as many adjustments as I can. I just realise that, you know, I've started up the YouTube join button and things like that and I really want to get into content creation again and try and build my work through my videos, through my podcasts. And, you know, this camera and this lighting system and this setup, it's a lot easier for me to kind of just jump on and record. So please let me know down in the comments. I've got something else that I need to address. Oh, I don't need to, but I can let you know. I am also going to be starting a series of different videos that I'm going to try to do. This is a test period. It will either make or break me. But I really want to put the effort in for you guys. And throughout the, I don't know, the past couple of months, past year, there's been a steady rise in the amount of people who are following me and commenting and emailing. And I really feel like I should, you know, do my part and try and produce content on a more regular basis. And well, I want to. So we have three different videos that I'm going to be including. I'm going to keep the Dating an Autistic series as a running thing because I feel like it's, you know, a lot of the views and a lot of the people who are coming on to comment on and share my work, it's always around these videos. So I'm going to try and keep this as a running series, maybe release it every week or two weeks depending on how the timing works out with this new schedule. So we're going to keep those. I'm also going to be doing a bit more of a fun video which I'm going to be reviewing, actually Autistic TikToks. I got inspiration from a YouTuber that I really like. I'm not going to mention their name because I'm sure that there's quite a few people who don't like them. But they do, they do have a good format. So we're going to be dealing like, yeah, actually Autistic TikToks with a little bit of a Reddit story. And I'm going to be commentating on that for the best of my ability, giving my reactions, etc. And yeah, at the end, go for a Reddit story and sort of reading it out and giving you my thoughts on it. So that's one part of it. That's one sort of video series that I'm thinking about. Another one of the things that I'm thinking about is short videos on autism content. If you follow my Instagram account, you know that that's, that's the place where I've been the most in the past year or so, trying to grow my following online and on Instagram so that I can get a few, few higher, higher profile guests for the podcast with the, with the follow account that I had.  So we have those autism videos and they're going to be short and they're going to be based on the Instagram posts that I do. It's not going to be word for word, of course, because that would be like a two minute video. And I don't know if I can handle uploading a two minute video other than the YouTube shorts. So we've got two of those videos, the actual autistic TikToks. We've got the autism content. And I'm also thinking of doing a Q&A, specifically a dating Q&A because I get a lot, a lot of messages, a lot of emails, a lot of comments asking me about specific situations. And the thing is with, you know, any, any type of stuff that you do online to an audience, it has to be somewhat generalized.  It's just how it goes. You can't make general statements without it not applying to some people. So we're going to do this, try out this Q&A and I'm going to release some videos this week, hopefully if I, if I can back up my words and we'll see how that goes. But yes, thank you. Thank you to anybody who stick, stick around through my long, I think three month wait between videos. It's absurd. I'm so sorry. And thank you to, to anyone else who's joined in and, you know, join the channel and saw these cool videos that then came to my page and went, oh, where's the videos at? Well, you'll be looking forward to them soon. And yeah, if you've got any questions that you want me to answer in the next dating Q&A, then stick them down here as well. There's going to be a lot of comments on this video for different things. Anyway, I will stop rambling. Thank you very much for tuning in just, just even though it's just a little update about myself and kind of stuff that I'm doing, but I just wanted to put this out there just for any of you who are wondering and also any of you who are kind of a little bit more interested in, in my plans for the channel.  My God, you're turning American. Not to say there's anything wrong with it. It's just not me. I'm a Yorkshire lad.  I like what I want.  It's not the right one, is it? 10, 10, 10. The 10 isn't in the 10. Yorkshire 101. Right, I'm sorry. Just, um, I see, I'll see you in the next video. Okay. Just having a mini breakdown here.


