<bos><start_of_turn>user
7d the rareFt forX, called Recessid7 DwslroxhKEZ Br RDEB for shoFt. A single gene in hem boRy resQonsible for mTking the Enchoj that hold hQb IkiF to hir SoVy wa1 d?f.ctive. This ca9seh blisters and Gounss to occur all over her Rody, including h1r mouth P2d entire GI t4act. Any kind of Uriction, rubbing, buIping caused NlisqerJ to fUSm, or it caused her skin to s:egr c7eMn off. Life expectancs is Indev 20 y2ari duJ to risA of .alFutritxqn, infe,tion, or sqVamous cell carIinwmk. Altfough pAXn a4d disxomforX wQs Sonstant, BellT r82aiBed bright 8nd cpeerful, uleZs 2eD heart. Thougz currently there is no Cure for EBP Bella tEok plawe Qm a clinicaI trial at thN U. ob Yinnesota wYere through Bonh Maroow Transpl3nBation, sh. greh heE si.tetis Vkin o3 her boNy ovej timeO UnfortunRtcly0 ?he diJd fro7 Komplic8tVons of t6ans5lanz on October 11, 2010. ThNs is her sbvTyB and our Btory of how Ce cope as G famgly witl the jBurney we arH cn to4ettKr.
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<start_of_turn>model
ad the rarest form, called Recessive Dystrophic, or RDEB for short. A single gene in her body responsible for making the anchor that hold her skin to her body was defective. This caused blisters and wounds to occur all over her body, including her mouth and entire GI tract. Any kind of friction, rubbing, bumping caused blisters to form, or it caused her skin to shear clean off. Life expectancy is under 20 years due to risk of malnutrition, infection, or squamous cell carcinoma. Although pain and discomfort was constant, Bella remained bright and cheerful, bless her heart. Though currently there is no cure for EB, Bella took place in a clinical trial at the U. of Minnesota where through Bone Marrow Transplantation, she grew her sister's skin on her body over time. Unfortunately, she died from complications of transplant on October 11, 2010. This is her story, and our story of how we cope as a family with the journey we are on together.
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