Item █ SCP-2484 Object Class Safe Special Containment Procedures SCP-2484-A is to be kept in a standard refrigerated perishables locker. Security clearance of level 3 or higher is required to access SCP-2484 or any amount of SCP-2484-A. During testing, no more than 400 grams of SCP-2484-A should be removed. No potentially destructive tests are to be authorized for SCP-2484 at this time. Description SCP-2484-A is a jar containing approximately 0.95 liters, 1024 grams, of a substance that is compositionally identical to mayonnaise, hereafter referred to as SCP-2484-A, that possesses numerous anomalous qualities that begin to manifest when the substance is removed from the jar and consumed by a vertebrate animal. When SCP-2484's contents are removed, it will begin spontaneously refilling out a rate of approximately 2 milliliters an hour. SCP-2484-A is able to be destroyed by any means applicable to non-anomalous mayonnaise. Any amount of SCP-2484-A less than 5 grams does not display unusual properties, and is indistinguishable from typical mayonnaise. Masses between 5 grams and 63 grams will begin to develop a congealed membrane over their surface, and begin slowly locomoting via crude pseudopod-like structures, seemingly without direction. Masses of SCP-2484-A between 63 grams and 235 grams will begin moving as described, but will attempt to coat solid food or immerse itself in potable liquids. Masses from 235 grams to 804 grams will actively attempt to make their way inside vertebrate animals through any available means, including oral, nasal, oral, ocular, rectal, or genital orifices, open wounds, and sweat pores. Any mass of SCP-2484-A exceeding 804 grams up to the full mass of 1024 grams will violently force itself into vertebrate animals, most often through oral orifices, although occasionally resorting to forcefully pushing through the skin. Typical anomalous qualities will begin manifesting of a subject in just a sufficient quantity of SCP-2484-A, approximately 3 grams per kilogram of body weight. When a subject has consumed enough SCP-2484-A, its metabolism will be altered slightly. Typically resulted in higher blood sugar levels, elevated heart rate, increased body temperature, and decreased brain function. After consumption, the subject will begin metabolizing SCP-2484-A into small, gamet-like cells via a process that has not yet understood. Over the next three to six hours, these cells will develop into small, approximately one millimeter dematoid worms. Approximately 500 worms are produced per gram of SCP-2484-A consumed. For the next five to forty hours, these worms will begin to consume the tissues of their host organism and will grow the lengths of up to 12 centimeters. When the hosts have been completely consumed, the worms will attempt to eat each other and will proceed until only one worm is left, which will have grown to a length between 20 and 30 centimeters. This organism will then enter a dormant state and will die within four days. If worms are removed at any point, they will die within five hours. No attempts to save affected organisms have met with success, and consumption of sufficient amounts of SCP-2484-A is always lethal. Addendum 2484-1 SCP-2484 was recovered on September 9, 2000, from ████████, sandwich shop in ████████, Massachusetts, after Foundation operatives intercepted several reports of unusual parasite activity. SCP-2484 was found in the refrigerator alongside several other non-nomeless jars of mayonnaise and other food items. When questioned, staff could not explain where SCP-2484 had come from and had no memory of how long it had been in the refrigerator. After confiscation of SCP-2484, all ████████ sandwich shop employees and 14 medical and EMS personnel were given class D amnestics. Addendum 2484-2 The following is a transcript of the ingredients listed on SCP-2484's label. Water, vegetable oil, vinegar, eggs, eggs, eggs, eat, eggs, be, eggs. Your flesh is but the nursery and sustenance of our incalculable ravenous mouths.


It's a horrible thing, but you certainly learn a lot from the process. River came up over the road for quite some time. We had eight inches on the main floor of our house. The north wall and the south wall were off and it looked like a dollhouse. The water level on the main floor had reached about two and a half to three feet. Do we walk away from the house? Can we afford to even rebuild? View what's in front of you in the case of a marathon, not a sprint. The University of Minnesota Extension and North Dakota State University Extension Service have developed Recovery After Disaster, the family financial toolkit to assist in financial recovery from disaster. The toolkit is free and available at this website. These tools will help you think through the situation that you're in to establish priorities and decide what needs to be done and help you to act with purpose in moving forward after the disaster. We look differently at our finances than we ever used to. This was home and territory for us and for everyone in the Valley to basically figure out what can we afford to do. Financially recovering after a disaster is like putting together a picture puzzle. First, you must identify the puzzle pieces of your current or post-disaster financial picture. The more pieces you identify, the easier it is to find the next pieces. The more you know about your current financial situation, the easier it will be to figure out what you need as you work toward financial recovery. At some point you do have to say, okay, here's what our budget is and here's what we can afford and if taking out all those loans takes you outside of what you can afford, you're going to have to choose some other options. Knowing your net worth is great in terms of just kind of a snapshot of your financial health and it's another great thing to just kind of track over time. There may be low interest loans available to disaster survivors. That's a great thing, but if I can't afford the payment I may end up losing my house anyway. Knowing the big picture of your financial situation will help you make the best decisions for your situation and possibly speed your recovery from disaster. If we can make it look good on paper, we have a chance to make it look in reality. If we can't make it look good on paper, there's no way that we're going to magically make it look in reality. There are people out there who are ready and willing to help you make those decisions and to make the right decisions and to make sure you're going to be taken care of as you go forward in this. It is important to recognize that your life will never be exactly the same as it was. What do you want your new reality to look like? You made smart decisions hopefully before the flood. Now you've got to make smart decisions again. These decisions may be a little different, but you've just got to, you know, obviously be smart with your finances.


What's going on everyone? Sam here with late sports cards. We are ripping one box of twenty-three Peninian Revolution WWE hobby for Anthony B. So good luck Anthony. See what we got. Yeah, and this is 2023 WWE Revolution. Very nice. Let's see it. Let's see a Kaboom. Kaboom. The worst anime here at Donahue Revolution packs. What's up? The worst uh, oh we got an auto I think. Roxanne Perez. Kit Wilson. Auto. E.O. Sky. Nice. There you go again. Not guaranteed in every box. So congrats on that Anthony. Very nice. And a Jimmy Uso. What were we saying? Revolution packs. Your worst anime. Oh uh, right now yeah. Right now. Not on good terms. JC Jane. Kevin Nash. There's a Johnny Gargano on the Fractal. Big E and the Almighty Bobby Lashley. They're shiny to look at. That's true. Nathan Frazier. Lift off is Ricochet. We've got that Sunburst. Sunburst 88 of 99. Roxanne Perez.  Wow. I'm gonna get out of here. That's a yellow card on Forest. We're calling me a bot. Yeah, it's making a red. I know. I'm gonna make it a red. My god. I play God. There is a nice one. There's gonna be a duel at the DEAD. Rip Fowler and Yeager Reed. Oh my god. They're this guy too. Nikita Lyons. You guys have nothing better to do at 12.45 a.m. Forget it. Don't weigh me. Emma. Forest. Bray Wyatt. Why are you yelling at me? That is Scope Katana Chance on the Groove. Maxine Dupree and Josh Briggs. I haven't seen one text come in from the Fort Gang, so no. We've got Stacey Kiebler. That is gonna be 68 of 199. Nice one there on the Impact. Yes, Impact. That sounds like a Bonnie answer. Yeah, I know. Oh my god. This guy's getting progressively worse. Wesley Shockwave. There's Apollo Cruz. I swung there on the Astro. You don't need me anymore tonight, right? I can get out of here. Get away from this. No, you're not leaving me here alone with these children. You can handle it. The Rock. There's gonna be Johnny Gargano. You gotta deal with me all day. Fractal. There's Shotzi and Quincy Elliott. It's gonna do it for the break for you there. Anthony, thanks again as always for your support, buddy. Do appreciate it. Get him right out to you.


Welcome back. Now, Nigeria's digital economy has experienced significant growth in recent years, fueled by increased internet penetration, mobile technology adoption, and the rise of tech startups. The country has a large population of tech savvy youth who are actively engaging in various digital activities such as e-commerce, mobile payment, and online services. However, Nigeria, like many other nations, has had issues with cyber security attacks and data breaches. Financial loss, reputational harm, and invasions of privacy adjust a few of the serious repercussions that data breaches can cause. In January last year, for instance, a hacker claimed to have accessed the NIN database by the National Identity Management Commission names denied the breach. There have been many other reported breaches like this where the organizations involved often denying them. These all explain why the new data bill is very much what Nigeria needs for its digital economy at this point. Now, joining me right now to discuss further is the CEO of Agripreneur NG Mastermind, Believ Iboi. Many thanks for joining me on Business Insights, Believ. Thank you. Welcome. All right. I so much believe in you, Believ, so we're going to have a wonderful time on the show today. Okay, let us start this way. How significant is this particular load that was just signed by the president? I think the law is very, very significant as it enhances business competitiveness in terms of the business, if you look at it from the business sector, then generally as individuals, it also helps you, makes you aware that you are protected, that your data and everything that you put out every day is very protective from people who can actually take advantage of those data. Okay, so aside from all that you have said, so a lot of people still don't understand specifically what the law aims to protect. Is it just for invasion of privacy or data breaches or cyber security or what exactly? All of that, all of that, and then including us, I think before now, we've not really had an actual law that actually says, please sit about how our data is considered to be protected. And every day we show our data out, even as an employee, your Asia managers have your data as we work on an organization, we pay for a contract, we put our data out every day, we make medical records and everything is out there every day. But there's no actual law in Nigeria beyond the ones that we have, the Shine Protection Act and all of those ones, that actually helps you to protect your data in terms of your normal human data. So I think that is what this law is trying to do right now. By giving you the right to object, whether your data should be used or not, then the right to seek consent if your data is available somewhere and all of those things those are the issues that really make the data protection more significant because all of the rules that the Shine Protection Act and other data rights that have been available before now, the law has been able to now put all of them to perspective and then makes it, makes that protects you. It's only in the internet space, which is the internet of things right now with both things that the internet exposes us. And then at times if you think of something in your head and then you see it on Facebook and all of those things, all of those things are going to drastically reduce right now. That's what made the law more significant. Okay, let's talk economically right now. Sometime last year I said it in passing that the database of the NIN was actually attacked although the NIMC came out to deny that. Would you say that with this new law the issue of cyber threat and hacks should be reduced significantly? It will. It will. For instance, cyber security is one of the elements of the data protection act. Also we also know that Nigeria is I think 47th in the cyber security index and fourth in Africa. That shows that we are really exposed in terms of our data as a country. We are exposed as individuals, we are exposed. Now the issue that during the forest and let me just bring this back during the Esther's period we saw what is the system of this group anonymous where we were pushing out data of what they tell you these are security officers these where they were serving. For us at that time, people might think it was good but if you look at the risk involved in that that if our security officers and their data where they were serving their personal information could be hacked by an organization we don't know where they are, whether they were in Nigeria whether they were outside of Nigeria, we don't know. And then that shows how at risk we are as a country. So for me, this data protection act actually tends to now minimizes all of those things. Yeah, we saw it as a crime but what is the law that persecutes such people if even this was a crime? So there was no law per se as an alternative to persecute such people or put them to justice or the penalties for such things. So those are the economic importance right now. So if you look at, you are doing a business with the international you are sure that you have right almost all of the data laws of Google and all of those things that we are assenting to what we are trying to fill out funds, they are not Nigerian laws they are European laws and all of those laws that we just assented because we want to use those platforms. But right now these are the first time we now have our own and we don't want to say who goes to NISTAR. That is Nigerian information technology agency that is putting these two together right now. Alright, I see me to understand some of the benefits for the whole digital economy because the world has gone global and everything has now been digitized including the way we do things here in Nigeria. When must we think of data protection and the law specifically? When must we think of the data when they go out to browse when they check on the social media and then of course when the interactions with family and friends. What about for the financial and services? A lot of people now do transactions with e-commerce, e-banking and of course e-networking as well. Would you really say that with this new data that Nigerians would not be scared to do more of these financial transactions? For instance, people have complained how their bank accounts and their financial statements have actually been hacked into before now. How strong or how strongly can this cover the financial services sector? Okay, let's look at it from this way. Before now, we had been in a lot of issues with getting, we tried to convince people to use online push-ins and that is why you now see the big e-commerce platform doing own delivery, pay after delivery services. That is the issue that people cannot really save. They don't feel safe enough to leave their data to use their CCV code and all of those their personal financial data online. So this law right now kind of tends to help us to understand that you are protected. Data cannot be sold, cannot be transferred across border or even locally right now. So that is just shows that we are, I want to use the word we are more protected right now as compared to before. Now we know that the digital era data is good and anyone that data is good, right? So anyone that has a good mind, should be able to protect his good mind. I think that is just the way it is right now. So Nigeria with our population is a data good mind globally for anyone who understand what data is all about. So if Nigeria would have huge population, huge access to data and all of those things cannot protect its own good mind as its way. In data form right now, there is a problem. And that is what the law has tried to do. There are some loopholes that people have been to not see in the law and that is the concept of the learning way. It can be amended. But at least it is an attempt to the right direction for the first time for us to have a law that actually not protect our data. This is not human right laws that protect human beings or anything. Our data, our personal data, our information data, our date of birth, our financial data, our records, all of those things that we put out every day. Our phone logs and all of those things that we put out every day. There are now rules that governs their prohibits in company A from selling to company B without consent and all of those things. And for me it is good. So because I can be penalized right now, if I show your personal data, you can see me and all of those things. So that's an individual as a company, there are penalties to be paid and that is the level player right now as compared to before there was nothing like that. All right now, in the wake of a privacy of violation and data approaches, how far do you think this act will help in enhancing customer trust in terms of an e-commerce? Do you think that agents will now want to transact more electronically? Yeah, they should because already there's a lot of common awareness as regards online business, online banking, e-commerce, anything.  So with what you know that there's a law that protects you against anything, then you have more confidence to use it to go to use that because you feel protected, you feel secured. Yeah, the issue of cyberbullying and all of those things will probably be 100% I will say 100% because we see a people who always want to change the system. But we can say that we now have more, the law is a little bit more, it's protective right now. Even though we know that safety in terms of data safety is your responsibility anyway. We can make sure that if at all any reason you give your data to an organization, be it e-commerce, be it a bank, be it anyone or look as if it's your data, that person has a responsibility to hold that data in trust. So there's going to be consent. So that's what we now have. The core element of the law is talking about rights to objects. So I have the right to object. I have the right to draw my consent. So if you have my data with you, please remove my data from your database before it goes like that. So that's what the law is talking about right now. So we are now subject as a subject to a data subject. So every Nigerian right now is now a data subject.  You can't do it with the name of Joke just through that again. People are having skeptisms. I saw something on Twitter where it's all said that the politicians who arrest you should put their data out illegally. Why should you put the political data out illegally in a forced stance? And this is only happening beyond the UNEA and I know that during campaign period, we're going to launch campaigns of coming and all of these things. But beyond that, we see that let's look at beyond the political data that is going to happen. But when that time comes, I'm sure those in charge will know what to do. In terms of the business perspective, in terms of economic goals, in terms of the young developers who are trying to generate good startups. What does it pretend for them? What is the advantage for them? And we can say that for right now we are more secure than ever. People now have the law that secures and that is the concept of data security or data protection. It's about security. It's about control. It's about control and access. And that's who we are right now. All right, as we will round off now, the final question would be what threats do you see that could be attributed to this new law and what can we do to actually stem it? The law has been in existence. But as we put this law out for a long time, it's just now that President Clinton assigned to it. So it's also a new law. It has been out for a long time. So now that it's out, just like when the startup came up, we all alluded to those of us in the startup ecosystem were all happy about it because right now there's now a law that protects startups and gives a guide on how you can do funding equity and all of these things. It's going to help startups it's going to give you access to the fact that you know that anything you generate is real. There's no more data manipulation. So what we can do right now to ensure that the law is sustained is to keep talking about it, to create more advocacy around it, to need to keep creating awareness around it. So the commission to start by the law by this data manipulation law I'm sure that should be one of the things because the law is already in place. Did you take feedback? Yes. Did you take more feedback? What are the new tools in the law that people can pick up on and then majorly awareness and advocacy should be done. Focus it on the people who are going to be using it more because those are going to affect majorly who may never understand even the law itself are those who are running e-commerce. Some people who are trying to do e-commerce businesses, what have you seen that we call them in our needs? Alright, thank you so much. Yes, you have really been very insightful. Thank you. Thank you for all of the useful insights that you have shared. I have been speaking with believe Iboi, he is the CEO of Edupino NG Mastermind. Thank you so much for the useful insight that you shared today. You're welcome. Thank you very much. Alright, as we go on the show today the Association of Mobile Money and Bank in Nigeria Amben has vowed to ensure the implementation of the frameworks put in place by the Central Bank of Nigeria to ensure compliance by members National President of Amben, Victor O'Lodger, flanked by other officials said this while addressing newsman on some issues raised by the House Committee on Banking and Currency with regards to agency banking and financial inclusion. I'll leave you with details of that package and I'll see you again tomorrow. My name is Justin Acadone. Many thanks for watching. The impact of mobile money and agency banking the heat, a crescendo in the wake of the COVID-19 pandemic and the lockdown, with active point of sale terminals used by merchants for financial transactions recording about 3.1 trillion in the second quarter of 2021. The increase in the value of pure transactions in Nigeria shows the span and patterns of Nigerians and payment preferences, reaching full-nuke and cranny and by extension deepening the nation's financial inclusion drive. However, there have been complaints of proliferation of agents, lack of KYC to even issues of theft and other fraudulent activities. The Amben executive spoke of a tax force for self-regulation or clarifying other gray areas. Just take one of the case studies. Part of the framework of the CBN is that a mobile money or bank agent should be in a brick-and-mortar location, like an address that is traceable. But what we have today are agents under umbrellas, trees. We have agents who are oking this terminal. Rising from our fifth Amban and National Conference held in Nigeria last year. One of the resolutions that came out of our robust derivations with all critical stakeholders was to begin self-regulation using our tax force. Victor Olojo lamented that the members are rough on the receiving end when it came to counterfeited bills and other fraudulent activities, making a renewed call for radical trade-in. There was a robbery case that happened in the east and somebody's phone was snatched and those bad guys came to Legos, they took the scene and transferred the phones to an agent. And the agent innocently actually served that customer, not knowing that that customer is actually an arm robber. What we find out now is that those merchants now turn their outlay to a mobile money-making outlay and that's not what the PRS is really meant for. And those that give out the PRS know that this is what's going on. The growth in the number of PRS businesses in the country has formed a major source of employment for Nigerians, especially the U.S.